Methotrexate and alcohol
Posted , 104 users are following.
Hi there,
I've only yesterday started on my methotrexate tablets and have just started reading the online forums and have became very worried! The number of people who are losing their hair seems incredible, is this a common side effect?
I'm 23 years old and drinking and work in a bar while i'm studying at University. Drinking and going out is a massive part of my life and I was just wondering if anyone could tell me if it's still possible to carry this on at all? I usually go out roughly twice a week and can drink up to 3 nights. I know of course I will be cutting down massively, but can I still do it at all?
I can only find negative forums on here about the drug and it's making me feel like the side effects aren't worth the risk... Does anyone feel like they can still live their lifes on this drug and it is worth taking?
Thanks for any advice you can give! A bit worried here...
7 likes, 107 replies
55Barbara59 kirknap
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nola60872 55Barbara59
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Has anyone else noticed this?
Thanks
connie49452 nola60872
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rose01922 55Barbara59
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luv2feedfamily 55Barbara59
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AlreadyRAfedup nola60872
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nola60872 kirknap
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Im 26, have psoriatic arthrits and ive been taking methotrexate (6 tabs of 2.5 mg) weekly for about a year and a half with no real side effects and no problems in my blood tests. I get my bloods tested every month but am going travelling around Australia for at least a year in a couple of months and will probably find it hard to ensure I get to a GP every month for my blood tests. Does anyone know if this will be a massive issue? Have spoke to GP here in UK and obviously they say i should try get it tested every month.
connie49452 nola60872
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nola60872 connie49452
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Thanks!
Charlie_Phogg nola60872
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unfian kirknap
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So, I should note that I've only been on methotrexate for about six months so far. I was also afraid of losing my hair and being nauseous and sick a lot, because these are problems my grandmother--who suffered from RA as I do--had. She had really thick hair that became incredibly thin and fragile while on methotrexate, though she never actually lost it to the point of appearing balding.
When I expressed these concerns to my doctor she told me that a lot of new information has come to light about treating RA since my grandmother suffered with it, and that many of the negative side effects were actually a result of vitamin deficiencies caused by the meds that can be circumvented by taking supplements. The side effects and their severity can also differ based on dose; I'm on a relatively low dose because that is all that's required to deal with my symptoms.
Right now, she has me on methotrexate and plaquenil, as well as a daily dose of calcium, vitamin D, B12, and folic acid supplements. And I am happy to say that so far, I feel pretty great. I have not noticed any problems with my hair. In fact, it's just as thick and unmanageable as ever! :D The only notable side effect I've seen with methotrexate is that on the day I take it, I'm usually very, very tired. Also, I notice that I used to be able to pull multiple all-nighters in a row, and I can't really do that anymore. Not in the sense that I get sick or anything, moreso in the sense that I just crash completely...I will fall asleep and not wake up until my body decides I've had enough rest!
I split the dose of six pills once a week into two pills three times, spaced four hours apart over the course of a day, and that has helped a lot. I've also found that getting an hour or two of extra sleep the night before seems to keep me from being tired. If all else fails, a cup of coffee fixes me right up!
As for alcohol, there are a couple of reasons you don't want to be drinking. First of all, the methotrexate already gives your liver some extra work, so adding alcohol to that significantly increases your risk of liver disease or damage. Especially if you're drinking multiple times a week. The other reason is that methotrexate can cause drowsiness and nausea, so adding alcohol (which can also cause both) to that mix is just a recipe for disaster.
My workplace is very centered around social drinking, but I've found that I can still have fun with my coworkers while sipping on a diet Coke or a ginger ale, even if at first it made me feel a bit square. My doctor's recommendation was that I could indulge in a glass of wine on my birthday, but no more than that.
It sucks sometimes, being 25 and unable to partake with the rest of my peer group, but honestly? I'd rather give up drinking than go back to the unbearable pain in my hands and feet from the RA, and the constant feeling of exhaustion and frustration from always being in that much pain.
connie49452 unfian
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Charlie_Phogg unfian
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Wheato unfian
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I have have never really reduced my alcohol intake since starting Mtx and Humira. I forget to be honest as taking Mtx doesn't cause me any problems besides hair loss. My bloods are all normal so hopefully I don't have massive liver damage!
I'm interested reading the comments about supplements to reduce hair loss because all I was advised to take is folic acid, which I do. My hair still falls out more than normal - it's not thin but I always have millions of baby hairs sprouting out and it's not nice like it used to be.
I've been on Mtx for 6 years starting when I was 25. I was really ill for a while - at one point before diagnosis I woke up in the morning and just couldn't move. I'm so grateful for these drugs as now I'm basically 100% just perhaps more easily tired than other people. I do worry about the long term side effects though as it's harsh stuff.
I feel eel for all of you young 'uns (I'm 31 now) but know that RA and similar diseases don't have to mean massively altering your lifestyle. Look after yourselves and read as much info as possible to be informed in your own healthcare. Doctors are not always that great! Make sure you have a good specialist who you trust. I go to one in Oxford even though I now live in Gloucestershire as I believe their care is superior. Ask me any questions you have I am happy to help.
abbiecat Wheato
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I am currently 18 years old and diagnosed with Crohn's disease in June 2014. I have been taking Humira and Methotrexate since the first week in Oct, Methotrexate weekly on friday and Humira biweekly on friday. I take Folic acid tablets every day except for my MTX injection days. I will be starting college soon I am wondering when it is acceptable to drink alcohol on these medications, and if I do, how much.
Thank you!
karen91971 Wheato
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i am so pleased I have joined this site. I was diagnosed with RA in September. My rheumatologist wanted me to take methotrexate straight away but after reading the possible scary side affects and the fact I could not have a social drink again I refused. He put me on sulfasazeline which unfortunately has not worked. So regrettably I am now taking methotrexate after reading some of these posts it's nice to know that I can still have a drink if I choose to. The rheumy told me not to drink at all which I'm sorry but it's to much to take in is it just me being selfish but to me you only have one life make the most of it. I am 53 by the way and love going out socialising especially after a hard slog at work all week. If it shows in my blood then maybe I will cut down but up to now I've been ok it's just the guilt I feel afterwards