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I've been on the above for 3 months and past month ive noticed my hair falling out but now my hair is so sparse I'm too scared to wash it this week cause I can't afford to lose anymore.
I spoke to my consultant last night after a lovely hour and half wait and she is so abrupt and unsupportive and shuts me down and recons the only pill left for me to take is one that can affect the liver and she pulled a face like it was a really bad pill last option.
I've only tried Infliximab and immune suppressants I've hardly tried every medication available, but then she drops the bombshell that the dosage I've been taken is wrong news to me I just did what the hospital told me to take when they discharged me so now she wants me to double my dose which in turn could make me violently sick and make my hair full out more and bring back all my lovely side effects that have only just disappeared .
I hate going to see this woman I always come out feeling worse she basically made out that if this medication doesn't work then next bet is operation to remove colon tslk about jumping the gun I'm not even having a flare up I haven't had one since November while in hospital.
I don't want to be in this medication anymore I don't want to go bloody bald but I can't get hold of anyone like a professional to talk about my options at this rate I'm going to have to just stop the pills and hope for the bestx
I've left a message for my consultant at the hospital I've left a message for my ibd nurse and as per usual nothing
How do I get refereed to another hospital I have lost faith in them all and just feel like I'm constantly being left on my own and when I end up in hospital my consultant basically blames me to cover her back cause she messed up helping me it's a joke
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