Metoprolol. Tapering off. Side effects. Horrible drug!

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Metoprolol has been the worst medication I've ever been on. After a year of not knowing what was making me sick we found out it's this poison. I have never suffered so much and now after so much I found out it was this medication which I was given for hypertension. I've always ran but high and I believe I in fact have white coast hypertension I have MS so it's hard to know what's wha. Unclearly this drug ruined my life. I was 5"8 145lbs after losing a lot of weight from the pesky steroids I was given initially for MS then this drug in one year (despite healthy eating) packed on 30lbs and gave me a list of horrific side effects to include swelling chest pressure burning in arms sleep disturbances extreme dizziness depression I never thought possible. I'm slowly tapering off as no one warns you how risky stopping this drug is. Into week 2 of taper and it's hard

I have a tough time with MS but was never this sick

Also doctors hand this crap out like nothing despite FDA warnings. Anyone else go through this? I can't wait to be rid of this poison in me. My anxiety is off the charts

I can't believe I agreed to take this Med. I trusted my doctor. Never again. Have been to ER very sick 3 times. Even ER doc said it's not a good Med to treat HTN of any kind

Thank you for your time

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  • Edited

    Like many, I myself now seem to be on a merry go round and being prescribed one drug to counter the effects of another.

    During 2019 I finally went to the doctor due to years of intermittent heartburn and was prescribed Omeprazole and remember the pharmacist telling me upon my first collection that there were "no side effects, its incredibly safe" and I recall thinking at the time that it sounded too good to be true.

    Anyway, I started taking it and my heartburn went away almost immediately and that was that. However about 6 or so weeks later I started to feel unwell, I couldn't say how or why, it was just a feeling of malaise, sort of like how you feel when you're coming down with the flu, before it hits. That feeling of knowing something is about to happen.

    This went on for a few more weeks and I then started getting heart palpitations, which made me anxious and when I rode my mountain bike with any great exertion I'd get mild chest pains, so again, more anxiety and off to the doctor I went and was given an appointment to see a different doctor for a few weeks later.

    In the mean time I was getting more and more anxious, many more palpitations and starting to get waves of depression, which would often come on shortly after eating. I'm a truck driver and was parked up one night, had nodded off and woke up some time later with a pounding heart, sweating like mad and very light headed. I couldn't understand it, I'm only 35 and whilst I'm not exactly in shape, I'm in far better shape than most truck drivers etc. But at that moment I thought I was in the process of dying and called an ambulance who came out and took me to the nearest hospital, who in turn could find absolutely nothing wrong with me apart from a slightly elevated blood pressure and they discharged me a few hours later.

    I then hit google and almost straight away found a strong link between Omeprazole (and other PPI's) and mental health due to the changing of stomach acidity and knock on effects to your gut and the way you digest food and take in vitamins, minerals etc and then found all the horror stories of people who'd suffered the same as me. I didn't take another Omepazole pill after that, just stopped cold turkey but the symptoms largely remained. Crazy anxiety, extreme depression, suicidal urges, fatigue etc etc etc. One day I'd feel 90% normal and the next two days I'd be feeling so bad I'd almost welcome killing myself to be out of it. Now, I was and still am in control of myself enough to not actually do that but the urge was and sometimes still is there.

    Anyway, I returned to work and felt a bit better for a few weeks, then had two weeks at home over this past Christmas and went back to work again in January and 2 or 3 days in came down with another panic attack when parked up at night. This time I knew what it was and waited it out and it passed but I'd had enough of it so when I got home a few days later I went to see a doctor in the hospital who more or less dismissed my theory that Omeprazole had caused it but prescribed me Citalopram for anxiety and depression and if needed, Metaprolol for the palpitations.

    I started off with just the Citalopram (an SSRI) and within a day or two the heart palpitations had all but gone. I did have some uncomfortable muscle twitching just above my groin that slowly went away after about two weeks and at first it was impossible to ejaculate, though I could still get an erection without too much trouble. Thankfully that also passed, though I still can't ejaculate within 12 hours of taking a Citolopram pill, after that I can,though it takes longer than before.

    About 4 weeks in, palpitations almost gone, side effects pretty much gone and another doctors appointment, this time with a new GP I'd managed to register with. He asked me why I wasn't taking the Metaprolol and I said the other Dr told me to only take it if I continued to have bad episodes of palpitations and only to have one as and when needed.

    He said my BP was a bit high (was something like 155/85) and that it'd also help with whatever palpitations I still had. I went home and duly took them. 25mg once per day.

    As he predicted, the heart palpitations completely stopped, and for a couple of days I felt surprisingly good with less depression as the Citalopram had done absolutely nothing for that.

    About a week ago, so 2 or 3 weeks in to taking Metaprolol, I started noticing a slightly blurred vision. I'm short sighted anyway and wear glasses for it and it just feels like my eyes have deteriorated a bit and I need a new prescription lens etc, nothing major but I notice it.

    I'm also feeling like I'm in a daze all the time, slightly less aware of things, reactions times slightly down etc and now I'm suspecting that the Metaprolol is perhaps doing this, or maybe its the Citalopram even, I have no way of knowing.

    As I've noticed the least benefit from Metaprolol, I'm inclined to stop its use first. But I'm insure as to how to carry on. My next doctors appointment isn't for another 3 weeks and I'm currently out of my home country (Canada) and visiting my parents back in the UK.

    Would someone who's only been on 25mg of Metaprolol once a day for just over 3 weeks still need to ween off it over a long period or could I stop cold turkey given my dose is pretty low and I've only been on it a short time?

  • Edited

    hello. I have been on the trouble all 50 mg once a day for almost 2 years now just because every time I went to see my doctor my blood pressure was high about 160 over 80 and I guarantee that was because of the anxiety I already have all the time and being in the annoying and being in the annoying doctor's office.

    I did not like any other side effects I have had since I started it and they did not go away the whole time while being on it I recently told all my doctors I do not want to be on this medication anymore at all.

    a few months ago I did try to stop it cold turkey myself and probably almost had a heart attack I was outside working in the winter and my heart started racing fast when I started to get really tired and my heart rate was super super I had to call 911 rate was super super high I had to call 911... I went to the hospital had all the tests done I did not have a stroke or heart attack thank God so I would never just stop that or any drug right away anymore

    recently I have been taking half of the 50 mg once a day for about 8 days now and I am going to in a few days just stop it all together and see how I do.. recently at the same time I am also in a cardio program I am losing weight eating better I don't drink or smoke so that's a plus and I plan to continue to exercise a few days a week as well.

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      hi josue, i went through the same ordeal myself and i had to quit all medication (this might not work for everyone) my bp went as high as 190/100 during high bp episodes and my doctor gave me a beta blocker and an ARB . i went all natural and i'm very thankful to God that beetroot and andrographis paniculata leaf infusion( fancy word for tea) still works . from 140/90 my bp now averages 115/75. it was very hard at first but i prayed and asked for strength from the Lord Jesus and I am now on my third month without medication. i also had to steer clear of stressful situations (arguments etc) . i went from being bed ridden (beta blockers made it hard for me to move , leading to depression) for 5 months to getting 99% normal. no more shortness of breath , palpitations are gone . i pray that we all get 100% healing in Jesus' name.

  • Edited

    I'm still feeling the side effects of being dizzy without any pre warning. they are getting further apart and I'm looking forward to bring totally free of all side effects. I still have bouts of shortness of breath and now in a meditation program that brings me peace. the mind body connection is amazing when pursuing the spiritual path. you can do this. you've already displayed your inner strength and resolve. sending healing intentions to you. much love and light, Suzette

    • Posted

      how long after you were off the metoprolol did the dizziness last for? I’ve been off metoprolol now for about nine weeks and I experience dizziness, blurred vision, heart palpitations, and extreme anxiety almost every single day. Some days I feel a little bit better than others and some days I feel horrible. Now I’m wondering if it’s still the effects of the metoprolol withdrawal some thing else or both. It’s extremely terrifying and none of my doctors have been able to help me thus far.

  • Edited

    Hi Tee19

    thanks for this review, I don't feel alone in this, Metoprolol is re really the worst medicine ever. I was looking the whole internet to find someone that would say they felt swollen discomfort of pain in there chest, me too, except I felt it also in my upper back area where my lungs and heart is, I told my doctor it felt like my kidneys were swollen and full of pressure and full of pain with the medicine It made me feel like I have a weak heart with flickering, that made me feel week. on this medication I have all the side effects too, but the back swelling and depression was the worst. this should not be legal to prescribe this medication, I was going crazy on this toxic medicine. I took amlodipine as my first medication but it is cause only two side effects which was the severe back pressure , chest pains and breathing problems and my doctor put me on metoprolol, but because metoprolol cause all the side effects and worse he put me on denazapril which I have the same problem pressure and pain in the back and chest severely I do like these medications better but I would can't take it if it's causing that kind of pain in my back area, it worries me that nothing is working for me. Any advice from anyone would be deeply appreciated.

    Ps. my doctor didn't even wean me off of the metoprolol, which i was given 100mg which i too for 4 months i did even have bad hi bp at the time 140/90s now because of this drug my pressure gets very high and in need to the medicine. no weaning and he put me under benazapril....I don't know what will happen with me.

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    i was on metoprolol for 6 months and was having weird episodes where i thought i was having anxiety attacks but i never had a problem with anxiety until i got on this drug . I stop taking it on February 25 after two weeks of lowering my doses it's been 14 days and i still dont feel normal i feel so unwell on top of that I'm wearing a hoster monitor for 14 days .

    • Edited

      I understand what you're feeling. This drug controls your adrenaline, which influences your heart and blood pressure. When the adrenaline is manipulated you feel jittery, anxious, rapid heart, palpitations etc.

    • Edited

      i been in bed for 3 months now some days i feel ok than some days i feel like this is never going to end.

    • Edited

      Yes, anxiety was one of my big withdrawal side effects. Never had anxiety before in my life! I was on metoprolol for 6 months too before I slowly weaned myself off. You must go very slow if you are lowering your dose. As with another person I read on this message trail, it also took me about 3 months to feel completely back to normal. I have now been 130 days without metoprolol and finally feel like my old self again. You can do it but it has to be a slow reduction. I stayed busy reading or quilting or composing or jogging. Anything to keep my mind occupied and off the withdrawal side effects. Once your adrenaline is back to normal, the withdrawal effects should subside. I did continue to check my BP daily so I could make sure that it wasn't going up. Good luck!!

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      how have you been doing? i just started taking metoprolol and having lots of side effects

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      hello well I'm not going to lie I'm not doing well the doctor think i may have p.o.t.s after coming off metoprolol.

    • Edited

      I first came on this forum about 10 months ago or so and i kinda am normal but still dont feel like it. Quick summary (male 32y), had a fall easter 2019 at night cause i blacked out, hit my head and got a wound (never followed up on). went to the hospital, they stapled the wound and didnt bother with my head after that, my adrenaline was up and my heart rate was high cause of the scare, and immediately they put me on medication to slow the heart rate, claiming "afib" to which i was never diagnosed for or since. I was put on metoprolol 25mg once daily. Right away, something didnt feel right and i was panicking, like my heart was abmornally racing. I wore a monitor for about a month and after about 2 months on medication, my doctor suddenly stopped me and said you dont need it anymore, no weaning. While I think i am normal, i cant really tell and i know i was never the same again. I have anxiety bouts at times, as a non anxious person before the fall, and have just been off mentally ever since. That cardiologist never listened to me about weaning at all or stopping early with the completely obvious signs of side effects, but he didnt care at all. One year later now since my fall, I feel ok, but i know my chest and throat just dont feel the same anymore as i feel like i cannot sleep on my back ever, only side and stomach. i get sudden panic attacks now over trivial fears, not all the time but definitely noticeable, and my wife sometimes notices i jolt at night. I have been angry and depressed about this situation and feel like the hospital and its doctors tried to harm me that night

    • Posted

      Your symptoms made me think that the vagus nerve might be worth looking into to see if that could be a possibility.

      I've been learning about anxiety and adrenaline and stress because of my own heart issues which I believe are stress-related and came across the vagus nerve during my research. In my case it may have something to do with my anxiety and my sympathetic nervous system being in overdrive.

      This nerve is the pathway between our brains and our organs. It can get damaged in various ways, physical injury being one of them, and apparently, that can cause all sorts of symptoms all over the body.

      I just stopped Metaprolol 6 days ago after tapering down from 25mg 2x/day to 12.5mg/day and so far feel mostly better besides a bit of anxiety, occasional high heart rate and not being able to work out as intensely.

      I hope you find some answers and I sure hear you about doctors not listening to us.

    • Posted

      it when you stand up your heart rate goes up more than 30 bpm.... mine go to 140 bpm.

    • Edited

      Thank you for the information. I did some research about the vagus nerve and it appears to line up with what you are describing. The sudden anxiety, the feeling of throat tightness, etc. I have a GP visit scheduled within the next week so i will ask questions about the vagus nerve, ditto with my neurologist as well and definitely update my post here with those results or statements.

    • Edited

      I'm glad you found it helpful.

      In the event that your doctors aren't knowledgeable enough about this yet to take it seriously, I hope you will continue with your own exploration of it. If you're on FB, look up the group Vagus Nerve Stimulation & Repair. I learned a lot there and found it a good place to start.

      I basically got blank stares when I mentioned it to the medical professionals I've dealt with, so I'm left to educate myself.

    • Posted

      hey Drew,

      hope you are doing good have been on metoprolol 50mg twice a day now for blood pressure my cardiologist told me to taper off the meds by taking 25mg twice but i am s**t scared so i was wondering to go 75mg (50+25) and then go to 25 mg twice a day. honestly taking this medicine has affected me so badly i want to be off them never had anxiety or shortness of breath ever but now anxiety is like an everyday affair for me. how did you wean of this medicine ?

    • Edited

      i developed inappropriate sinus tachycardia due to this med... its a similar thing to pots

    • Posted

      Was that after you were off the metoprolol? I’ve been off of it now for 9 1/2 weeks and I still feel completely horrible. Some days I feel OK but only about 40% OK. I constantly think I have some sort of terminal illness and that I’m going to die. Over the last few weeks I’ve experienced extreme anxiety, heart palpitations, heart racing, extreme tiredness, blurred vision and it is extremely terrifying.

    • Posted

      your story gives me a little bit of hope. I’ve been off of metoprolol after being on 50 mg for about a year and a half and then I was reduced to half back in June and then taken off of it completely in August. since then ive been experiencing heart palpitations extreme anxiety weakness extreme tiredness and blurred vision. its probably the scariest thing ive ever dealt with. i hope i start to feel better soon

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