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Menieres Disease and BPPV....still suffering

Posted , 3 users are following.

misskent
misskent

Hello everyone,

Thought I would update and also get some support online.

I have suffered from MD since 1997 but I had the big attack 2009. In 2014 I took very poorly whilst working so last year I retired due to ill health.

I suffer daily from the MD but I have gone for months being OKish....if there is an OKish!!!

Last september I wrote about the additional spins when turning over...I now have BPPV to contend with. I improved earlier this year but hey ho its back again. I now attend a Balance Clinic which has helped. She does the Epley manoeuvre on me. No nice but does help!!!

But the reason I am writing today is that my MD has kicked off big time. I am having a big attack at least once per month. I am usually OK in the mornings but I have woke up with it, but by the afternoon, ealy evening it just wont ettle. The spins, eye flickers, loss of balance, nausea etc....I am trying so hard to manage this....I do relaxation....I even joined a ladies gym. I dont do very difficult moves and it has helped my confidence.

We are going on holiday in 3 weeks and although we have been away a week last month, I just hope this srttles a bit by then. Even on holiday I had one really bad attack!

Hope you are all coping, I know many of you are suffering daily as well.

Signing off for now.

Ruth

0 likes, 3 replies

3 Replies

  • Sukey421
    Sukey421 misskent

    Posted

    God Bless you I have MD and have had BPPV in the past and I know how awful they are alone let alone together. I wish I had answers for you but I don't I'm sure someone will be on here soon though who might be able to give you some advice my heart goes out to you as I hate to see anyone feel this way. Just please don't ever feel alone because there are plenty of us out here. Pleas take care and keep us posted. {{Hugs}}

    • misskent
      misskent Sukey421

      Posted

      Thank-you so much. It helps to have support from those that know what I am going through.Hope you are keeping well. (hugs) to you tooxxx
  • naomi68931
    naomi68931 misskent

    Posted

    Hello.  Having spent (in the past) almost one year of symptoms like yours I know how horribly awful it is to endure vertigo and all its after-effects.  I imagine you likely know what I'm going to write, but just in case you don't I'm going to tell you that what works best for me is a very (and I mean very) strict diet of almost no salt (I keep my salt intake to 1000mg/day), no alcohol, no caffeine, and as little sugar as possible.  This, in combination with yoga and meditation has helped me keep things under control.

    I wish you well and hope that you feel better and better, day by day.

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