Mild symptoms, deep endometriosis: surgery?

Posted , 4 users are following.

Hello everyone,

I'm writing to you to get some advice on whether I should have surgery or not for my deep/ severe endometriosis. I have a frozen pelvis and adhesions all over the place (even on my bowels).

The thing is my symptoms are mild.

I have long and painful periods, but fortunately birth control pills take care of that. On the other hand, I don't want to have children.

My doctor (an endometriosis expert and also a surgeon) thinks I should get operated on because he thinks that if I ever need urgent surgery in my pelvis (for example a cyst growing in my ovary), the gyn surgeon would butcher me (since endometriosis is so difficult to operate and it needs to be done by an endometriosis pro).

What do you think?

Thanks a lot!

Paula

P.S.: I'm sorry If I've made any mistakes in English.

0 likes, 2 replies

2 Replies

  • Posted

    I would get a second opinion. Many surgeons are happy to do surgery! But, often there can be other methods. Go to another specialist and see what they say.
  • Posted

    Hi Alauda

    A 2d opinion never hurts. Many of us have or had endo on our bowels, it's quite common. I had a total hysterectomy at 27 and did great until I was 54. Somehow it came back on my colon & a small piece of colon, 8" I think, was removed. Didn't find out it was endometriosis until the pathologist's report came back. Until then, everyone but me believed it was diverticulitis.

    That's all I can tell you. The only thing I know about a frozen pelvis is that I didn't have that added "joy."

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