Posted , 8 users are following.
Hi everyone,
I don't have a follow up until 25th September and I'm taking ASOCOL ( Mesazaline ) tablets three daily which is working for me. My question is do I keep taking these basically forever or can I stop them and carry on when I have a flare up?
Thank you
0 likes, 10 replies
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armelle67759 ashleyb1964
Posted
pamela21537 ashleyb1964
Posted
toby82533 ashleyb1964
Posted
helen50937 ashleyb1964
Posted
When I saw my consultant last time I thought that I was in remission, but tired. He took bloods which still showed inflammation - he doubled my tablets to 4 a day. Even though I felt OK. I have to see him again this week.
Glad you are feeling better though.
mark1259 ashleyb1964
Posted
As far as I'm aware you take these for good. No side affects that I'm aware of so shouldn't be a problem.
frank83371 ashleyb1964
Posted
Hey Ashley,
I replied to your earlier post so nice to hear everything is going well on Mesazaline.
Three daily tablets is for maintenance/prevention so you will be taking these long term if everything is going well. You can increase them to up to 6 tablets (4.8Mg) during the periods when you think that you have a flare up. (hopefully won't happen)
Really happy that you have reached remission...this is a great place to be!
Aside from your mishap during after the 1st week or so of taking this drug, have you had any other issues? I still suffer from severe fatigue/tiredness and my bowels whilst so much better...still have odd days of not being great. I wonder if this is something I just need to deal with, alothough my gastro is testing my stools when I mentioned this on my last visit.
Best of luck.
Frank
ashleyb1964 frank83371
Posted
Hi Frank,
the Asocol seems to be working without side effects unlike the previous tablets. I did drop down to two tablets but think I'll go back to the three as I did notice some mucus/blood.
Sorry to hear about your tiredness. I think I did feel weary a few weeks back but I'm never sure what to blame. I'm not sure what to expect from colitis especially when I think I'm in remission.
Hope you improve and get some answers Frank.
take care
Ashley
john14053 ashleyb1964
Posted
ashleyb1964
Posted
Thank you for taking the time to reply everyone. It looks like I'll be staying on these ..
JeanieG ashleyb1964
Posted
I had first symptoms of UC when I was 20 and I was started on Salazopyrine. I didn't respond so had several hospital admissions. Treated with Steroid retention enemas. Didn't respond. I was told if I didn't start taking my illness seriously, I wouldn't make it to 25. Several admissions later, consisting of clinical drug trials, I asked to start on Asacol. It was agreed that I should and within a month I was fine. Symptom free. I stayed on a low dose for 2 years and then I stopped taking it. I had 18 trouble free years and then it came back with a vengeance. My GP put me on Pentasa (also Mesalazine) but it got worse. He wanted me back in hospital but I asked if I could change from Pentasa back to Asacol and it worked within weeks. I was then told I had to stay on a low dose for the rest of my life. During a recent hospital admission for diverticulitis and a perforated bowel, I asked the consultant about swapping brands of Mesalazine. His response was absolutely not! They don't all react in the same way. So for me, it's Asacol forever. By the way, I celebrated my 70th birthday in March. So much for not making it to 25! I do hope you feel better.