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Menerie's Disease sufferer.

Posted , 8 users are following.

bruce85517
bruce85517

This is bad,I can't drive,can't go where I used to and will not get better.Walking feels like the ground moves at times.

0 likes, 9 replies

9 Replies

  • ben_36393
    ben_36393 bruce85517

    Posted

    Hi, 

    Was this your first attack? If not how long has it been? 

    • bruce85517
      bruce85517 ben_36393

      Posted

      No I had it bad last summer where I had to immediately lay down.

      This summer I at least can walk with a cane,but the feeling never leaves.

  • sarah87228
    sarah87228 bruce85517

    Posted

    Hi there, sorry to hear you are having such a bad time. 

    Unfortunately I still have days like this and have not been driving for 4 months now, which is a nightmare, however I have become better walking and have been able to go back to work. Some days are still tough but you’ll find away to get through. Unfortunately it’s a guessing game with this disease and my head still spins if I’m tired or stressed but, touch wood, I’m coming on 2 months without any vertigo. 

    You will get better, we all will we just have to find the right treatment for us. 

    How long have you had Meniere’s? 

    Sarah 

    • bruce85517
      bruce85517 sarah87228

      Posted

      It seems I had it since I was maybe 30 years old but I thought I either needed food or it was a panic attack.It got bad last year.
  • jacqueline96354
    jacqueline96354 bruce85517

    Posted

    Hey.  Sorry I know how you feel.  I’ve been dizzy since my attack in may. I’m still dizzy can’t look down and can’t lie flat.  It has gotten better everyday and especially since my anxiety has gotten better.  I don’t know what to say other than it will hopefully get a little better everyday it just takes. While.  I have tried to eliminate salt and I put ginger root in my water everyday. I think we will just have to live with this.    However it has gotten better. Just not completely gone.  
  • Guest
    Guest bruce85517

    Posted

    Hi. I, like several of the others , have experienced similar symptoms. Menieres disease can be unforgiving. It can be quite debilitating at times. I have had periods of not driving and definitely not on busy highways. I no longer drive long distances. In addition to menieres, I developed BPPV.  I went through vestibular therapy which seem to help. 

    I recently sac decompression surgery , as a last resort, because my vertigo attacks could no longer be controlled through diet and medication. It has been four months and I am still adjusting to symptoms. I have not had an attack since a month after surgery but balancing remains a challenge.  I rather deal with anything other than vertigo episodes. 

    Best to you....

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