Migraine aura unable to cope

Posted , 8 users are following.

I am looking for ways to cope with having migraine with aura. Prior to two months ago, I never heard of a migraine with aura. I have suffered from menstrual migraine for roughly 7/8 years, but they have only consisted of intense one sided pain that would last 24 hours. I was at work on October 17th, when suddenly everything seemed too bright. Then, I developed what I have since learned is a scotoma. It slowly got larger until it turned into colorful triangles that covered my entire view. The whole episode lasted roughly 30 minutes. I was brought by ambulance to the hospital and after many tests was told it was an ocular migraine. Three days later, I woke up to a zig zag pattern which turned into a bright arch that made its way across my vision in about 20 minutes. Then, two days after the second, I had another zig zag only aura while in doctor's office waiting room. To be totally honest, I feel like I have PTSD.

I am completely traumatized by the whole experience. I know it may seem silly to some of you, but I truly had no idea what was happening to me. I thought I was fainting due to a heavy perimenopausal period. I'm not sure how to get over this fear. I send every day worrying that it will happen again. I haven't been to work since the initial incident and am on the cusp of losing my professional career. I am practically housebound and am afraid to be alone. This experience has completely changed my life.

I should also mention that my vision has been blurry/wonky ever since the aura. I am not sure if it is migraine related or due to perimenopause. All I know is that I am afraid and no one I know in real life has ever experienced an aura. I feel very alone.

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33 Replies

  • Posted

    I am looking for some advice on the auras I have been experiencing. Many years back I remember getting an odd one. Recently I am having them every couple of days. I am 44 and they were around the time of my period at first so I wasn't too worried as I was linking them to my period. Now they are every couple of days and so cannot be linked to my period. I am now really concerned it is something sinister like a brain tumour. I don't know anyone who has these and when I mention mine you can just see look on face as if to say "really you get flashing zig zags that block your vision". I was hoping they were linked to maybe perimenopause as I am 44 but nothing I have read states that in fact they say the opposite that with perimenopause you may get general migraine without aura so that cannot be it. Any advice or help would be greatly appreciated.

    Many thanks

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  • Posted

    I started my auras at menopause. The weird thing about mine is that I get them seasonally. |In Sept/March and again in March/April. I just had one last week. It lasted about 20 minutes.

    The thing is, is that I never get a headache after, just the optical aura.

    I do have daily facial pressure that also plugs my left ear and makes me all off balance. Neuro says its a type of migraine. So frustrating to have this awful feeling usually daily that comes on around the same time of day

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  • Posted

    hello lolasmom

    when you said you started getting your aura at menopause was that when your periods had completely stopped or in perimenopause . I am 44 still having periods and getting these terrible auras.

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