Posted , 8 users are following.
I think I have menieres diesease and i would feel comfort if someone with the condition could speak to me about it. I feel alone with this problem and I'm wanting to open this discussion as id like to have someone with this problem to talk to me about the symptoms as I'm trying to figure out what is wrong with me please x
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terry48784 alison_00357
Posted
I think the information others have posted has probably covered most of what I will say but it may be useful for you. The most important thing is to find an Ear Nose and Throat specialist who has dealt with Menieres before. I was diagnosed in April 2015 by my ENT specialist who diagnosed me pretty much on the first visit with an MRI just to rule out something else. I have low frequency hearing loss in my right ear. Can't hear speach in that ear but extra sensitive to loud noises. My vertigo started Feb. 2015 and have stopped since I started taking betahistine 48mg x 3 times a day. Still get aural fullness in my right ear like when you are coming into land on a plane and tinnitus most of the time which I have sort of got used to. Sometimes worse than others like if I am in somewhere loud like a bar it will be worse when I come out. When I was having vertigo attacks they would last 2-5 hrs and i would take 3 days to recover. Most happened at night and next day I was in bed feeling dizzy, day 2 I would get up and move around very slowly, day 3 i would start feeling more normal but had to be careful. Travelling in car felt awful. Had to buy dark sunglasses for outside use as my eyes became very sensitive to light until i got my evrtigo under control. I still feel dizzy from time to time but tends to pass quickly. Have to be careful when lying down and looking up. The best thing about being diagnosed is you can get a plan eg low sodium diet, give up alcohol(you dont want anything that makes you more lightheaded), cut out caffeine(I drink decaf. tea as never drank coffee) if you can exercise is good. I started running when I could as I read it was good for balance and it makes you feel good.
I found this and other websites helpful but dont go on them too much. Everybody has different experiences with these symptoms and I found I could get quite down reading them sometimes and over analysing every symptom I was happening. Once diagnosed and on a treatment path you can let people know and then focus on carrying on with life as best you can.
All the best.
Terry