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Hi to all,
In 1987 I was diagnosed with ME (also known as chronic fatigue). In 1992 I saw a consultant who said to me that he thought I had primary hyperparathyroidism (PHPT) because my calcium level was very high. He re-checked the calcium and it had returned to normal so he didn't bother to check parathyroid hormone levels.
In May 2016 another consultant saw high calcium and said he was very worried and that was when I finally got the parathyroid diagnosis. Since then it has been slow apppintments but I have now finally had all the tests (including sestamibi scan) and
Seeing a surgeon for the first time on April 5th.
Has anyone else had this experience? Can anyone else tell me how the tiredness of hyperparathyroidism feels and whether it is similar to ME? The reason I ask is because a different consultant told me last month that I wouldn't feel any better after the operation because my calcium isn't high enough to be causing all my symptoms. Although he is really a diabetes expert he said I only had 'mild' PHPT and yet I've read everywhere that it isn't the high calcium alone that causes symptoms but the length of time the calcium has been raised - and mine has been raised for 30+years.
Finally - has anyone else had the op at the QUEEN Elizabeth hospital, Birminghm, with Mr Alam Hannan - how long did you wait for the operation? Were there lots of cancellations?
Thank you in advance for any help/advice.
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