Migraine with aura stiff neck right side

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Hi. Iv recently been really unwell with migraines loss of right side pins and needles in my lips and right side of face sickness so I sleep it off all day but when I wake after a migraine it seems like it's taking me weeks to recover I can't think straight face goes numb sometimes I'm so scared of having them I'm 33 under active thyroid for 18 yrs does anyone else feel so ill after a migraine iv been in hospital had ct scan to check for stroke twice but results normal bloods normal I just want them to go away can any one else advise anything please feel so low and scared :-(

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12 Replies

  • Posted

    Sorry to hear of your suffering. I know it well. Please check into Hemiplegic Migraine. This mimics a stroke and has motor problem with it. Dr's can help manage it but no cure. Often runs in families. And takes so long to feel back like yourself. I am on day 16 of an episode. Hate it.

    Hang in there.

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    • Posted

      Wow 16 days that's a long time u must feel so ill iv always had migraines but only ever had one probably once a yr now I'm getting alot iv had a migraine around 2 weeks ago so went to bed all day the next day I woke feeling terrible I still feel like I can't think straight my doctors aren't listening to me at all iv not seen a neurologist or anything which I was hoping for really it's just really frightening I have an autistic son to look after 24 hrs a day so it's really difficult to cope with these migraines thank you for your reply
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  • Posted

    Hi Rachel

    Sorry to hear that you are suffering with all that, I am also going through similar things. I've had migraines for 11 years but they have become chronic since Christmas. I used to get migraine with aura and headache then they would pass. Now I get pins and needles on left hand and numbness in left hand and face. Blind spots aura dizziness and unable to speak while I have my aura then when my speech returns I stutter that can last 24 hours. I'm now physically sick and need to go to bed. I've had bloods which show inflammation only. MRI scanner last week so waiting for results. I've tried lots of preventative Meds unsuccessfully including propranolol pizotifen topiramate and amitriptyline. I saw a neurologist a few weeks ago who has prescribed pregabalin which I start today. I've handed my notice in and I'm feeling really ill between attacks which at the moment are between 20-26 per month. I'm exhausted. I absolutely feel your pain and please don't stop seeing your GP. I don't know what causes them but I so wish they would go back to one or two and month! Best of luck and hope you find some relief xx

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    • Posted

      Hi and thanks for your reply. I have been prescribed amitriptyline but don't really want to take it as I have an autistic son so I don't want end up addicted to an antidepressant because I have to care for him 24 hrs a day I have to attend so many appointments for him so I'm finding it very difficult to cope I just want to shut my self away not speak to anyone it's making me feel like I can't think I'm emotional I have noticed I get twitches in my eye or lip before a migraine do you get any signs your going to have a migraine

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  • Posted

    Uggggg.... I am feeling so helpless because it gets to a point when GP and Nero docs don't really have an anwser I start questioning myself...am I crazy, am I making it up, it's just depression....well ya I'm depressed I can't work, I'm miserable, scared, broke, angry...and I forget what else...I was on so many meds I got to thinking that was it, but I wasn't talking anything at all when it started. It does help to hear others going through same thing...I am so sorry to everyone...I pray for relief soon for all....<3
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    • Posted

      I feel so depressed at the moment I am anxious all the time incase I get a migraine for about 10 days iv had the feeling my right arm feels weak an day hand keeps going numb tingling lip numb face right side I feel like since my last migraine 2 weeks ago Im still having all the symptoms still but without the lights in my eyes I just Hope they go away I'm really scared when I have one
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  • Posted

    Hi Rachel,

    I know you have been having a pretty rough time lately to say the least, I can sympathise with you and understand how you feel as its exactly what I get Hemiplegic Migraine, and yes it is scary for sure and you really do have to go to hospital each time because you dont know if you really are having a stroke.

    You dont mention seeing a neurologist yet, this is really important so they can do a more in depth MRI scan to check things out properly.

    If you are able to get refered to London you can see the countrys headache specialist, who will understand how you feel, wont talk or look down to you and provide a proper plan of treatment.

    They give me Botox now which has made a huge difference to me.

    Good luck Rachel, always here for support and understanding, let us know how you get on and ask me anything you like about HM

    Take care

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    • Posted

      Hi iv been in hospital a few times now due to my migraines having a ct scan every time I get a migraine it's so scary when I can't think and I can't speak feel confused numb face and mouth I am thinking of botox so I'm happy you've mentioned it has helped you with your migraines I think this will be my next step I'm also thinking of a daith piercing in my ear as this is supposed to be a good cure I will try anything to get rid of these migraines they are awful thank you so much for your reply
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    • Posted

      You are very welcome Rachel.  Watch the CT scan though, unless they are sure you having a stroke its better not to a CT as this is way too many in a year.  MRI is safe so ask for one of those if you can, else you will end up with more problems,

      Yes, I can vouch for the Botox they have helped me so much.  I dont know about this piercing thingy though, sounds more scary than a migraine lol.

      Good luck with everything Rachel and remember here for you

      Best wishes

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    • Posted

      Thank you so much and I won't be going to the hospital again when I get a migraine now I no its definetly a migraine I will just sleep it off I think I'm going to go for the botox thank you again
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  • Posted

    Ok so are you on a anticonvulsant for your headaches or amitriptyline? Longterm use cause tingling.

    Suggestion - endocrinologist for parathyroid function test. Get your b12, magnesium, phosphorus, potassium and calcium levels checked.

    Side note; I changed to armour thyroid a year ago. Its a bit controversial-ish because its 'natural' im not a pro natural sort of person. I just was sick of feeling the aches and heaviness being on t4 synthetic. I needed to change on that front.

    Maybe an mri might be useful to rule out lesions? Like MS - cant be diagnosed via ct.

    If you haven't had one. CT isn't something you want to be doing a lot of. High radiation dose and its not overly sensitive. Good for stroke, aneurysm and some tumour detection but other than that...

    Hope this helps.

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