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Methotrexate for Morphea

Posted , 3 users are following.

shona78207
shona78207

hi I am wondering if anyone else has been prescribed this medication for generalised Morphea?  I have to make my mind up about starting this drug as the skin patches are becoming so big.  I would welcome any thoughts, facts, etc on starting this.  Thanks

0 likes, 8 replies

8 Replies

  • C2Anna
    C2Anna shona78207

    Posted

    Hi Shona, I understand that methotrexate carefully used can help with extreme pain of your condition but have never exp this. There were several articles and studies avaulable when doing a search of morphia and use of methotrexate. I hope you can look into this further in this way. I understand there is extreme pain and itching with your ailing condition. I hope you can at least try to see if this helps but being careful of any side effects that make rhings worse.
    • shona78207
      shona78207 C2Anna

      Posted

      Th anks for your reply.  My problem is I don't have any pain I am just covered in these disgusting marks on my body and it has now spread to the crease of my arm. The consultant has recommended this medication to stop it spreading any more.  I don't know whether to start on this medication with its side effects purely for it spreading to places people can see.  Over the last year it has spread from an oval round mark on my breast to huge purple marks all over my back and front.  I will try and research it further. Thank you.
    • C2Anna
      C2Anna shona78207

      Posted

      Wow, this sounds so hard to deal with..i dont know about methotrexate for this, as ive only had exp with using rhis with RA which was horrible. It lowered my immune system even more, and induced all kinds of other conditions including much dental infection amongst other body infections which spread all thru me, also affecting my luver enzymes which can cause irreversable damage. Because your condition is a fungal infection and also considerwd auto immune, have you ever considered having your body checked for systemic candida or yeast infection which is a systemic fungal infection..caused by extreme sensitivity to glutin/grain (all grains except quinea) and other allergens such as soy, dairy, peanuts (and other nuts) etc? The Paleo diet is prescribed for this condition. I dont know if a gp or endocronologist would be the dr who would test for these extreme sensitivities which lower your immunities and cause these systemic auto immune condituons like you have. I have read rhat prescription vitamin d3 ( or you can get this over the counter) in 5000 to 10,000 mg and magnesium (magnrsium glycinate --not magnesium oxide) has been very beneficial especially along with the eating program i talked about above.

    • shona78207
      shona78207 C2Anna

      Posted

      Thanks C2Anna for all this information.  I was treated for a fungal infection for three months but the pills and creams did no good.  I had a biopsy done to make sure it was superficial Morphea which it is.  I never thought about an allergy though.  Will read up about it.  Many thanks.
  • victoria12583
    victoria12583 shona78207

    Posted

    Methotrexate didn't work for me it affected my liver and my blood have had morphed for sixteen years. It may work differently for you
    • shona78207
      shona78207 victoria12583

      Posted

      Sorry to hear you have had this for so long.  I'm moaning because it's a year!  I was told the drug would stop it from spreading but clearly this is not the case.  I will need to have another think. I don't know about it now if it can do so much other damage.  Thanks 
  • victoria12583
    victoria12583 shona78207

    Posted

    Hi

    i have it on my front my back, between my legs,on my armpits and it is spreading down my legs.i cannot wear jeans any more have to wear yoga pants as jeans rub my hips where it is very bad.they told me it would go within five years but it hasn't.it is my dream for it to go. I have also had puva treatment but all I got was sunburn

     

    • shona78207
      shona78207 victoria12583

      Posted

      I can't believe other people have got this too. I got a printout from the consultant that said 1 in 100,000 got this.  My gp knows of the condition but has never seen it.  It is spreading under my armpits just now.  I have been offered  Puva but was told it would not work as well as the Methotrexate.  The information sheet said it should take 5 years to disappear if you leave it but it hasn't worked for you.  I absolutely hate it. I was so embarrassed getting a bra fitting recently. I will take the medication if it's guaranteed but there are no guarantees so really don't know what to do.  Thank you so much for telling me of your experience at least now I know I'm not alone x
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