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MIGRAINE

Posted , 5 users are following.

teri39607
teri39607

Hi - Last week I had my 1st set of Botox injections for Chronic migraine. Wondering if anyone else has had them and what kind of effects you've had. 

So far I'm having stiff neck pain around the injection sites at the base of my head. I've always had neck pain any way due to deg. disck disease, but this seems to be a bit different and I do hope it won't be a continuous thing. And even though I was told that it could take up to 2 weeks for Botox to start working for migraine -- I think I can safely say that it's already beginning to do it's job. Would love to hear from people who have or are doing Botox for migraine.

God Bless and Thank You lol

0 likes, 13 replies

13 Replies

  • flexi31
    flexi31 teri39607

    Posted

    I have severe and chronic migranie for years, botox is the only treatment that has helped me.  It only lasts 3 months and as far as I can tell, no one knows about the long term implications. However, I will take my chances as it has helped me when nothing else did.  Good luck to you. 
  • StevenRose
    StevenRose teri39607

    Posted

    Hi Teri,

    I am having Botox for hemiplegic migraines and can honestly say they have helped me a lot.  The pain and stiffness you are feeling could be from your disc degredation, which the Botox may have agrivated.  Talk to your GP and the specialist you are having Botox with, see what they say about it.  They have to put the needles in a certain place, but may be able to adjust this slightly or avoid a certain area altogether.

    Good Luck Teri and let us know how you get on.

    Take care and best wishes

    • teri39607
      teri39607 StevenRose

      Posted

      Thank you, I think I'll give Dr. a call today as I woke up this morning feeling worse then I have since this started. It's my 7th day since the injections and at this moment I feel like my old self. often neck pain was a trigger to set off migraine. I was so hopeful and though it's only been a week, it's only been abot half that time since the neck pain set in and seems to worsen by the day. Back to square 1.sad

    • StevenRose
      StevenRose teri39607

      Posted

      try to hang in there Teri, I do know how tough it is, we all do.  I believe the Botox will still work, but you need something else to take the pain away too.  Did you try Sumatriptan epipen injections yet?  They work like a dream for me.

      Good luck and let us know how you get on.

      Take care

    • teri39607
      teri39607 StevenRose

      Posted

      The last 2 days I have had to resort to my imitrex, last night included tizanendine (muscle relaxer and a valium)  I have used all forms of Sumatriptan - the injections do work well and quick, however I value my Imitrex like diamonds so I prefer the pills as I cut them in half and it usually works - if not I take the other half. Only allowed 9 tabs a month so I try to conserve. I usually start with tylenol or Ibuprophen and that might take the edge but the last 2 days and especially today has bee the worst. I did call the Dr. Of course typical of Drs, one must wait for a return call. I've had these migraines over 45 yrs and there really isn't much I haven't tried. If I had my way I'd just keep with treating the pain instead of a crap load of medication cocktails. I will still give Botox a chance, just pray this neck pain lifts and I can get to my activities again. About 2 months before my Botox I did have an allergy shot which seemed to help a whole lot in controlling my migraines. I had energy - started riding a stationary bike every other day and was doing rather well. Now I'm set back and incompasitated pretty much, maybe on the verge of depression, but I have strong faith in God which helps lots. 

      So as for now I wait and pray patiently. Will hang in there. I have read that Botox for Chronic Migraine can cause neck pain and headache..well that certainly passed the test! lol -- BTW, how long have yu been on Botox? And did you experience neck pain and headache?

      Thank you - Lord Bless all.

    • StevenRose
      StevenRose teri39607

      Posted

      Hi Teri,

      I started Botox last year.  I get hemiplegic migraine which resembles a stroke and usually hospitalises me for a few days.  The Botox for me worked from day one with no side effects thankfully.  Did you try multiple cranial nerve block injections?  They are good, but the effect soon wears off and they are really painful to have as well.  But you may consider worth a go.

      Good luck Teri and take care.

      Do update us when you can.

      Best wishes

  • claire18599
    claire18599 teri39607

    Posted

    Hi Teri

    I had my first lot of botox 11 weeks ago and having my second lot on Monday.  I did experience neck pain and severe migraines for a few weeks after.  Unfortunately it has not really helped me yet but was told that the first lot doesn't always work so will try Mondays and see if that helps. This is my last resort so fingers crossed.

    Take care and hope your recovery continues.

    Claire

    • teri39607
      teri39607 claire18599

      Posted

      Thanks for responding. Like you this is my last resort as well. I seem to be falling back a bit. I guess the 1rst 3 days I was so hopeful and recorded no pain, but now I'm beginning to wake up with this neck pain.. much similar to the pain I had when I had a fusion. As of this moment, another day and the neck pain area seems stronger - I'm beginning to tink it's not going to work with me. Today marks the 7 day since my first treatment. 

       

    • claire18599
      claire18599 teri39607

      Posted

      Teri

      Sometimes your first lot of botox can make you feel worse for the first 2-3 weeks before it can work so just ride the next couple of weeks out and see how it works.

      Claire

    • teri39607
      teri39607 claire18599

      Posted

      yes I am feeling worse then better as far as the neck and I expect to have to take imitrex today as I did yesterday. Feels like someone hit me in the back of my head with a baseball bat which is how I always felt before botox at the onset of migraine. Is it possible that after a couple more weeks this pain will stop? 
    • teri39607
      teri39607 claire18599

      Posted

      Oh and I'll keep my fingers crossed for you as well. Will be SOOOO disappointed if this doesn't work and if this neck pain worsens I may have to re consider,

    • teri39607
      teri39607 claire18599

      Posted

      Today was a better day. I only needed to take some IBuprophen when I woke. Hopin the Botox is finally beginning to balance out a bit. I rested all day. Time will tell and I'm willing to give it time -- at least I'm not a vegetable from the many different prescribed cocktails. That is a plus for me. So No giving up yet. I am recording any symptoms good or bad and what meds I have to take so. Will keep ya posted lol 

    • claire18599
      claire18599 teri39607

      Posted

      Good news Teri.  Hope it continues.  I had 9 hour migraine yesterday and Thursday evening so today pain is just above eye.  Going to go to bed to rest in hope that it doesn't go into my eye and start another migraine attack.

      What fun!  At least this blog does allow me to chat with others who experience migraines as I think alot of people who have never had one just think its a 'headache' and don't realise how disabling it is.

      All the best, Claire

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