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Migraine update

Posted , 5 users are following.

liz06040
liz06040

For those of you who have followed my recent blogs on this forum, I have had to stop the new medication Topiramate.  I tried to contact my gp but he want available until Monday and the symptpms were so severe I really thought I was going to die.  I feel terrible today but have managed to get through so far.  I am pretty sure if I had continued with the medication I would have ended up in hospital.  I am lucky my family are around me to keep an eye on me and help.

0 likes, 11 replies

11 Replies

  • veemae80819
    veemae80819 liz06040

    Posted

    So sorry to hear this Liz.

    Hope you have a better outcome after Monday.  In the meantime, keep strong.

  • Nanadotty
    Nanadotty liz06040

    Posted

    Over the years I've tried a lot of different tablets but this was the one that I thought was going to finish me off. The tingling fingers and toes the numb tongue and the twictch img eye were frightening. I gave it three weeks but it just didn't work. I now take atenolol, it's a beta blocker and it seems to be working. I hope you to find something to give you releif.

     

    • liz06040
      liz06040 Nanadotty

      Posted

      Cheers Nanadotty

      I hadn't realised the world of migraine sufferers was so vast and varied but at least I no longer feel a freak on my own. Best wishes xx

  • ian2201
    ian2201 liz06040

    Posted

    Hey Liz

    I also had Topiramate and had to stop using it because i was having a weird side effect where everytime i was about to fall to sleep i got a feeling of a elevtric shock that went from my head down to my toes

    the doctor has given me amitriptyline, Topiramate, pizotifen and all did nothing for my daily migraines so my GP has referred me back yet again to the nurologist and it is annoying cause they say 'people get better with these meds' and they look at me like i am crazy because none of these meds have worked

    my advice is just keep going back to your GP and refuse to leave until they do something about it, because from my expereince when these migraines hit they can be real bad to the point i throw up or cant move or eat, just keep going bac to the GP and when you do tell them its getting real bad

    • liz06040
      liz06040 ian2201

      Posted

      Thanks Ian, I am still reeling from these side effects but I have retired friends who were consultants and they have seen what the meds are doing and will back me up to my gp so hopefully he will refer me back to the neurologist. Cheers for the comments
    • ian2201
      ian2201 liz06040

      Posted

      There was another form of meds they gave me but i can't remember the name it also started with P and it was worse than Topiramate after 2 days of taking it i could hardly breathe and the doctor told me after 2 weeks of taking it that it was a side effect after saying there was no side effects to it, its too the point now that nothing works and they are looking at me like i am either lying about my daily migraines or something because people do get better with at least 1 of the meds and they don't understand that none work on some people
    • liz06040
      liz06040 ian2201

      Posted

      Hi Ian, I am beginning to understand this also. I felt so ill with Topimirate that I thought I would die or be sectioned with a psychosis. I am seeing a gp friend in a couple if weeks time and hope to get some help there but it seems a lot of treatment is trial and error for chronic migraine sufferers. I will keep in touch.
  • kate89317
    kate89317 liz06040

    Posted

    Hi I'm 19 years old and have suffered with a constant migraine for nearly 3 months now it's affecting my life so much. I've had a Mri and thankfully came back clear but now it's like I have no reason for this migraine to be there sometimes it's bad were I am sick dizzy go to pass out and sometimes the pain I can sort of deal with it. My neurologist put me on propanolol for 6 months even tho the effect doesn't work until 6 weeks after taking it and I'm trying all the current triptan tablets which have no effect what so ever is there any advice on what I could do to help rid of this migraine? it's controlling to much of my life and I want it back lol
    • liz06040
      liz06040 kate89317

      Posted

      I don't think it matters how it starts or what causes it and because we are all made up differently the treatment that works best is different for each of us. I have found Gabapentin to be best though I had a constant 'jangling'. Tell them what isn't working. Hopefully when you find something that does help the symptoms will settle down. Best wishes
  • liz06040
    liz06040

    Posted

    To everyone who is following my blogs on this forum.  An update.  I stopped the Topiramate about 10 days ago at which time I increased my Gabapentin back up to the original dose of 900mg tds.  Today I finally feel almost normal.  However, the next step is to reduce the Gabpentin more gradually and restart the Topiramate.   I am feeling quite anxious about this. I am planning to discuss the intrioduction of Magnesium Glycinate before I start this drug again.  Anyone out there who has tried Topiramate who could give me some advice?
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