Merinere's disease

Posted , 8 users are following.

Does anybody know if merinere's can effect you everyday? Mine has been crazy for a week now everyday when will it let up?

1 like, 45 replies

45 Replies

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  • Posted

    I know I've already talked too much, but I just wanted to add one thing:

    I did not mean to imply that the results would be instant: My doctor told me that on average, his patients find complete remission with 3 to 4 injections. Injections are given once per month.   However, during that time, there is a gradual and noticeable decrease in the intensity and frequency of symptoms.  For me,, it took 9 injections to be vertigo-free, but that was unusual.  Still, it was worth the wait.

    J-

    • Posted

      Hi, did the injections help with the ear fullness ? As that's my main problem at the moment as I am already deaf in one ear.

    • Posted

      Hi Vicky,

      It helped. A lot with the fulness, but didn't eliminate it entirely.  Every couple of weeks I'd feel and increase in the pressure and tinnitus, but it would pass in a few hours.  

       I wish you all the best.  

      J

       

    • Posted

      Do you take water tablets ? I upped mine yesterday and now I'm fine.

    • Posted

      Hi Vicky,

      Yes.  I take 2 Dyazide 25/37.5 mg per day.  One with breakfast, one with dinner.  Even on the low salt diet, I couldn't go without them.

      I'm so glad you're feeling better after upping them!!  "MD ears" are so sensitive to fluid levels!!!

      Take good care,

      J

  • Posted

    I've had crazy symptoms for nearly a month now - only managed only 1 day and 3 hours clear.

    I wish you well - I'm willing to trial anything now

  • Posted

    Hi Daniel,

    Just checking in...Praying that  you're feeling a little better after starting on your meds!  Hope you'll post so we'll know how you're doing...

    Take good care,

    J

    • Posted

      Doing some better haven't talked my self in to taking no meds yet still trying to decide if it would be best to take the steroids or the fluid pill. Thanks for checking on me

  • Posted

    I am suffering from md from 2008 was quite normal.from2016 march it is agressive.vertigo tinitus fullness every day.taken dirutecs antidepressent cortisone betahistin 48 mg perday no improvment in tinitus and fulness.some improvment in vertigo. tell me what to do.very much disturbed with tinitus.
    • Posted

      Hi shailendar,

      Although my tinnitus never goes away entirely, I find that the degreee of loudness (and crazy diffierent sounds it makes) correlates with the degree of fullness in my ear.  My doctor had to double the normal dose of diuretic (Dyazide) and I have to take it in split doses daily,  just to maintain things at an acceptable level. 

      I would be interested to hear if anyone has found a way to minimize their tinnitus.  Distraction has been the only helpful remedy I've found, so far. Sigh. 

      Take good care,

      J-

    • Posted

      Gingko leaf supplement twice a day helps with circulation in the ear. It has helped my with the noise in my ear. I also have allergies and I take one benedryl at bed time and I wake up to a very quiet ear. If you have allergies my ENT suggested Claritin or Zyrtec without the D part.. no sudafed. SUDAFED DOESN'T REACH THE INNER EAR. It only makes the issue worse.

    • Posted

      Thank you, angela!  I have tried Ginko in the past, but I didn't have good luck with it.  However, I've never tried benedryl.  I don't think my tinnitus is allergy-related, but if the Benadryl works for you, to quiet that ear, then I think perhaps it's worth a try!  

      Thanks again!

      J-

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