Mind over matter - a new study
Posted , 6 users are following.
Hi All, I came across this article today and thought you might find it interesting. Although it mentions fibromyalgia and not PMR it still makes interesting reading.
0 likes, 9 replies
elizabeth40672
Posted
Sorry forgot to add the link
Moderator comment: I have removed the link(s) directing to site(s) unsuitable for inclusion in the forums. If users want this information please use the Private Message service to request the details.
http://patient.uservoice.com/knowledgebase/articles/398316-adding-links-to-posts
http://patient.uservoice.com/knowledgebase/articles/398331-private-messages
pauline36422 elizabeth40672
Posted
elizabeth40672 pauline36422
Posted
I have posted the link it's waiting for moderation
It was an article posted int The Conversation a great website for interesting news. If it is not allowed I will happily share it directly.
EileenH elizabeth40672
Posted
Try copying and pasting the title - including it in a comment doesn't usually trigger the computer to moderate it.
Is it "Hidden and unexplained: feeling the pain of fibromyalgia"?
If so, they say "It can take years to receive a fibromyalgia diagnosis" =- not in my experience. It is the current get out for lazy doctors who don't want to go to the effort of deciding what your symptoms are because everyone knows fibro can't be treated successfully. There are a lot of patients with PMR who have been fobbed off with a fibro label - and once you have one, everything is blamed on that.
elizabeth40672 EileenH
Posted
I will do next time. I can't find the link so can't post again. It was about a study that was talking about how the brain can be tricked to relieve pain. Not really talking at PMR more talking about amputees - but it would be lovely if it was possible to do this.
EileenH elizabeth40672
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elizabeth40672 EileenH
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Flutterbie57 elizabeth40672
Posted
In the beginning I did not believe that I had Fibro. I read everything I could. I tried numerous things, but 20 years later I am in just as much pain. I do suffer from 99.9% of problems listed under Fibro. I did accept that I had it after the first couple of years, and got on with managing it. I had treatment for a couple of years with a Dr who had been working on Fibro problems for over 5 years in the Taiwan hospital. I was told by New Zealand Doctors, that it was only a Western world problem and it only occurred in countries where benefits were paid for injuries/med problems. Not so. It was a problem in Taiwan 20 years ago.(no financial benefits available).
I suspect I will not in my lifetime succeed in overriding my pain.
elizabeth40672 Flutterbie57
Posted
Glad you found it
Don't think my brain is capable either...
I can't believe a Dr said that to you! It just goes to show the lack of understanding of PMR by some Dr's.