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I have seen a Neurologist recently after suffering months of head and face pain and being prescribed Tegretol - carbamazepine, and then Gabapentin, without much success. The Neurologist thought I possibly have Trigeminal autonomic cephalgia (TAC), and started me on a course of Indometacin tablets, increasing the dose over 3 weeks, to see if that worked at all. The nature of my pain seems to have changed since this, as I have less pain on the left hand side of my head - it used to be very bad all over - behind eye, cheek, forehead, ear, jaw - and now seems to be mainly in the jaw, but on both sides of my face. Now the symptoms seem more like Trigeminal Neuraalgia than anything else. I am very disappointed - I was really hoping this new prescription would work, but no luck after ten days on it now. I was told it should start working after a week, maybe a few days. I am seeing the Neurologist again this Wednesday. Is this likely to be TN after all?
Perhaps I should try the Tegretol again but get to a higher dose? Or discuss possible surgical procedures. I am - obviously - sick and tired of this awful pain. I have had to give up a PostGrad course I was starting, and not been able to attend job interviews because of it, and my life is getting more and more insular.
What dose of Tegretol have others found to be effective?
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