Methomazole long term ?
Posted , 5 users are following.
So now after eight months of being diagnosed a gaves disease / hyper thyroid began methamazole dose 30 mg then 20 then 10 mg now have 2.5 daily For a couple of months now… Each time visiting the Endocronologist antibody levels have dropped from 650 in the beginning then to five $.50 for a couple of months now… Each time visiting the Endocronologist antibody levels have dropped from 650 in the beginning then to 550 then to 550 then to 4 50 Now they’re at they are at 3:50 now they’re at they are at 3:50 with the latest blood 350 with the latest blood work! all good news! I believe I need to be at about 160… Then the doctor says I need to be on a 2.5 low dose for about another year so the Graves’ disease doesn’t come back? This medication every time I take it I am very weak in the afternoon even at this low dose… I know this because I’ve skipped a few days in a row even a week And felt much better… Even though the blood work is getting better because of it I really don’t want to take this medication anymore but I am afraid to stop protocol… Anyone have any thoughts? Seeing a new Endocronologist in a month even though I think I’m on the right path… Just hard to function
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kim9598 jack41577
Posted
I have the same issue. Stopped taking my prescribed dosage cause I felt over medicated. When I had my follow up last week I told the Endocrine that I felt I was being over medicated so he dropped my dosage to 5 mg a day. He said if my levels stay normal for my labs in July then I can stop completely. I feel so much better off the meds.
linda187 jack41577
Posted
Can you please post your TSH, Free T3 and Free T4 levels? I worked very hard to normalize my levels, especially my TSH as it would not rise from less than 0.001 while I was on 10 mg of Methimazole for 2 years. Then I did some research, found out I was deficient in Vitamin D (very very important for good thyroid functioning) and total Carnitine and Free Carnitine levels as well as Magnesium. I was deficient in all of these. I don't think I am alone in these deficiencies as I think all hyper patients lose these from their system when they are running hyper. I came across a Research article on the benefits of hyperthyroid patients taking Regular L-Carnitine at a dose of 3,000 to 4,000 mg a day. I asked my boss, a Genetic Metabolic specialist about this and he said, "well it won't hurt you". When I added the Carnitine, my TSH rose from less than 0.001 to 0.12, still low but at least it was going in the right direction, then I tried 1,000 mg of Regular L-Carnitine and 1,000 mg of Acetyl-L-Carnitine and my TSH rose to 0.70 (in the normal range). The Acetyl-L-Carnitine requires a lot of adjustments and I did this, at times stopping it altogether and my Endo would adjust my Methimazole level. I was very scared of stopping my Methimazole altogether and I was on a final dosage of 2.5 mg every other day, which is nothing. My Endo will not stop meds unless antibodies are either in normal range or in my case, they were finally undetectable. So I was on low dose Methimazole for 10 years and that was fine with me. I stopped about a year ago and was okay until I had a stressful event and my TSH fell to 0.70. My Endo told me to take the Carnitine again but he preferred that I stay off meds so I did that and my TSH rose again.
jack41577
Posted
linda,
my TsH 3rdgeneration as of MAY 8 is at .47
T4 FREE level is 1.3 TBII IS AT 12.6 Tsi 350
T3 is 128