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Meniere's surgey

Posted , 3 users are following.

april2625
april2625

I have dealt with MD for over 10 years and have tried everything from my DR, Diuretics,sterroid shots etc. I was sent to a specialist in Nashville and I had a sac decrompession surgery and Gentamycin inj that disconectd my balance nerve on my right side. The surg wea 6/16. I have been dizzy,off balance and spacy ever since This is daily all day.  Anyone else had this surgery? I am so regreting the surgery. Does this get better? Anyone know?

0 likes, 6 replies

6 Replies

  • eleftherio33095
    eleftherio33095 april2625

    Posted

    Has surgery at least reduced the intensity of the vertigo?

    Eleftherios S. Papathanasiou, PhD, FEAN

    Clinical Neurophysiology

    Fellow of the European Academy of Neurology

    • april2625
      april2625 eleftherio33095

      Posted

      It is different that a true meiners attack I could not function with those . But this is different it isn't true dizziness I am off balance and I have a hard time concentrating . It is dizziness but different from the attacks .

  • JMJ
    JMJ april2625

    Posted

    Dear April,

    I'm so sorry to hear what you're going through.  I haven't had that surgery or the Gentamycin injection, but I'm pretty sure there are people on the forum who have.  I have had vestibular rehab and balance retraining with a physical therapist who specialized in Meniere's, and that helped a lot when I had completely lost my balance after a particularly horrible episode.  

    What has your doctor said about your situation?  Perhaps some Physical Therapy might help?

    I can imagine how miserable you must be feeling. I wish you all the best in finding some relief.

    Take good care,

    J-

    • april2625
      april2625 JMJ

      Posted

      I actually started the therapy this week . And it has made my symptoms worse . The therapist told methatvit could get worse before it gets better .
    • JMJ
      JMJ april2625

      Posted

      Hi,

      I can remember feeling that way, too.....She made me do everything that made me sick and off balance, and many times over!  However,  I think it was around my 3rd or 4th visit that I began to feel more stable and less nauseous.  I also had to do exercises at home, in between visits, which was difficult at first...but again...I think it was around the 3rd or 4th visit that I realized that I was much more steady, and I my stomach was staying where it belonged.

      I know how difficult this must be.....Try to hang in there for a little bit and see if it might get better (I know!  Easier said than done!)   But if it's still getting worse after a few weeks, I'd say you've given it you're best shot and I can't see the point of torturing yourself. 

      I wish I could be of more help!

      J-

    • april2625
      april2625 JMJ

      Posted

      Thank you for your kind words .
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