Migraine or Menieres?
Posted , 7 users are following.
I had a severe episode of vertigo about a month ago. I was standing at my computer when I started sweating, then vertigo for hours! I vomitted a few times, then eventually went to bed. Since then, I have intermittent ear ringing, ear fullness, facial numbness, migraines, neck pain, and a constant dizziness/rocking sensation.
In 2008, I had a very similar attack. I went to the ER and all my tests came back normal. I was told it was anxiety. It lasted for months! I was uninsured at the time, so I never went back. Since then, I have always had dizziness and numbness that comes and goes.
My PCP thinks it's Meneires. I just did my MRI today, and nothing is showing in my brain, sinuses, or ears. I've always had migraines, but never with vertigo. Does this sound like either? What tests would rule out one or the other? My doctor is referring me to an ENT.
0 likes, 44 replies
charlotte57794 lea6643
Posted
To me this sounds like menieres but i am no doctor,
Any history in your family? how old are you?
The ENT will probubly send you for a hesring test, he'll check up your nose with a camara and do a couple of balance tests. Thats what mine did
lea6643 charlotte57794
Posted
No known history, but I do not know my mothers side since she was adopted.
I'm a 35 year old female!
melody08508 lea6643
Posted
My understanding of menieres is intially when it first begins u have constant attacks of vertigo that ease off as the years go by and then u r left with hearing loss. If ur last attack was 2008 then I'm not sure if it's menieres. It could be MAV but it could also be LABS as Iv heard people say the same symptoms as u and they were dx with labs. Most people I talk to have atleast two attacks of vertigo in a year with menieres but I guess it can be different for different people.
lea6643 melody08508
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melody08508 lea6643
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Labyrinthitis. I have suspected Vestibular neuritis and lots of forums I read say u can't have tinnitus with it but then some doctors and specialists say u can lol. Mines 24/7 tho.
tneesha melody08508
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I have vestibular neuritis with ringing in the ear. Abt 16 years ago I had Labyrinthitis that left me with permanent tinnitus. I had gotten use to it but since this onset of VN the ringing has intensified. Tomorrow will make my 10th week of dealing with this. Some things have gotten better but I'm still suffering. Im hoping soon it'll all be a distant memory.
melody08508 tneesha
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:-( I'm on week 9 with tinnitus now. So annoying! How long did it take u to get over labs?
tneesha melody08508
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I originally got Labyrinthitis in 1999 after getting a flu shot. I was 24. It was by far the scariest thing I had experienced in my life. If I remember correctly I had constant vertigo for 3 weeks straight, 24 hours a day. I lost 15 pounds! When I stopped the constant vertigo I was left with hazy vision, constant ringing in the ear and off balance. All together it took me over 7 weeks to recover. However, the ringing never went away. Over time I adjusted to it. But for the first 6 months I nearly lost my mind. This time around I have a constant rocking/swaying feeling, visual disturbances and of course the ringing is louder than ever. 10weeks now. I'm waiting for the day I wake up and I'm symptom free. I'll be thrilled. I just finished vestibular rehabilitation therapy this past Wednesday. I will continue to do the exercises at home for another 4 weeks. Are you having any balance or visual issues or do you have only ringing in the ear? As if the ringing alone isn't bad enough.
lea6643 tneesha
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melody08508 tneesha
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That would have been frightning! I'm 28 and mine started 4.5 months ago. Woke up one night to vertigo. Think it lasted 3 days. I had balance issues and felt dizzy for ages. The ringing started 9 weeks after the vertigo so not sure why that happened! I'm doing a lot better. Still don't feel 100%. Sometimes I have great days and then not so good days. I'm hoping the ringing will go away one day
tneesha lea6643
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tneesha melody08508
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How long did it take for your balance/dizzy issues to get better? I feel like my balance is much better since doing therapy. Some days I have hope that I'm getting back to myself and some days I just feel awful. I have noticed some changes. I no longer have the ear fullness. I don't feel quite as hazy or have such a heavy feeling in my head. More of a pressure feeling now and he rocking and the rocking is felt more when laying down. Sometimes when I'm walking or standing I don't feel it at all. Unless it's a bad day then I do. Being patient and remaining positive is very important.
lea6643 tneesha
Posted
I've had these symptoms for over a month. Since 2008, I've felt like I've been on a boat, but it comes and goes. I've had two or three episodes of vertigo that I woke up to. During those times, I've been able to go back to sleep for a while and it goes away. This episode of vertigo was not so gentle. It went on for at least four hours. Been dizzy ever since.
lea6643 tneesha
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melody08508 tneesha
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I think it was around the 3 month mark when I started feeling a lot better. Still have moments but they aren't as bad.
tneesha melody08508
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I've heard a few people say around 12 weeks in they started to feel better. I'm hoping that's the case for me as I am seeing some improvements. It's so reassuring to communicate with others that are going through similar situations. For so long I felt like nobody could ever relate. It's lonely.
Waffalobill tneesha
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tneesha Waffalobill
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Do you have vestibular neuritis or menieres? From your post it sounds like you experience these symptoms regularly. This is my 3rd bout in 16 years. Throughout the years I'd get sudden waves of dizziness or times when I didn't feel too good but it would pass. I could handle it. Feeling like I've been on a boat for 10 weeks is so unpleasant. I could probable handle it better if my vision was better. It's improving but slowly. I'm not sure I'll ever go on another boat after this experience.
Waffalobill tneesha
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Was told it was benign positional vertigo. But I am not sure I was diagnosed properly. I am going for testing again in the morning. Have a VNG at 10 am . Did the water part before. This time they are doing the light thing to. Had bad spells before. This time they keep coming. Is almost every day I get a little spin. Sound sensitive,light. Riding in the car is a nightmare. Been about ten years for me. This bout don't seem to want to leave me alone. Afraid it's gearing up for a real bad vertigo experience . Had one last 3 days one time. Hope it's not one of those.
tneesha Waffalobill
Posted
Wow. Your symptoms don't sound like BPPV. Sounds more like vestibular neuritis. Your test tomorrow should give you more insight. I did the VNG and have 33% unilateral weakness in the left ear. Riding in the car for me has been very difficult as well. My brain and eyes aren't working at the same pace. I drove today for the first time in nearly two months. I had to concentrate. I haven't had a severe vertigo attack since the beginning of July but it's in the back of my mind when I get into a car. Mind over matter right? This is what I keep telling myself. I also have severe light sensitivity. Neurologist thinks I suffer silent migraines as well, hence the light sensitivity. I'm not so sure because it's constant since my initial bout of Labyrinthitis in 1999. Who knows. I certainly hope you feel better and get some relief.
Waffalobill tneesha
Posted
To me the worst part is the terror between bouts. When's the next one gonna hit? How bad will it be? Where will I be? Can't get to work. Now more med bills. The stress makes everything worse. Lol . Spent a 2 days in hospital for surgery in June. Week later back in for another week with bad infection. Just got back to work and this jumped me.
tneesha Waffalobill
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melody08508 tneesha
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I agree it's a very isolating condition. But the net is also filled of stories about people who never get better. So just be careful how much u read :-)
Waffalobill tneesha
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