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Hi all, I am hoping some of you might be able to give me some advice as I am pretty much at my wits end at the moment! I apologise for the wall of text.
I've suffered with migraines since I was about 12, but only got them once a year or so. I'm now 29 and they are completely out of control. It started getting worse around 4-5 years ago, with the last 2 years being pretty crappy.
I always get the aura before the migraine, I never have one without it. I literally have no idea what my triggers could be - I am fairly certain it isn't food or drink, so I have narrowed it down to menstrual migraines and stress/emotional/physical exertion.
I was on 10mg Amitriptyline and the mini pill (to control hormones) for about a year, and the frequency did decrease but the intensity didn't and it made me feel like a grumpy old woman so the doctor put me on 80mg of Propranolol.
I had a few side effects at first (nausea/dizziness) so was only taking 40mg a day, but then increased it to 80mg but since the change to Propranolol my migraines have been completely out of control!
I went back to my doctor who just suggested that I am on such a low dose that it isn't working and I am now on 160mg a day. I went back the next day unhappy as I had another migraine that night and I felt like the aura wasn't going away as I couldn't see properly and felt the Propranolol was making me feel worse/having a severe side effect but was pretty much told 'what do you want me to do?' (I was genuinely worried and not expecting the dose increase to work overnight)
My doctor will only refer me to a neurologist if my symptoms continue on this dose as well as after stopping the mini pill (so at least 2 months) Then I expect I will have to wait a long time for an appointment too.
I have been on some form of preventative medication for so long that I don't know how many attacks I would get without them, but they would always seem to be around the time I ovulate and I would get about 4-5 migraines.
On amitriptyline and the pill I actually only had an attack every 6-7 weeks. I have been on Propranolol since October last year and I have a migraine every 2-3 days, then a week without and then the last 2 weeks almost every day. They're really erratic, I feel like I could get one at any time.
Sometimes the pain is unbearable, but even when I can cope with it, the aura completely knocks me out and I can't do anything, so as you can imagine I have had a lot of time off work lately and it is not helping me at all because I am really stressed out about it.
If I try to man up and think, 't's just a headache I can do this!' I will get another aura and it makes the pain worse, like 2 migraines in one so I really do have to relax and get better, I can't just deal with it. Sometimes I cannot leave the bathroom as I will constantly be sick, I get quite bad vertigo with them occaisionally.
I try to think about triggers all the time (although the anxiety could be making it worse) so that I know I'm drinking enough water, giving myself a screen break, making sure I'm eating healthy, not too much coffee, take magnesium, get plenty of sleep, etc etc.
I think I'm trying all I can, but there must be some other things I can do? Does anyone else suffer like me? Is there anything that works really well for you? I am willing to try anything! I am thinking about getting a daith piercing tomorrow as I have heard it helps!
I have read a few posts on here and a lot of you have them so much worse than me so thank you for taking the time to read this.
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