Migraine vertigo ruining my life and don’t know what to do

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From 3 years old I started having "dizzy turn" where I would feel dizzy and vomit which would happen about 3 days per week. Doctors didn’t take me serious and said it was a virus, then it was my age, then anxiety and throughout my teenage years just palmed me off with beta blocker tablets without knowing what was wrong with me. I finally got diagnosed with migraine associated vertigo when I was 19. I am now 22 and still nothing has been done about it. I am on 100mg topiramate per day and stemetil. I have a “dizzy attack” around once per week but when it happens I am bed bound for about 3 days. On bad weeks it can last a whole week. When this happens, I feel so dizzy I physically cannot lift my head up so if it happens when I’m outside I have to sit on the ground with my head down and I’m unable to see whose around me. I vomit until my stomach aches, I have slurred speech and unable to say more than 2/3 words and I’m unable to walk by myself and basically need someone to carry me into my bed. It’s the worst experience I’ve ever had in my life - and because I’ve had this since I was 3 years old it’s affected my life in every way possible. I don’t even know what to do anymore, I’ve been to the doctors more times than I can imagine but all they do is change my medication and I’ve been on so so many but nothing seems to make much of a difference. Is there anyone who can relate or has any advice to help? I’ll literally try anything now:( x

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  • Posted

    Hi. I'm sorry to hear about the issues being caused by your condition. As understand it, migraine associated vertigo and episodic menieres disease vertigo are very similar. Have you seen by a neurologist or menieres disease ENT specialist? It is important to rule it out. Much of what you're describing fits the symptoms of it.

    Best to you...

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  • Posted

    Hey,

    I started having dizzy blackouts at age 14, no one knew what was wrong. I would miss a week of school every month so everyone attributed it to hormones. Then at 20 the horrible migraines began. Fast forward to age 62, I have tried almost everything possible to live even half way normal life. Then about six months ago the horrible pain went away but I now had horrible stomachs, nausea and vomiting. Now the pain has came back, but I have an awesome migraine doctor who said lets try the new drug Aomving . It is a once a month shot, we also added Rizatripan 10mg, 2 Advil, and a 8mg Zophran.

    My headache days have been cut in half!!! I can think more clearly. I am still experiencing nauesea almost daily but at least its not always followed by days and days of horrible headaches! Praying you find some relief!

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  • Posted

    I had attacks like this and have an auto immune disorder. Years after treatment I am free of it. If you have anything else going on health wise it's an area to explore. Esp if you have things like tummy or bowel issues as well or a lot of fatigue. It took me until I was almost 40 to be diagnosed and the migraine syndrome was ruining my life. I had the most horrific pain, pain in my neck and visual disturbances. It took seeing the right sort of doctor to get a proper diagnosis.

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  • Posted

    Hi Kimberley, I have Betahstine for migraine related vertigo, It says on the patient leaflet that it works by improving blood flow in the inner ear, which reduces the build up of pressure. it also says that its the pressure building up in the ear that can cause dizziness/vertigo. Definitely worth getting your ears checked, do you suffer with tinnitus?

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