Migraine aura any one else have the same

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Recently got diagnosed after years of expercing some wired sensation. Which appernly my doctor says is aura but it's happening everyday and is ruining my life my family just think I'm going on ?? So thought I'd try this site to talk to others . I basically constantly have daily floater bright blobs on both eyes and a strong feel of panic/ anxiety. Thankful I don't get much head pain only a slight dull ache. I also get a swaying feelin but my body is actually swaying is so odd and frightens the life out of me PLEASE CAN ANYONE RELATE TO THIS IS IT AURAS ? Thankyou

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10 Replies

  • Posted

    Hi,

    I'm not sure of the terminology but had ocular migraines. Not as intense as the ones you describe but troubling. I had them for over 10 years. Turned out that I had untreated high blood pressure, my fault. I stated taking lisinopril 12.5 MLg and the headaches, migraines and tunnel visions went away after a few days. I haven't had any issues in over 9 months. Not a single episode. This information may help you. It was my mirical drug.

    Good luck and let me know if you have any questions.

    Jonathan

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    • Posted

      I'm very grateful for your reply didn't think anyone would. Feel very alone in this I no others suffer it's just so awful. I'm goin to go back to the doctors I also suffer dry eyes as well I'm in my early 20s and don't see how all this can happen as I'm quite young. I also forgot to mention I always have a stiff neck. Did you suffer with this. Also very odd visual disturbance of zooming in and out its so scary. I had my blood pressure checked they said I had a fast heart rate but nothing concerning??

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    • Posted

      You may want to examine the high blood pressure connection. None of my doctors could figure out that the two are connected in my case. They had no clue how or what was causing it. I've had MRI, ultrasounds and many doctors trying to figure it out. It was happening 3-5 times a day, spooky. It was just a fluke that I took the medicine and it worked on lowering my pressure and elimating my migraines. Stay strong and don't let them push you around due to your age. I believe that the my pressure was so high that it my body was reacting by giving headaches and messed up vision. See if your doc will prescribe you a medicine like Lisinopril. It open up the gains for better blood flow. Try it for a few weeks and see if it helps. I can't see the harm in it. I have no side effects from it or very minimum ones. I hope this helps you. Also don't think of it as the end of the world, don't panic, you will solve this you are young. no neck issues that I can attribute to the migraines. Although I have had a Crick in my next that won't go away for about 7 months.

      Let me know if you make any headway,

      Jonathan

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    • Posted

      Thanks Jonathan yes they do rush me out the door. Don't think they ful understand the stress and impact this is having on my life I go into my doctor weekly crying because things just stay the same some weeks worse the other just want a end to this already .

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  • Posted

    Hi Nicola,

    Yes, definitely relate to what you describe.  It sounds like a variaton on hemeplegic migraine, like I get.  The eye pain is really bad and cant bear light.

    You really need to be refered to a neurologist who specialises in headaches and migraines, so you get the best treatment.  Di your dr give you any meds for this?

    Good luck Nicola and best wishes.

    Let us klnow how you get on, take care

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    • Posted

      My doctor keep putting it off saying it was anxiety and I told them time and time again that this can't just but anxiety with all the strange symptoms. They finally listened and says migraine with aura and gave me migraleve which is annoying cause as I said I don't get much pain really so they aren't working. I'm planning on going back but so fed up of not being listened to when this is affecting my quality of life thankyou for your reply

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    • Posted

      With all migraines or headaches, a lot of drs do fob you off and dont really recognise the anquish you are going through.  I have had many battles and I am afraid you will have to NAG them like crazy to get somewhere.  But once you do, you will be on the case and get the right meds to lead a normal life.  If the dr you are seeing isnt listening then go see another dr.  I am lucky my GP is really good and my neurologist is too.

      Be tough with them Nicola!

      My very best wishes, trust me we are all in the same boat, one way or another.

      Take care

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    • Posted

      Thankyou I will keep pushing I will set a tent up and live outside the place if I have to haha . Going to try stay positive and push for more answers
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    • Posted

      Good for you!  You will get there Nicola I know!  Just be strong and everntually you wil have your life back.

      Do let us know how you get on.  Support on here is free and plentiful!

       

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    • Posted

      Hey there

      I've had some, see my other posts relating to further bits about. What I Gota say I was really scarred the first few times

      1 I was nearly blind except for small slits at the top of my eyes. I must have looked bonkers making my way home looking down so I could see. Also crossing Blackpool promenade full of cars. It got helped with Nadolol

      It really helped me and still does

      Hope this had a positive experience

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