might have ls, need advice

You won't get significantly worse in the time it takes to get 'fast access'. It's good you know what it is. That already knocks the stress down a peg. No?

That is  unfortunate, but really once you have got it under control you will be fine..remember that whilst you will always have this condition, it comes and goes, meaning that once you have it under control you might not have another flare up for months.  The key is to treat it immediately and then always keep up with the maintenance.

I just want to add that I believe Candida is linked to this condition, so I would be careful not to eat too many sweet things, which can cause Candida and this in turn can cause a flare up of L. Schlerosus in my opinion.

Thank you.  Yes that makes sense, I am a cocacola addict and have always suffered with thrush

The thing about sugar is that when you cut way back, the cycle of craving is gone and it really isn't hard. But something like Coke would be so bad for LS.

DB, just to clarify, this idea I had for decades that corticosteroid creams thin the skin stopped me using them on my psoriasis for years. During that time I had many severe flares and some of them probably triggered LS flares. Now that I understand that LS skin is extremely thickened and mostly dead on top and I've learned that Dermovate used in miniscule amounts only on the LS affected areas thins the bad skin and penetrates down deep to where the inflammatory cells are.

I'm so happy for you that the things you're doing are working for you. I had years of remission at a time over my forty years of LS and I wasn't doing anything to treat it – I wasn't diagnosed.

My mother took prednisone for Rheumatoid arthritis for thirty years – her skin was so thin she bruised terribly at the drop of a hat. Some women who have been using too much dermovate and it soaks into healthy skin find it burns. That's why we rub it in well and wait awhile before applying oily moisturizers.

 

Hi.  I think that the only thing we are likely to agree on is that we don't agree!  I realise that you think I am in remission and that my alternative treatment has not contributed.  I know that this is not the case as my LS returns if I stop using it.  I appreciate that your treatment is the right one for you and I truely believe that we must all do whatever we feel comfortable with.  No-one has exactly the same symptoms even though they all come under one label and so many other factors to do with our daily lives and our beliefs come into play too.  We are all in charge of our own bodies and need to make our own decisions.  All I have tried to do in past posts is to let people know that there are alternatives to conventional treatment should anyone feel uncomfortable using the conventional treatment as I did.  When I was first diagnosed, I was desperately searching the internet for an alternative.  Even if my experience only helps one person then it has to be worth a mention.  I truely wish you the very best of health and happiness and completely understand why you choose to pursue the conventional treatment path.  It just isn't the right one for me.

Sue

Yes, thanks, this is all part of the mystery of auto-immune disorders. Others here have tried CMO and found it only provided temporary relief of certain aspects of their LS. I suppose we could say the same about Clobetasol. Some day (I hope in time for some of the young women here) medicine will get to the bottom of all this. In the meantime we do what we can to avoid severe disfigurement and hope we don't have the most aggressive version.

I will always use the Clobetasol because I agree with Morrell in that I think this auto immune disorder is very aggressive and you just cant risk not using it in my opinion.

I would however like to try the CMO cream though, to use in conjunction with the Clob,  I have looked on Amazon for it, which is where I always shop,  but I couldn't find it there, maybe I looked in the wrong place.?

Hi, No I'm English but living in Central America.  I saw this product..Cetyl Myristoleate Cream, 8 oz - on Amazon but dont want to order that as there are NO product reviews on that one..they have the celadrin capsules which look interesting, that might be something to try also at some point, I have got to be carefull though what I take orally as I am in remission from Ulcerative Colitis, another auto immune disorder...

 

There are no known contrindications for celadrin or known side effects and I should think that having another auto-immune condition is even more reason to take them!  They are good at reducing inflammation but it is recommended to take the soft capsules for some reason.  Good luck!

Hi to Sue

i am confused - i looked up Celudrin and could only find  information relating to osteo arthitis. What is the effect on the  tissue for the LS? What is the evidence for use with LS?  I tried to find a link without success. Many thanks

From Sue

I looked it up, too. "Celadrin is a patented and proprietary blend of esterified (stabilized) fatty acids, ... Celadrin is a natural source anti-inflammatory supplement that is clinically proven to help reduce pain and inflammation due to osteoarthritis and other inflammatory conditions."

Hi, Would you PM with the website details of where you purchase your cream...I have quite a few health problems at the mo and the last thing I need right now is to end up rubbing the wrong cream on my Vjay! LOL

Thanks

Thank you Morrell, was the clinically proven an independent assessment or from the manufacturers own description? I am getting  confused about the claims and counter claims of various pills and potions.

As to being a natural source  Digitalis (Foxglove) is a natural source of potent chemicals used to stabilise the heart beat - however wrong dose  to the wrong person......!

I am a cautious critter when it comes to my undercarriage!

Hi.  I did post a long article on it on this forum a while back. Its primary use is arthritis but it also suppresses the auto-immune response and reduced inflammation.  Here is an explanation of how it works taken from another website:

Celadrin works similar to, but much more dramatically than, the fatty acids EPA and DHA from fish oils. Fatty acids provide many vital, beneficial effects for the immune and inflammatory responses of the body. Various fatty acids induce changes in cell membranes and the responsiveness of the membrane to certain immune factors. They also play a role in suppressing inflammatory cell functions, decreasing cartilage breakdown (which triggers cell death) and, like NSAIDs, reduce the inflammatory activities of the Cox-2 enzyme.

The esterified (meaning they are stable and do not react with oxygen) fatty acids present in Celadrin have pronounced anti-inflammatory effects, such as the inhibition of inflammation in endothelial cells (thin cells that line the inside of some body cavities) and decreasing the pro-inflammatory effects of other fatty acids like arachidonic acid. The special fatty acids found in Celadrin have also been shown to reduce the production of the negative immune factor IL-6 and to control the immune factors responsible for inflammation. This alone could explain some effects of Celadrin, such as reduction of pain in joints affected by osteoarthritis. These anti-inflammatory functions are very important in preventing further tissue and joint damage while promoting healing. Additionally, the molecules found in Celadrin may play a role in the lubrication of an affected joint. This action, combined with anti-inflammatory effects, explains some of the significant improvements in mobility and function. Such combined effects would appear to be occurring through the application of Celadrin cream in psoriasis. Also, these special fatty acids have been shown to reduce skin inflammation, while providing a sustained moisturizing effect at the site of psoriasis.

Celadrin also works by inhibiting arachidonic acid, one of the main promoters of the inflammatory cascade of immune factors, by inhibiting 5-lipoxygenase - another mediator of inflammation. It may also alter cellular membranes, protecting them from the action of inflammatory cytokines or reducing the secretion of inflammatory cytokines and CRP.

Hope that clarifies things?

Sue

Had a look at another website with testimonials from customers.  One customer wrote:

About 3 years ago I was diagnosed with a severe form of alopecia areata, having lost all the hair on my head including my eyebrows and eyelashes. For the last three weeks I have been taking Celadrin and applying the cream to my scalp. Already I have begun to notice new hair growth in areas that have been completely bald for three years. I am not aware of any studies underway for this particular autoimmune condition, but there should be!

I think celadrin is useful for lots of autoimmune conditions but there is not enough written about it for anything except arthritis.  Incidentally, I did try the cream as well as the capsules but was a bit wary as it is a delicate area to apply it to.  It burned and I decided not to carry on with it.  That is why I now use CMO cream and take celadrin capsules.

Thank you Sue

That explains a lot

Am on my way out for the day so cant say more-except thaat was extremely helpful

Sue