Menieres disease with migraine aura without headache
Posted , 4 users are following.
My ENT is suggesting that my imbalance, head pressure issues is being caused by silent migraine or migraine aura without headaches. Migraine medicines seem to make me worse i.e more dizzy and off balance. The symptoms are also brought and worsen by weather/barometric changes. My vertigo has been remedied by recent sac decompression surgery but I still feel as though I about to have an episode.
Has anyone experience this issue or have suggestions?
0 likes, 12 replies
brandy35795 Guest
Posted
Hi Ruby. I'm sorry you are experiences this. I was diagnoses with Meniere's back in April. I have since been diagnosed with BPPV and Cervicogenic Vertigo. I don't get migraines or even mild headaches either. Vestibular Therapy discovered some of my vertigo is caused by my neck, hence the Cervicogenic Vertigo. I have Degenerative Disc Disease in my neck, which I've had for years. if my neck is tight, my symptoms of Meniere's are worse. Another thought is TMJ. It has been directly linked to Meniere's symptoms so may be worth checking out if you have it.
Guest brandy35795
Posted
Thank you for sharing. I have not heard of cervicogenic vertigo. I don't seem to have that but I do have BPPV in addition to menieres. I have read about TMJ and have ruled that out too. There just so many conditions that can contribute to these dreadful episodes. It causes so much anxiety that it's difficult to focus on pursuing alternative possibilities. I'm being treated by a menieres specialist ENT and a neurologist. They are exploring the silent migraine therapy at this stage based on my symptoms.
Best to you....
Ronda_5 Guest
Posted
I had sac decompression this past May. Prior to and after sx I felt as if I had a head weight on my head (like a heavy/tight headband). Also felt the pressure around my temples like eyeglasses squeezing. I found a chiropractor who is certified in cranial therapy. This treatment, combined with a strict vitamin regimen, a nasal steroid spray, and teva betahistine 3/day has significantly improved my quality of life. Since I met my deductable after sx, I haven't had to pay for cranial therapy out of pocket. I've had 11 treatments to date.
Hope you get to feeling better soon!
Guest Ronda_5
Posted
Thank you for sharing. Yours is an interesting approach. I have not heard about cranial therapy. I will mention it to my physicians. I tried serc Betahistine 3/day 8 mg after my sac decompression and it did not work for me . It caused major dizziness and worsen my balance issues. I am going through my 3rd round vestibular therapy. It has been helpful but balance issues do return. Can you tell me about your vitamin regiment?
Best to you....
karen28005 Ronda_5
Posted
Ronda I am having the same heavy/tight around my temples and terrible sinus pressure,but not from a sinus infection. Do you have a diagnosis of Menieres? I am being worked up now for it. I have never heard of cranial therapy,but it sounds interesting. Thanks for sharing.
Ronda_5 Guest
Posted
I read several books by the Meniere's Man. His books have a wealth of practical information that I think you'd find valuable. No doctor ever recommended cranial therapy, but I read about it as one alternative treatment option by the Meniere's Man. I'd suggest you look up his books on amazon. I take 1,000 mg of Magnesium , D3, Fish Oil, 1,000mg Vitamin C and B complex 2x day.
Hope things turn around for you soon!
Guest Ronda_5
Posted
Thank you. This information is very helpful. Will be doing some more readind.
karen28005 Guest
Posted
Rubye-85728 I am being worked up for this right now. Dr thinks I have vestibular migraine induced Menieres. Headaches aren't even a symptom of mine. I go for a hearing test this week to start testing for the Menieres. It is frustrating this whole process.
Ronda_5 karen28005
Posted
Yes, I was diagnosed with Menieres in 1994.
Guest karen28005
Posted
HI. The process is long and frustrating meanwhile the vertigo and vestibular issues continue. Let us hope that it's not menieres disease. I have been at it since 2014 when I suddenly came down with vertigo and was diagnosed with menieres disease.Now at sac decompression and still having residual issues. Just hang in there and aim towards relief and maintaining quality of life.
Best to you...
karen28005 Guest
Posted
Thank You! So glad I found this forum! Almost thought I was going crazy!
Guest Ronda_5
Posted
I started having issues off and on for years starting around 1994 also . I had no idea about what or why. Just bearing it and continuing with career and life with mild medications . Doctors thought motion sickness. In 2014 after a long flight my life changed for the worse. And the rest is history....