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Menieres time frame

Posted , 9 users are following.

maria77273
maria77273

Have any members had complete respite from all symptoms of this dreadful disease and if so how long has it been since last attack.

1 like, 30 replies

30 Replies

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  • david2salsero
    david2salsero maria77273

    Posted

    Hi Maria. I’m going on 8 months since my last major episode. I now believe this is due to a combination of medication a strict diet observation. I’m also using anti-vertigo herbal patches. And I also drink a lot of water.
  • mowmow
    mowmow maria77273

    Posted

    Yes! It is a terrible disease! I have not, I had the surgery in 2014,it really, helped my veritgo! I do still have dizziness and balance problems and the fullness feeling. I have to have the injections in my ear at least once a year! I, just had the injections 5 weeks ago, I don't think they helped me as much as the last ones did, I will have to go back soon I think! I hope, that yours will stay gone forever!!!

    • chandra71
      chandra71 mowmow

      Posted

      Hi

      what is this injection you mentioned ? Will it clear the balance problems ?

      I have ear fullness and balance issues and constant ear ringing for last one year.

  • NeddyO
    NeddyO maria77273

    Posted

    Full remission of severe symptoms ( vertigo, nausea, vommitting) for 21 months. Hearing damage not reversible but severe tinnitus reduced to background level.

    When symptoms began to re-appear ( ear fullness, unstable tinnitus and mild vertigo) went straight back on high dose Betahistine - 64mg tds - which shut it down again quickly. Was able to wean off beta after 6 months and have remained symptom free for another 21 months!. Fingers crossed!

    Approx 70% of sufferers do get better so stay positive.

    • christine_35821
      christine_35821 NeddyO

      Posted

      Hi Neddy0,

      A couple of questions - how long ago was your first attack and now you are in remission do you still take a maintenance dose of betahistine?  I love to read your posts as it reassures me that we can manage Meniere’s with the right treatment and some luck. It would appear that betahistine doesn’t work for everyone. I have my 3 monthly review with the neurotologist clinic next week and I’m fairly sure my hearing has deteriorated although I’ve had no further attacks of vertigo. 

    • NeddyO
      NeddyO christine_35821

      Posted

      First attack end of June 2014 - full on severe vertigo and vomitting lasted 15 to 16 hours. Unlike many people I had never had any milder attacks previously! First given betahistine (16mg tds) 9 weeks later after several more attacks when saw ENT privately. Attacks only stopped completely after dose raised (by Aural physiologist) to 48mg tds. The advice was to wean off beta once free of symptoms for 5 to 6 months.

      I do not take maintenance dose but have stock in hand so that if symptoms re-appear again I can go back on previous highest dose quickly to hopefully pre-empt further trouble. So far so good!

      Click here to view image

    • maria77273
      maria77273 NeddyO

      Posted

      Thanks Neddy but will stay on B for s while as its only been 7 weeks since last attack.
  • chandra71
    chandra71 maria77273

    Posted

    Hi Maria77273

    Meniers symptoms are different for each individual.

    For me vertigo attack is less. But Tinitus and imbalance while walking  always there. Due to which am not able to do any job for last one year.

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