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First of all, thank you for this group. I am so very sorry so many of you have this illness, but I am so weary of thinking I'm insane hypochondriac! I was diagnosed with Shingles on 6/28/17. The previous months/year had been one crisis after another so definitely stressed. I had a week of weird, painful sensations on my side, but I thought I had pulled a muscle or had a kidney stone. Then, I had flu symptoms, and mild sore throat, but the next day I had the rash on my side. Only about 15 bumps, in an area about the size of my hand but not completely clustered together. I was put on acyclivor for 10 days, and, as soon as those bumps started to crust over, I got new ones, but single ones, on a couple random places. They then added prednisone to the end of that cycle of acyc. Within 2 weeks, I was still having random spots/blisters so they repeated another 5 days of acyclivor and another round of prednisone. The month of July is still a blur, I had overwhelming fatigue, slept for weeks it seemed, and into August and September I continued to have an active, single lesion somewhere on me at all times. They put me on docyclyine in case it was Lyme, did blood work, all normal. I ache in my ribs, I have burning pain in my heel, and random shocks and burning pain in different areas all the time. I ITCH so badly on my spine, right between my shoulder blades, but never broke out there. My gp referred me to a dermatologist but I still have to wait 2 weeks to be seen with them. Currently, I have a new breakout, and a new pattern on my chest below my collar bone and these are clustered all together LOL! This one itches worse than any of the others and is so sensitive. This is in addition to the 6 or 7 random ones on my sides still. I have not been diagnosed with any immune disorder, and I do not know what to think. Another Dr. in the same practice with my GP says all the breakouts except for the original one are NOT shingles..... it's just a coincidence. I have never had allergies or any other skin condition. I am 50 years old, under the worst stress of my entire life, but have some serious faith so I'm good, but I'm confused, lol! They say I can't get it twice, but I never got rid of it; They say it can't be on both sides, but I have pictures, sometimes my lesions are even symmetrical!; They say they don't look like shingles because they arent clustered.. but they are identical to the shingles just individual ones. If anyone has any advice, I am so open to any! Mostly, thank you for making me feel like I can share!
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