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Hi, I've been dormant awhile on here, trying to get myself in order.
Here's a little about me before I go on to my latest problem
I am 33, Female, 2 children (one is 14 one is 4) I live in the UK
I suffer with an underactive thyroid and LS as well as having bouts of Hidradenitis suppurativa (boils that don't pop) I have also had Rhinitis (just been operated on for this)
I was abused by my Father for many years and I know some people link sexual trauma to LS (not sure I agree on this or not)
I had the mirena coil fit for the first time in 2008.
I have had PCOS and Entrometriosis in the past as well as a large dermoid cyst and other cysts. I had the left ovary removed in 2009 (ish)
After the coil went in I still had periods - softer but still there and more confusing for me was the terrible pain I had in my left "ovary" which had been removed, sometimes it would cripple me and other times it feels like my womb is falling out - terribly heavy feeling pushing down.
At this point I persisted with it until I wanted to have a baby (number two, 10 years after my first) So the coil was removed.
After my Son was born, I had a new Mirena coil fit and found out after a few months that my Thyroid was underactive and was put on medication.
About 2 years ago I developed LS and the boils and the problem with my nose. and lived with it since.
In June I had more surgery to find out what was causing the pain in my left side, they found nothing apart from very large veins in my womb (?)
They also put me a new coil in as they felt it had run it's course.
A month later it fell out. A month after that I had the new one in (15th September 2014)
The month I had this out of my body, I felt like a new me, no flare ups of LS, no spots, HAPPY moods. Didn't put two and two together at the time.
NOW: I'm moody, gaining weight (after doing well and losing a stone in the month I had the coil out!) pain is back in the left side and the heavy feeling in my womb like it's going to fall out of me.
AND the LS has flared up like you wouldn't believe.
Doctors tested my hormone levels when this coild was out too - NORMAL.
Wonder what it would say now?
Long and short is that I am going back to the doctors to have this contraption removed and ask to be sterilised.
After googling LS and Mirena and Mirena and auto immune it came up with some pretty interesting reading.
Please can you tell me im not going mad and this is actually making my auto immune conditions worse? Any similar experiences?
Look forward to hearing back from you all
Thanks in advance and sorry for the long post
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If you google the Koebner phenomenon (or effect) you'll understand that a foreign object poking at our uterus could trigger a flare of LS.
Some of us also suspect LS was encouraged by tubal ligations. I had mine at age 43 after the second round of having an IUD. Mine involved two metal clips, which I suspect influence LS.
Anyway, these comments are only my personal experience and intuitions.
Think you have precisely worked out that any kind of IUD is bad news....brill that you'll be chucking it ...what took you so long!!? You are definitely in your right mind about this !!
oh but getting sterilised? That's not so good. stay on the all natural lines and you'll be ok. you need your hormones to stay in balance.
love marey xxxxxxxxxxxx
Sterilisation does not affect my hormones in any way so I've been referred should take 3-4 months
Condoms til then, the doctor gave me cerazette but I'm not keen to take them?
Any thoughts? Xx
I have been diagnosed with LS after having second mirena fitted - which was a right palaver, as the doctor couldn't find it at first and so I had to go to a speicalist. Think all the prodding about and after 4 attempts, got it out and new one in, I developed LS. Only just twigged that it was that that probably triggered LS off. Specialist gave me a steroid cream that been using for 10 weeks and LS calmed down for now but heard it's for life once you have been diagnosed and need to use cream for flare ups. The other day, I thought I had a hair down there but it was one of my threads poking out from my mirena, which has totally freaked me out and made me wonder if the longer threads, to make it easier to remove next time around, is also aggravating my LS and general area!
I am very tempted to get it removed but like the fact I don't get really heavy periods whilst using it plus easy contraception. On the other hand, like the idea of rythum method as natural and I did feel a much nicer, less moody person in few months break I had inbetween mirenas. A few friends have also had mirena fitted and gone on to take Citalopram for anxiety and depression. Is this lined too?
Interested to hear what you think about this...
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