Migraines everyday, all day, for 9 months. Help!!
Posted , 296 users are following.
Remember your worst migraine. How much pain you were in and how you just couldn't do anything. That's how I am everyday.
Right so I'm a 20 year old female, I'm and student and work as a waitress part time.
So, I started with a headache on the 18th January this year, pain killers didn't touch it. Woke up the next day and still had a terrible headache.
I have a terrible headache all day, everyday, without fail. It's got to the point now that I'm stressed; fed up, hardly sleeping, can't concentrate at uni or any time really.
Please understand that the pain never goes, the headache never ends. I have literally had a migraine 24/7 for 9 months now.
I wear glasses (short sighted) but I know it's not my eyes causing the migraines.
I've cut out everything that's apparently supposed to aggravate headaches. Stop drinking caffeine, stop eating chocolate and cheese. No change in the headaches.
This continued for a week or two before I went to see my GP who referred me to a neurologist.
The first neurologist thought I had tension headaches caused by stress.
At this point, I wasn't stressed at all, not with uni or work, nothing. So I didn't quite understand this diagnosis.
Anyway he put me onto tablets called amitriptyline, which is an antidepressant, and told me to gradually increase my dosage up to 50mg a day. This didn't help at all, had horrible side affects.
I then saw another neurologist who diagnosed me with migraines, put me into Topamax, which are an anti epileptic drug meant to also treat migraines. I got my dose up to 100mg within 3 months and the side affects were horrible and didn't help at all.
I've had a CT scan, which was normal. Had an MRI scan, which was normal. I've also tried Imigran and some migraine medication that melts into your tongue, with no affect what so ever.
After trying all this, an idea was put forward that I could have raised intracranial hypertension, so yesterday I had a Lumbar Puncture. The pressure was at 19 and a half (apparently if its over 20 it's high), so it's not thought its that. The migraines were worse for a week after the lumbar puncture, I couldn't even sit up without being in agony and being sick. Spent a week in bed unable to move.
I've got another type of MRI scan booked for the end of this month that's apparently going to look at the veins/blood vessels in my head to see if there is a problem there.
I feel like I'm not being taken seriously now by doctors, because "there isn't anything to be worried about, like a tumour" as I'm always told! As much as I'm so very glad I don't have anything serious to be worried about, I hate spending everyday in so much pain that I can't function.
Please don't think I'm over reacting/attention seeking/whatever, but I am literally fed up and can't cope. I can't get a minute of relief, I'm constantly in pain (different variations of pain, but pain all the same). As I'm writing this I'm crying my eyes out because I haven't managed to sleep more than 3 hours a night in that past 4 days. I'm exhausted and depressed now. I've even told my GP that I am so depressed now, I have thought on more than one occasion of overdosing just to end this pain. And he literally turned me away saying he couldn't do anything. I feel so defeated.
If anyone has had this type of problem before or knows someone that has, please let me know.
24 likes, 741 replies
pipperstrel Becky-Louise
Posted
I am new to the forum and have just read your distressing story. I too am a migraineur. They started when I was eleven and now at 59 they seem to be getting worse not better.
I haven't read the whole thread so I don't know if anyone has mentioned this. I have recently given up all products containing aspartame, the manufactured sweetener. Having read about it on the web it seems we are all poisioning ourselves. Not sure if it's helped yet as its early days. Just thought it would be worth trying. Good luck.
penny14384 Becky-Louise
Posted
i have not seen anything yet on this thread for natural teas for migraines. I found on the Internet (teas for migraines) a sight with about 3 or 4 different teas you can use. I'm going to try them and will keep you posted.
StevenRose penny14384
Posted
have you had any good results on the natural teas for migraines yet?
Lularura2 Becky-Louise
Posted
I am 35 yearsold. Just diangnosed with migraine 2 years ago. Now it has been 1 month i am suffering from having migraine everyday. I am having tbe same problem. Going to the GP and nothing helps. No migraine tablets can help. I was taking axert12.5 mg it was ok in the bigenning now it doesn't work. This is 2 days trying the one that melts on tongue. It doesn't work eaither. Neurologists appointment withing10 days. Can't sleep at night very interrupted aleep. Any advice? I ve never caffeine drinker nor choclate eater. Avoiding all the triggers still doesn't work. Can't watch TV or using laptop or phone from the headache. I amtired and stressed from that.
Lularura2 Becky-Louise
Posted
I am 35 yearsold. Just diangnosed with migraine 2 years ago. Now it has been 1 month i am suffering from having migraine everyday. I am having tbe same problem. Going to the GP and nothing helps. No migraine tablets can help. I was taking axert12.5 mg it was ok in the bigenning now it doesn't work. This is 2 days trying the one that melts on tongue. It doesn't work eaither. Neurologists appointment withing10 days. Can't sleep at night very interrupted aleep. Any advice? I ve never caffeine drinker nor choclate eater. Avoiding all the triggers still doesn't work. Can't watch TV or using laptop or phone from the headache. I amtired and stressed from that. Any goid kindof decaf tea that can help. I tried camomile and mint tea but didn't work
StevenRose Lularura2
Posted
I would suggest you try sumatriptan injections, the dr will prescribe them, they work the best for me, in about 10 minutes,
Good luck and let us know how you get on.
Take care
Lularura2 StevenRose
Posted
Thank you for the reply. I will try to do so. Will update you qith the result.
janariver Becky-Louise
Posted
I'm 19 and have suffered from migraines since I was 13. The migraines I used to get as a kid were full on starting with the entire left side of my body going completely numb then my vision either blacked out or whited out then would come the pain behind my eyes and temples head in general and vomiting. I went to many different specialists as a kid they all told me severe focal migraines, my father took me to this Austrian lady who did physio and all sorts with my head and neck super painful I remember crying nearly every visit well she told my dad to make me sleep with mouth guard because I maybe grinding,I went to many sessions of acupuncture. After I turned maybe 15-16 my migraines stopped randomly. Didn't have one until about 2 months ago but these migraines to me are not nearly as painful as my childhood head aches these head ache are mainly behind my eyes I am definitely photo sensitive and I don't like loud noises or music. I have been to 7 different doctors over the last couple months who all said migraines stress anxiety blahblahblah I have 3 different migraine specific pills I was pit on drip I had voltaren shots twice , had acupuncture, seen a naturopath who said I am chemical in tolerant due to bring born ceserian so I stopped eating any thing processed basically all I eat now is salad from my own garden nutribullet shakes and couscous and free range chicken. Completely changed my diet to no avail. Went to hospital got scan nothing showed up, had a glaucoma test nothing. Saw optometrist apparently my eyes are great. Now I am taking daily magnesium pills, liver tonic, acai berries (super fruit) rizamelt,voltaren d50,morphine,fluoxitine for anxiety nothing helps.
Every test has come back fine
Every pill has had no effect
The only thing I can honestly say that helped was marijuana it is the only thing that actually takes the pain away. Its temporary but the relief of no pain even briefly is amazing.
So yeah all you long time sufferers I know you'll all be as desperate as I am. No harm in trying!?!
Thanks for reading
First timer Jana
Good luck 🍀
StevenRose janariver
Posted
What a horrendous time you have had over the years!
Puts my experience into perspective!
So a few things I have learned is that anything morphine related will make symptoms worse.
Please talk to your neurologist about Flunarizine, it hasnt solved all my problems but its certainly helped.
Good luck and let us know how you are getting on.
MigraineAllTheT janariver
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MigraineAllTheT Becky-Louise
Posted
h13013 Becky-Louise
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MigraineAllTheT h13013
Posted
jason61983 Becky-Louise
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MigraineAllTheT jason61983
Posted
jason61983 MigraineAllTheT
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jason61983
Posted
The frustrating thing is even after seeing a private specialist and getting a diagnosis you still have to wait on the NHS waiting list for treatment or therapy which is usually 9 months or more. It takes months or years to see a specialist here in UK on the NHS and after you get a diagnosis from them you then have to wait the same time again to get treatment.
That is my experience anyway with vestibular Neuritis and Sleep Apnoea. When you turn up at the doctors each month saying your symptoms are getting worse and you have extra symptoms the just say you are on the waiting list to see someone and they are very reluctant to to refer you to someone else even if you believe you are waiting to see the wrong specialist. I am sure after 30 years you have experienced this many times. I have paid privately to see an ENT Specialist twice and paid for a full sleep study but I still have to wait to be retested by NHS before they consider treating me. When I looked at getting health insurance a while back the insurance company told me that will health insurance you will get seen quickly and after diagnosis you will get seen quicker for treatment on the NHS. This is far from true in my experience.
Glad I did not get the health insurance now.