Menieres disease/betahistine

Hi, I'm glad to have found a post which is still active. I woke up on the 13th October 2016 to my bedroom spinning. Could not think straight, thought I maybe had a bug. 3 days later and I was no better so I went to the doctors. I was told I had a water infection, given antibiotics and sent away. Nothing improved. I was getting more and more anxious because I didn't know what was happening to me. Fast forward almost a year and I have had MRI scans, CT scans, ENT specialist appointments and have just been started on Betahistine. 2 16mg a day. This is my first day of taking them. I feel as though it's making the "dizzy" feeling worse, and also I feel nauseous. I have never felt 100% back to normal since October last year, but I was learning to manage it. Just a foggy sensation in my head and the odd few days of what I can only describe as anxiety or something. I felt like I was going mad. But I was a lot better than I had been. Then a fortnight ago I went to bed and felt very dizzy. A different kind of dizzy though. Instead of the room spinning, it felt like my head was spinning. I felt sick and still do unless I'm eating which is really odd. I hate what this has done to me as a person. I have 3 kids and keep letting them down because I can't take them to the cinema or anything as I'm scared to leave the house while I'm like this. I was hoping it would gradually ease off as most posts I've found say it lasts a day or two then subsides. That's not been the case for me. I had a hearing test done last week which showed that my hearing is not picking up low pitch sounds anymore which is a change from my last hearing test in February. I've been told to take these tablets for 6 months until I see my specialist again in March. I just can't stand the thought of this being my life from now on. Family ask how I am, I get sick of saying I'm not ok so I just lie and say oh I'm not too bad. They don't seem to understand, neither do my friends. I don't know how to explain it to them

Without sounding like a hypochondriac!! 

I have been suffering with menieres for the last 3 years. I'm currently on Stememil but a man seeing the doctor tomorrow to ask to go back on betahistine as with Stememil you can only have 3x 5mg doses an so  find they are having little effect....my anxiety is also playing up big time.

I'm hoping I can go on 16mg x 3 times a day to try and get myself back on track and back to having good days. 

It was going well until I used a computer over a week straight for training and then last week and a half the dizziness had been unreal 

I have had dizzy spells and pins and needles in my face and head for 9 months now. I take 2 betahistine a day now and I bought divertigo and put it behind my ears when not feeling great. It cost £33 but it works. Best wishes donna

Hi, I have just found this discussion regarding Ménière’s disease and I am relieved to find that I am not alone.  I began just over a year ago with the symptoms of this frightening condition and have been prescribed betahistine 16mg a day aswell as Stugeron 15mg maximum 3 times a day.  However, I have attended A and E a few times and I am amazed how little the medics seem to know about this condition.  None of them had heard of Vestibular Rehabilitation.  Please keep this forum going as much of the ongoing helpful information is really comforting .