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My general doctor diagnosed me with pancreatitis based on elevated lipase and amylase levels, so I saw a specialist at Cleveland Clinic. I also found out that my aunt has the genetic form of chronic pancreatitis and higher cancer risk (she has the double risk allele for the gene PRSS1). I have never drank (can't stand the taste of alcohol, and thank God I can't!), never smoked, went on gluten free and vegetable oil and processed-food free diet for years with no real benefit. Specialist told me I need to go off the diet because I am dealing with some malnutrition and I need all the nutrients I can get (I lost over 10 pounds in just over a week, I am not 104 lbs, all due to diarrhea, nausea and pain). However, she does not think I have pancreatitis. She said it's possible I have mild chronic pancreatitis and ordered lots of testing, but she thinks instead I have fibromyalgia. As part of the testing I had an abdominal MRI that specifically looked at my pancreas and it came back completely normal-- no stones, no dilation, nothing at all. I am shocked. I don't understand. I keep having normal tests but I keep going downhill and I am scared. I had a CT scan that showed dilated kidney ducts and while looking at my pancreas on that scan, she said it looks normal and healthy, not shriveled like one with pancreatitis. So... why do I have all the pancreatic symptoms and why are my amylase and lipase levels elevated? I have further testing still, but I'm afraid that its going to keep coming back normal, as it has done for years (other than all my vitamin deficiencies and anemia) and I am going to keep going downhill with no help whatsoever. Anyone else have pancreatitis with normal MRI and normal CT results? I'm I just some kind of freak?! Thanks for any and all advice/ help!
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