Migraines everyday, all day, for 9 months. Help!!

Hello,

I was reading through the discussion looking for some comfort in my brain injury and realized that this is kind of a little pain management support group. I'm sorry to hear, becky loise that you haven't found any treatment for your migraine.

I'm 15, and about a 18 months ago i got a concussion in gym class. Ever since then, I have had terrible migraines, focus issues, vision problems, dizziness, vertigo, nausea, a whole range of symptoms. I've tried amitriptyline, topomax, aderol, concerta, frova, naproxen, D.H.E, atlas orthogonal, nerve blocks, and physical therapy, all unsuccesful. Where I used to be an all A honors student, I'm now pulling Ds in gen ed classes. My own father tells me that I'm using my injury as an excuse to slack on school work, my teachers lecture me about managing my time better, and my doctors tell me its because I'm not getting enough sleep. In the past year my depression has gone from feeling a little down to thinking about how many pills it takes to stop my heart, then back again. I'm not really looking for solutions, just support. Thank you for reading

Hi Olivia,

I can't relate to the brain injury, but I can relate to slipping in coursework and the depression. I've sat in front of my doctors plenty of times, crying my eyes out because I've got so fed up, I've thought about taking an OD.

But honestly, no matter how bad the pain is, is isn't worth throwing your (life away, no matter how little a life it is. Don't listen to anyone about you not working hard enough, or using it as an excuse. No one knows how bad that pain/confusion/symptoms are, apart from you. And trust me, if they could take a walk in your shoes, then they would never say it again.

I'm so sorry to hear your story though. If I had started with these migraines at 15, I don't know where I'd be now, or how I would cope.

I hope you do find a solution, or at the least find a way to cope

Here to talk to though!

Hello becky, i have messaged you please see it.. As i really care for you and is suffering from almost the same situation...

please see my msgs regularly and reply regularly..

if you want to see my message see on the top right of the page and there us my messages..

do reply to your well wisher.. Keep smiling..

I know exactly how you feel. I had the same thing in August of 2001 (9 months) and about 2yrs ago, I had a Migraine for about 4 months. In 2001 they did everything including a medicine infusion. The only thing that did was cause me to miss a day of work and be really drowsy. None of the meds actually worked. I spend countless hours in the ER, hospital, and doctors office. They took so much blood from me, that my left arm, has built up scar tissue. One day it just went away. I didn't even realize it until my husband asked me how I felt. I had gotten so used to dealing with it, that I didn't even notice it was gone.

Fast forward to 2012. I was in the ER was a Migraine and a PA gave me a prescription for Fiorinal #3. I had never heard of it before but I was happy to get my " Usual cocktail" of Diluaded and Phenergan. I took one

of the pills and it worked. My Migraine was gone!! I was excited! All of the Percocet and Vicodin pills over the year didn't compare. But there is a catch to this drug; you can only take up to 6 within a 24hr period. If you take more you will get a rebound headache. That's worse than a Migraine. If u get one u have to stop taking ALL meds!!

My advice, ask your doc for the meds. Take 1. Eliminate as much light as u can for 24 hours. Take the meds 4-6 hours. Sleep if u can.

I pray this works for you. I'm doing this now because my employer decided to change the lighting and now I have a Migrane.

I've never replied to a forum but this one seems good. I'm in USA. Migraines for ten years. My grandmother had them...they ARE heridatary. Went to head ache specialist once who took scans..normal...and prescribed me Lyrica which was so strong, I took the first small dose....woke up the next day in bed with closes on...and didnt remember...I take B2 and Feverfew, Magnesium, Butterbur and fish oil with flax seed....I wanted to try Topomax aka "Dopomax" (since it makes people stupid) but not really looking forward to that. I had a dr tell me they were tension and wanted to give me blood pressure meds....didnt go that route. I KNOW if I eat too much pizza two many days in a row (aka leftovers), I will end up sick...I think lack of sleep is a trigger, as is alcohol...but so is stress! So we seem to be doomed. I am non functional and throw up when I get a migraine...I've remember what normal headaches were like and hate it when people say" Sorry you have a headache"...it's like....no.....you don't get it.....I'm sick....feel like I'm gonna throw up...etc...not a headache...Something I DO find helps at times....is pulling my chin back....horizontally toward the direction of the back of my head....I also bend my arm....put my elbow and my body flat on the wall and then turn my head....away from the wall...if I do this quite often when amigraine comes on, it might shorten the life of the thing but sometimes I just wait it out....suffering...throwing up....waiting for it to be gone....but you cant eat when you have one and you cant sleep so that just makes them all the worse. These are wrecking my life. I have a part time job and an ebay business as there is no way I could hold a full time job as I'd be fired...I feel for the initial poster of this site who has had them since such a young age and for so many days in a row....I do know that people who have had these migraines that are much older, finally have them go away but I'm not gonna wait til I'm 80 years old! We all know the triggers....what we need is some help! some REAL help!!!. I don't mean to be insensitive to all the other posts but I had to vent....to people who get it....no one does unless you are one of us....I read through the posts quickly but do you all have any hopes for Co Q10???? Any success? I'm going to try it....Thank you for letting me vent and next post won't be so "me oriented"....just needed to vent. Thank you.

Hi all

Just managed to keep it together for 3 weeks! Had to. Dad in hospital delirius with water infection and caring for Mum who is almost wheelchair bound after strokes.

Stress can bring my migraines on but anxiety can def keep them at bay! Go figure.

Not sure if the B2 etc is working but the Candesartan at v low dose 2 mg is helping with my bp spikes which I know are triggers for me so don't rule out all the bp meds. I couldn't tolerate the beta blocker types but verapamil worked to some extent but candesartan has less side effects for me.

Still hoping for a cure but meantime cranio sacral therapy gives me most relief!

Good luck all

Hxx

Update; I'm not feeling very pleased with myself. Six weeks have passed since stopping cocodamol and I'm still getting a lot of migraine headaches. I've also got a very bad cough which doesn't hurt. Looks like I'll now have to go cold turkey on triptans as well. Not sure if I can face it. Hope the pain clinic is helping you Becky:-\

I mean help not hurt!

Hi Becky,

As I was browsing the internet for a syptom unrelated to migraines I came across this discussion. I am sorry you have yet to find a way to relieve your migraines. I suffered from migraines for about 14 years (I still get them occassionally) but used to get them about 5-8 times a month. I tried almost every medication that you mentioned and either nothing helped or I had bad side effects. Honestly speaking, the only thing that has helped me was going vegan. The first 3 months after eating nothing but vegan foods I felt wonderful. I had no migraines, anxiety went away, dizziness, etc. Everyone is different so maybe you can give this a try. Alot of the food we eat contain ingredients that trigger migraines like MSG and tons of others. My weakness are chocolate, cheese (except mozarella), soy sauce, foods that contain sodium nitrate such as bacon, lunchmeat, etc. Now I just get migraines at the start of my menstrual cycle here and there but they are not as bad as they use to be. I hope this information helps you and some of you that are also having a hard time finding answers. If you have any other questions please feel free to contact me :-) 

-Christina

Hi, Becky-Louise. So sorry to hear you are going thru all this. I know what it is like as I am going thru the same thing. It's a pain being a guinea pig isn't it? I am a spiritual person and believe in the whole body, mind, spirit concept. There is always an emotional component to our illness which manifest in physiological ways. I am working on all three areas to identify the root cause. I try not to let my headaches control my life and my focus although it is extremely difficult at times. I also prefer natural solutions after ruling out anything organic which it sounds like you pretty much have which is a big positive. One Johns Hopkins neurologist suggested a supplement called Migravent which is basically herbs and vitamin B2. I have pretty much eliminated most of my dietary triggers and now the main cause seems to be high blood pressure. I am slender, active, and have never had high blood pressure in the past. Don't know how old you are, but hormone regulation is huge in women who are under stress so am working on balancing those as well. Hope you are feeling much better. Remember, pain is fear leaving the body. There is absolutely nothing to be afraid of in life, not even death. So, press on and give thanks for all things and always, keep looking up!

I am so sorry to hear of your suffering! I've had migraines off and on for the past year, not continuious like you. I've been trying pill after pill, supplement afer supplement, chiropractor, acupuncture, dietary restrictions, etc., etc., with nothing working. All clear on the MRI. Still, they've only gotten stronger and more frequent. Until I finally got blood tests, at my own suggestion (not sure why this didn't happen before the MRI). Showed I was quite deficient in Vitamin D. I started supplementing immediately, of course, and noticed a significant change within 24 hours. An online search revealed people who said they suffered for years—decades, even—and D ended up being the solution. It's not even been a week yet, so I'm still crossing my fingers that this continues to be my solution, but so far, so good. Perhaps you've done the blood tests already, and even tried D, but wanted to mention in case you hadn't. And to possibly help anyone else here. When I scoured the internet for solutions before learning of my own deficiency, I never saw Vitamin D listed as something that might help. It seems crazy after all the pain and drugs and doctors that for me it *may* be something so incredibly basic. Best of luck to you in finding relief!