Minieres Syndrom increase after electrical stimulation
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I had been diagnosed with this issue in 1976 and a shunt inserted for drainage. This appeared to have solved the majority of the tinnitus for many years except for the occasional flair up. At around 2009 I was being treated for a stiff neck and electrical stimulation was used. Within 5 minutes, I experienced sever dizziness and was unable to walk straight. The tinnitus that had been under control began to be an issue going from a low hum to a rower and then to a high pitched ring. Over a period of 2 years the issue got worse and no doctor could agree that the electrical impulses had caused this flair up. Eventually I began having drop attacks, the worst day having 7 with no warning. There was no choice but to have the vestibular nerve sectioned to allow for some semblance of life. This occurred in 2011. It took 6 weeks if intense therapy to learn to walk but at least I no longer had the drop attacks. The worst issue since then has been the depression. Valium would at least calm me down but nothing seemed to help increase my ability to function normally with the loss of hearing noise. One thing that does help is adderall which at least gets my mood to a better state if only for a short period. If anyone has any additional advice I would sure like to hear of it.
0 likes, 7 replies
Willow4 richard93707
Posted
Being on this forum I hear a lot of people dealing with depression. I usually don’t deal with depression but living in MICHIGAN I get seasonal. I take Valium to take the edge off. As of late and the increased symptoms I’ve had been having, I see myself being treated soon. What I am curious about is what medication regimen are you on and I have not looked into the shunt. I have had two Sac decompression with the last causing a CSF leak. They also wanted to put tubes in but I was hesitant to that. I’m still dealing with the issues from my surgeries. You’ve had it so long I’m curious how you have done it all these years.
Willow
richard93707 Willow4
Posted
Dear Willow. The interesting thing is that the original shunt worked great. For 43 years I worked in the power industry close to steam and gas turbines which generated excessive amounts of 60hz noise. Until the neck therapy I was having no problem. That being said, the first thing That helped was of coarse the valium. Then as the intensity increased, I found that a combination of hydrocodone and valium together helped considerably (Note: this was not doctor approved since there is no medication available to treat the tinnitus from Minieres Syndrom). With the increase in the noise levels came the depresion. I found that though the disease itself cannot be treated (Again note the shunt worked the first time in 1976 but replacement in 2010 did not nor did steroid shots through the ear drum). Just by chance I was diagnosed with narcolepsy. The medication prescribed was adderall. Two things happened, first after having dealt with the tinnitus first thing after waking up for about two hours before I could function, within 30 min. After taking the adderall, the feeling of wellbeing overcame the tinnitus and thus the depression. Secondly, I was able to better control the depression throughout the day. That being said, there are the side affects of sleep deprivation if taken to late. If you haven't had the shunt or the steroid shots, you may benefit from them as I did initially. I hope this helps in some way.
Richard H
Willow4 richard93707
Posted
I have done several injections of steroids and oral steroids. I have tried Serc several times with no response. Have had to Endolymphstuc Sac decompression, which the first one lasted about 3-4 years. Had the 2nd on 11/30 but ended with a CSF leak. Had a 3rd surgery on 12/8/17 to repair the leak. I’m still dealing with that. Found out today i May still have a residual leak. I have not had the shunt but with the extensive work they did on the 8th not sure if that will be an option. I may have to discuss the use of Adderall but it is not contradicted for Menieres and doubt that will be an option. Thank you for responding and hope you have a wonderful New Year.
Bertman richard93707
Posted
Hello Richard, I can't offer any ideas for you , but I can say I understand and feel for you, I manage my drop attacks with a wheelchair I was having too many falls putting me at high risk of injury. I have been using a wheelchair since 2015, I have a portable for travel and a power chair at home. I live in an ADA apartment where everything is level, My Doctor mentioned a nerve section surgery, but considering that my issues are bilateral, this would not be a good idea. The doctor could not relate to the outcome of this surgery with bilateral meniere's.
Anyway through the help of a wheelchair I can ambulate safely.
¯`v´¯
Thinking of you!
`*.¸.*´ and we all send prayers during this
¸.•´ ¸.•*¨
¸.•*¨
difficult time, We are beside you!
(¸.•´(¸.• (¸.•´¸¸.•¨¯`•.¸¸.? Bertman
richard93707 Bertman
Posted
I can't imagine bi-lateral issues and not having any sense of security for these attacks. I can tell you that the quality of life I experienced at that time held no hope for me. I don't know if your a SPIRITUAL man but I do find comfort when I read Psalms 73 knowing there is a better life than this one. God bless you and thanks for your response. It seems when I am depressed, I find someone that is having a harder time than me and I feel a bit selfish with my fate.
Bertman richard93707
Posted
Hello Richard, Thank you for your response,
There's hardly a days goes by that I don't see or come into contact with someone experiencing health issues
some are far worse than anything I have ever experienced. I just have compassion for anyone having issues. The world is a big Place and we are all brothers and sisters in around about way. Wishing you a blessed day and a more blessed tomorrow
ø¤º°`°º¤ø-:¦:-•:*'""*:•.Bertman •:*'''''*:•-:¦:-ø¤º°`°º¤ø
richard93707 Bertman
Posted