Migraines everyday, all day, for 9 months. Help!!

Hello, Becky. I also have been have this excat same problem. I am 19 years old, a Sophomore in college and Pharmacy Technician part time. I have had two MRI's, a CT and a brain wave test. Everything is normal. The neurologist has put me on the highest dosage of Trokendi (which is 100mg) it doesn't even help at all, she also put me on a antidepressant and it doesn't help either and the side effects were horrid, so I stopped taking it within the first few weeks. I've gotten to where I can't even function and think straight when I am doing homework for school or doing counting back cash to a customer. I am in pain 24/7 and no one believes me. Everyone looks at me crazy when I tell them I've had a migraine for 5 months straight now. I also feel defeated. I don't know what to do. I am too young to be in this much pain all the time.

I don't think you are over reacting at all Becky. Everything you are explaining I am going through also. I have been through all kinds of tests with no diagnosis except migraines. Am taking the generic for topamax and it's not working. Have constant migraines. Pressure at my temples and across to my eyes. Also goes around to the back of my head. This is constant every day. I cry just about every day and feel like no one understands. I can't work. Can't enjoy life. It's miserable. Hope things are better for you.

Pamela Dhon

Hi,Becky : I can relate ! Did you ever get the headache problem resolved ? My headache is now 8 months, not exactly like yours, but the constant pain is dragging me down.Same tests, similar drugs, no relief.

Question : What happens if you fly in a commercial aircraft at high altitude ? My headache goes away completely at high altitude ( Less air pressure on skull ). I've told this to 3 doctors and they they don't get it that this is a very specific clue to the problem- maybe intracranial pressure ?.....jim03290

Hi I have the same symptoms as you describbed.

Everyday when woke up the aura came. Some times its just aura without migraine. But these all lasted for 1 whole day till I sleep.

I have stiff neck and lower back pain that comes with it too wondering how it is connected to it. And this has been bothering me.

My all triggered after taking some gastric medication and I thought will go away once I stopped. Unfortunately nope.

What my migraine with aura felt like..

It is just pain. Heaviness feeling.... sometimes a bit of gizziness. sometimes pain will spread to back of head. Sometimes my nose will numb. Sometimes numb spread to hands. And I kept feeling nause the whole day. My vision is affected. Seems like.. black.. like when someone switch on the light in the light that kinda feeling?

Anyone can help too? What could be the problem. Suddenly triggered and lasted for 1 month plus.. it brough panic attack to me too. Last time I was perfectly all right....

I have had the same thing for 4 years now. Had the scans and meds you have had. Your post is basically me, have you had any luck? I know it was a year a go that you posted

Oh another thing is try Magnesium Cream and rub it on the back of your neck

I have been given amitreylne but I think I took till lots of side effects.

I trying to stop it now and it's giving lots of withdrawAl symptoms from the cold turkey. Please go google this drug! It has such bad side effects!

Another thing that caused migraine maybe be POTS. Go check it out.

I been taking advices from the net such as taking B complex, raising vitamin b2 to 160mg for now (they recommended 400mg).

Taking some multivitamins and 3g of melatonin every night before I sleep.

I also use my massager to do some neck massage frequently.

Seems to get a bit better. But will see how it goes after awhile more cause I am still having some withdrawal symptoms.

You need to find a good neurologist. I pray you get some relief soon. Have you tried acupuncture, relpax, zomig nasal spray? I too tried many things with horrible side effects! I took hot showers, sniffed rubbing alcohol and avoided all trigger foods and no artificial anything or liquor.

Becky-Louise, I too had a migraine of varying intensity for 9 months and had many of the same tests as you, with no answers.  Yes, it was hell. I was sent to hospital once because I was virtually paralysed and unable to speak. The GPs in my practice thought I was having a stroke. The hospital did a CT Scan, decided I wasn't and that it was a severe migraine. They kept me overnight but  sent me home with no advice or follow-up. Eventually, a Neurologist prescribed Pisotifen (Sandomigran) 500mcg tablets. I started on  1/2 a tablet a day and increased this by 1/2 every fortnight. It took quite a while to work but by the time I got to 4 I was having occasional days migraine-free!  I stopped at 5 tablets.

They make me quite sleepy, which would make it very difficult to study. I'm 72 and my Uni days are well in the past! If I forget them even for a day, a migraine follows. For some weeks they were unavailable and the migraine returned full time. It took weeks to get the migraines under control again.

There are some neurologists who use Botox to treat migraines unresponsive to any other treatment.  One injection lasts six months and, in Australia, is covered by Medicare.

i do hope you find some relief soon. Best wishes

Margaret

 

Hi Becky-Louise

i have very similar issues to you. I am suffering from severe head pain for five months now. Every single day non stop. I haven't worked in five months. My family lives in darkness as I am light sensitive and noise bothers me. My pain gets much worse from excursion or bending over. Have had MRI, MRA, CT scan with contrast, EEG, eye tests, seen a EarNoseThroat specialist for TMJ was hospitalized for a week. Tried many different migraine meds like the tryptophans. Just reducing topamax to try another. Took 60 mg of prednisone reduced to 5 mg now. Going for a Arterial biopsy to test for Temporal Ateritis or "Giant Cell Arteritis". I say head pain because I am not convinced it's a migraine. I read someone posted about looking into getting an MRI on neck. I have just pushed for that. It's not for another 2 and half months. My quality of life sucks. My job is at risk. I'm not taking in any money. It's so hard and I'm in so much pain along with dizziness, light sensitivity, nausea, sensitive to noise etc. Presents like a migraine but I've had them before and this feels different. I was at a self help retreat attached to a tether leaning at a 45 degree angle screaming my heart out to get rid of all of my negativity when I felt the worst stabbing pain going through the top of my head like a steel rod being stabbed down through my head. I experienced that intense pain 3 more times so far and my heart rate goes dangerously low experiencing bradycardia. My neurologist doesn't seem to be helping. I don't know what to do. 

So so you're no alone. Hopefully we will find answers and relief

Hi Becky! I felt like i was reading a page out of my life's story. I had my first migraine when i went into labor with my first daughter. I tease her by saying I've been having headaches since the day you were born. But, I really have! I take Amitriptyline to prevent my migraines which seems to help with those but like you, i wake up with a headache and go to bed with a headache and the pain varies in intensity but is always there. I don't know why, but lately mine have gotten increasingly worse. They increased my amitriptyline to 150 mg at bedtime which helps me sleep. They've also put me on Tramadol but I'm not convinced it's helping me. Like you, i have gotten depressed and have absolutely no energy or motivation. I feel like dealing with the pain is all i have energy for. I'm currently going to counseling because my GP thinks maybe i haven't grieved the death of my daughter fully. Which might be true, but i was having headaches before my daughter died. I've heard there are nerves in the nasal passage that can cause headaches and i think i might pursue that course of treatment. I think the only think i haven't tried yet is acupuncture and I'm really close to trying that but it's so expensive. :-(

I am crying right now because I thought I was alone in this whole "neverending" migraine situation. I have had pain 24/7 for six months now. No treatments have worked (I've used all the drugs you've mentioned), no procedure is showing anything (MRI, blood tests, optometrists, other specialists, but no lumbar test), and I'm starting to feel out of hope.

I don't mean to sound rude, I truly don't, but I can't read through all the posts. Unfortunately my head started pounding after reading through the first page. If you don't mind me kind of skipping the cue, since this is over a year old and I'm feeling hopelessly desperate, have you found anything out? I'm just looking for some sort of white light here because it has been a rollercoaster of uselessness (which I have also turned into).

I really do hope you're feeling better. At six months I'm already breaking down, I'd hate to know if it's still going as stongly well over a year later.