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methotrexate doesn't last whole week

Posted , 3 users are following.

gillian_25383
gillian_25383

I am on 25mg/week injected.It lasts 5days,sometimes 6but never 7.Saw rheumatology nurse today.She says she has never heard anyone say that before.Am I weird or has anyone else found this.I just take painkillers on the days the effect wears off.

0 likes, 6 replies

6 Replies

  • julielou01
    julielou01 gillian_25383

    Posted

    I have never injected MTX...used to take it orally,it dodnt work for me.. But not all these meds work 100% all of the time....Your not weird....just unfortunate....Can you perhaps talk to your rheumatologist ? 
    • gillian_25383
      gillian_25383 julielou01

      Posted

      Nurse is going to talk to the doctor and I am due to see her in May. Mention was made of possibly increasing to 30mg/week but that is not done often or adding hydroxychloroquine or leaving things as they are now.Just got to work which is best day of week to inject
    • lyn1951
      lyn1951 gillian_25383

      Posted

      Gillian - I have always taken my MTX on Friday night, even when I was taking tablets, that way if i get a mild reaction, upset stomach, I have the weekend to get over it, but never really get a reaction.

      I'm always careful not to take MTX, for example the Friday before my hip replacement on the Monday, Dr's delighted I had the sense not to dose myself, as apparently there can be some implications during surgery, for them, rather than me, not sure, but they always freak out when I tell them I am on MTX, and ask when was my last dose, and dressings and clothes and gloves all changed to bright purple, cytotoxic marked, they take no chances of being exposed themselves. Even for minor scratches we have an obligation to let hospital and Dr's know we are on MTX, I believe.

      Suggested by Rheumo, as she knew when I started i was still working and commuting 2 hours + a day.

      Have never changed my day of the week 10 years later.

    • gillian_25383
      gillian_25383 lyn1951

      Posted

      Thanks Lyn,I am going to try changing to Sunday as husband is off on Mondays so need it working those days as like doing nature reserves and that might stop the refrain of "you have done too much -we are going home "☺.it is a bit of a nuisance having RA,OA &PMR all at the same time;isn't life wonderful
  • lyn1951
    lyn1951 gillian_25383

    Posted

    Gillian - know exactly what you are taking about, hanging out for my injection at the moment, tonight thank goodness.

    I also experienced when I don't take my fish oil, I get so much stiffer and rusty, and generally ache more in other joints that are not directly affected.

    At Xmas we went to a remote area, and so focused on getting medicines right, forget my big bottle of fish oil, OH did i pay the price of not taking those for a couple of weeks.

    Rheumo first visit - Fish oil, are you taking any, well you need to start, immediatly, even wrote out what I needed, Odourless Fish Oil 1000mg, 6 a day.

    I take that 6 a day, 2 for breakfast 2 for lunch and 2 for dinner, always with food, otherwise I have a tendency to get reflux.

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