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Meniers

Posted , 5 users are following.

paul01145
paul01145

I've suffered with meniers since I was 8 years old I'm now 55 and have it in both ears since may I've been having attacks every day some time spending days in bed nearly all my hearing as gone and suffering really bad with depression and now I might even lose my dla as I have to apply for pip feel like I'm a waste of space at the moment even having councilling when I can get there the specialist always told me it would get worse but never thought I'd be this bad

0 likes, 12 replies

12 Replies

  • eileen85584
    eileen85584 paul01145

    Posted

    Please look at the post I sent to Diane...it is really worth considering gentimisin injections I had a high dose 9 years ago and have not had an attack since...wish you well.
    • paul01145
      paul01145 eileen85584

      Posted

      Thanks for your reply eileen I've had them before with no success I think the thing with meniers what works for one person does not always work for another I really appreciate your help take care and good luck x

  • eileen85584
    eileen85584 paul01145

    Posted

    So sorry it did not work for you. I must agree with you what works for one person,does not mean it will work for another...I wish you all the very best,and hope they will find something that will help you..take care
  • sharon17905
    sharon17905 paul01145

    Posted

    Hello Paul01145

    I really understand what you are going through regarding attacks, I have been having them intermittently for over 20 years.

    I am waiting for a Tribunal date, having been refused PIP, this is so distressing for me, also my employers are unsympathetic, and I'm very worried that I may lose my job, due to frequent sickness absences.

    • paul01145
      paul01145 sharon17905

      Posted

      Sharon thanks for the reply that is terrible I really don't think people understand how it affects you as they don't see you in every day life I hope you get sorted out I'm dreading having to go through it good luck and take care xx

  • kathleen67413
    kathleen67413 paul01145

    Posted

    One day at a time.  I try to keep the balance in my schedule with rest, exercise, diet etc And TRUST.

    Recently I almost drowned because I got a drop attack while swimming but luckily my friend noticed and rescued me.

    I went swimming again the next day because I grew up with horses and we always say - if the horse throws you get back on - or you’ll never ride again!

    I will pray for you, PAUL. Try Emotionsanonymous.org that helps me with my emotional balance.

  • diane04068
    diane04068 paul01145

    Posted

    So sad to hear Paul. NEVER give up! After drop attacks I have heard that one gets burned out Menieres ear, you lose all hearing in that ear but the dizzy goes away. i am hoping this is not a fairy tale, since i pray for that day to come...
    • paul01145
      paul01145 diane04068

      Posted

      Thanks diane I've got it in both ears up till June I was in full time employment and it had been in remission for 15 years but now it has come back worse than ever but I'll never give up take care and thanks x

    • paul01145
      paul01145 sharon17905

      Posted

      Hello sharon I used to deliver medication to people who had cancer and we're getting treatment at home and I had a bad attack when I was driving luckily I pulled over and that was the start of how I am now but we all got made redundant 8 weeks later as another firm bought our department but there is no way I could work at this moment in time x

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