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Migraine everyday, nonstop for a year. Ayudame!

Posted , 5 users are following.

gl19
gl19

Hello my name is Gina and I'm 18. Since last year in August I've started getting headaches everyday that then transformed into migraines everyday. I went to a nuerologist and she diagnosed me with chronic migraines and suggested for me to go to the hospital to get the DHE. Let me tell you, that was a waste of time and precious money. It got rid of my migraine during the stay there but I had fuzzy feeling in my head everytime I shook it. By the time I got discharged from the hopsital and stayed a couple hours at home the migraine started to slowly creep back into the pain it was before. So to those who are thinking about doing the DHE I suggest to not go for it. All it left for me was false hope and more frustration. 

I've also tried medications Amitriptyline and Topmax. Sad to say they never worked on me so now I'm off them and taking vitamins like B2, Petadolex, and magnesium. 

The reason now I'm feeling desperate for help is that I just went to the emergency room last night because my migraine got so bad that I couldn't even properly walk, talk, or hear and see. They put me on Toradol and that seemed to help, but now I can feel the migraine slowly creeping back up again to (hopefully not) the intense pain I had last night.

Because of these migraines I had to drop out of highschool on my senior year and I never got to graduate with my class. The adminstration in my school didn't believe I was having migraines and did little to help. Now I'm in homeschooling and I only need to finish two classes to finally graduate, but it seems that even now it will be hard to accomplish those with these migraines effecting how I work. I used to be an A/B student with a chance to go to a good university and live a normal college life. Now it seems that I will probably be better off going to a community college and starting slow from there. 

I would love to know how other people deal with the migraines and what they figured out were there triggers are. I would really love it if anyone can give me any advice on other things they've tried to help with their migraines. I know chocolate is a no-no for me and also sodas, but having 2 or 3 drinks a week with caffenine, like coffee or tea, helps calm it down. Light, sound, smells they don't do to well either, however I heard exercise is good but sometimes I can't even get myself up from the bed to do it. 

That's pretty much all I have to say. I think this probably turned out to be more of rant than asking for help, but I would really appreciate it if someone could help. Thanks!

3 likes, 13 replies

13 Replies

  • Tazchurch
    Tazchurch gl19

    Posted

    Try cutting out walnuts and peanuts as they are chemically different from other nuts. You can be fine with nuts but not these two specific ones.

    If chocolate is a no no it may be worth seeing if dairy is a trigger for you.

    I wear slightly tinted glasses with reactive lenses and they hep as does wearing a baseball cap much of the time to shade my eyes.

  • StevenRose
    StevenRose gl19

    Posted

    Hi Gina,

    Wow!  poor you!  You've had a pretty rough time.

    I will offer my suggestions and support and hope it helps.

    I can only tell you want has worked for me and I have tried many migraine prevenative meds and I was finally diagnosed with cluster headaches and hemaplegic migraine, leaving me vertually paralysed down left side, slurred speach and photosensitive.

    Sometimes their is no trigger as in my case.  But I will tell you what works for me to deal with pain and control symptoms as mentioned above.

    to stop the severe pain, I use Imigran injections, like an epipen, to prevent cluster headaches I take pregabalin and verapamil and for the hemaplegic migraine I take flunarizine. These all work pretty well for me.

    So I am here for support and to listen to you any time Gina.

    Good luck and take care

    • gl19
      gl19 StevenRose

      Posted

      Do the preventative medicines work when you have the headaches or 
    • gl19
      gl19

      Posted

      Only when you don't have headaches at the time?  Also i forgot to mention has anyone else experienced severe memory loss? Like forgetting a whole day or time passing even just remembering simply your name or birthday. I know migraines can cause some memory loss because of the whole your brain is in constant pain so yeah it can mess with your mind a bit. However, im more worried that because of having the migraine for so long that my memory will be permanently damaged. What I'm trying to say is just how you get virtually paralyzed down your left side, slurred speech, and photosensitive does it only last when you have the migraine or does it stay with you even without the migraine?
    • StevenRose
      StevenRose gl19

      Posted

      Hi Gina,

      The preventative meds wont take away the pain if I have a migraine, they only help to reduce frequency and intencity. I have the imigran injections to deal with an attack.

      Yes, once the hemaplegic migraine is over I get back to normal again and I can move about ok.  All symptoms disapear as quickly as they came.  But since taking flunarizine they are last a lot shorter than before I started the medicine.

      I havent heard of anybody having prolonged memory loss after the attack has gone.

      Update me Gina on how you are.

      Good luck and take care

       

  • gl19
    gl19

    Posted

    Update:

    It seems the migraines are getting a bit better day by day. At least now I can be on the computer again, but only for 30 minutes. I'm seeing an acupunterist too and been doing yoga. It also seems that after cutting out walnuts and wheat bread my migraines got a bit better. Thank you everyone for the helpful advice!

    • StevenRose
      StevenRose gl19

      Posted

      Hi Gina,

      Good to hear that you are feeling better now!

      I am interested to hear how you get on with the accupunture and yoga, to see if that helps.  The walnuts and wheat removal from your diet is also interesting as I have these foods.  So I might try to do without them and see if it makes any difference.

      I wanted to ask about the medicine you are taking at the moment, remind me what they are please.

      This word "Ayudame" seems its Spanish for help me right?

      Well this is the forum to listen to you and I am interested in what is working for you.

    • Tazchurch
      Tazchurch StevenRose

      Posted

      I personally cannot have even the smallest amount of walnuts, they give me mega migraines that last and last which is why I mentioned them.
    • StevenRose
      StevenRose Tazchurch

      Posted

      I am gradually getting used to my regular medicine and have just increased the dose of one of them, to keep the headaches at bay.  But will try cutting out the walnuts as you suggest and see if they help. Thanks
  • patricia_82161
    patricia_82161 gl19

    Posted

    Migraine is a threshold condition which means there is a toleration level each person has and once that threshold is reached - whammo! For example, I have learned that I get migraines around my cycle, so there is a hormonal component. Also when stress levels are higher than normal. So then say I have a glass of red wine - whammo! Another times, I can have a glass and no problem. My specialists recommend an elimination diet for 3 months to identify which triggers are a problem. Since you are young and a woman you may also have hormonal imbalance. I'd start with the diet triggers and go from there. Also be sure to eat enough protein as it is the building block of important hormones.  It's okay to vent and rant. There is not much understanding about this debilitating condition and we are all here to support each other. Take care, Patricia
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