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Migraine and Raynauds

Posted , 5 users are following.

ashlie54752
ashlie54752

Hi, 

As a chronic migraine sufferer im just wondering if there is anybody else who also suffers both migraine and raynauds? Maybe some sort of connection?

1 like, 12 replies

12 Replies

  • kate11944
    kate11944 ashlie54752

    Posted

    Hi ashlie I have raynauds and in the process of possibly being diagnosed with migraines, just waiting for an MRI and for my next appointment with my neurologist in a couple of months.
    • ashlie54752
      ashlie54752 kate11944

      Posted

      Thanks for replying, I never thought of it being some sort of connection and didnt really want to mention it and look stupid lol, if im honest i totally forgot i had it when i had my neurologist appointment. I think i need to push for a scan as after 10 months of migraine i havent even been offered one and it seems that everybody else has. 
    • kate11944
      kate11944 ashlie54752

      Posted

      I honestly don't know if it is connected. I've only seen my neurologist once and he booked the scan but I have a lot of neurological symptoms to go with the headaches, don't know if that's why they've booked mine? Do you have many symptoms with your migraines?
    • ashlie54752
      ashlie54752 kate11944

      Posted

      i have sickness, watery eyes to the point where i have to squeeze my eyes together as they are so irritable and also dizziness when i turn my head, thats without migraine too so im not sure if thats connected. When i have a really bad migraine i cant walk in a straight line and feel like im going to pass out but i need to mention these to the neurologist as i wasnt really prepared on my 1st appointment and forgot all sorts of side effects etc. I shall have to mention them next time i have an appoitnment but my doctor is pushing for botox treatment as i am on the highest amount of pills i can have etc. 

      Im just glad i came accross this forum as i thought i was alone and i find not a lot of people understand what we go through 

    • kate11944
      kate11944 ashlie54752

      Posted

      I made notes in my phone and took that with me (although my neurologist didn't listen much) so maybe you could do that and then you won't forget. Also write questions down you want to ask him, I'm going to do that next time and use questions he can't just say yes to. I've had a really bad head all day any my painkillers haven't work but all I've got is codeine which my gp give me before I was referred, paracetamol and ibruprophen. I hope it's gone fore tomorrow because I really don't want to be at work and feel like this!

      These forums are really good and it's amazing how many people have different symptoms and everyone is nice and understanding which helps loads x

  • claire18599
    claire18599 ashlie54752

    Posted

    Hi Ashlie

    I too suffer from raynauds and have been unable to receive any medication to help it because I suffered from migraines but only may be 3 or 4 a month (this is because raynauds medication opens up your blood vessels which then can cause migraines - i think this is right)  However since last july my migraines went from 3 or 4 a month to daily chronic monsters with either migraines/migraine auras and I am currently on sick from work trying different meds out.  I have never linked the 2 before - do you take medication for your raynauds because it could be that?

    Take care  Claire

    • ashlie54752
      ashlie54752 claire18599

      Posted

      Hi

      Thanks for replying, I dont have any medication for Raynauds as it isnt at the stage where i cant cope with it, my migraines are really chronic having around 20 a day so that is the most important thing for me to sort out at them moment, i just wondered if there is any correlation as to wether Raynauds and Migraines are connected somehow.

       

    • ashlie54752
      ashlie54752

      Posted

      20 migraines a month not per day lol
  • bernie_411
    bernie_411 ashlie54752

    Edited

    Hi, I too have Raynauds and have wondered the same thing.  My nueurologist has not indicated there is a connection.  I have 24/7 migraines and am currently going off most of my medication to try and rests lush a baseline and maybe try a new regime. I am not successful with any of the standard migraine treatments. I have had several injuries to my neck and wonder how much that contributes.  I know the search is long and frustrating.  I hope you find your answers.  
    • ashlie54752
      ashlie54752 bernie_411

      Edited

      I am too weaning myself off one of the medications i am on as they dont seem to be helping at all anymore, so will see if i have any options left to try. I have physio too at the moment for my migraines and he has mentioned how my neck is really clicky/crunching when i move it so the neck injuries you mentioned actually mat have a lot to do with it also. Good luck searching for your answers too
  • sliding
    sliding ashlie54752

    Posted

    I think I can see how they could be related. I get migraines (head pain, nausea, intolerance of sound, light, movement, smells) that are partly triggered, ironically, by becoming over-heated, which I've experienced living in a warm climate. My own theory is that it may have something to do with my blood vessels not coordinating correctly to dissipate heat, similar to them constricting too much in the cold.

    https://pubmed.ncbi.nlm.nih.gov/6143540/

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