Misdiagnosed

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Hi,

I think I was misdiagnosed and prescribed ppi. 

Doctor thought I have too much acid but I actually hadn’t enough, that’s why I had dyspepsia. I searched second opinion which confirmed my thoughts.

The problem is that this second doctor told me just to stop taking ppi, but I am afraid to do so. Namely, lately I was on 60 mg lansoprazol per day - as it didn’t help and so I doubled and doubled the dosage in hope that higher dose will have more effect.

If I quit cold turkey I will get revenge. I am not sure what damage have it made on my sphincter - if it still works. Is it possible that I have irreversible damage and that it won’t start working again?

I read that if the level of acid is too low spinchter doesn’t work properly. And that it needs for proper work more acid.

How to achieve this? With ppi lowering the acid and spinchter not working properly- I am in vicious circle. 

Does anyone has any advice how to make it the most painless possible?

How to lower the dosage? What to eat? What other remedies to use?

I will appreciate any advice, experience, thought.

Thank you in advance,

Aya

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6 Replies

  • Posted

    hi, i was on omeprazole for 30+ years when a dr new to my surgery took me off them saying that research showed long term use was found to cause further problems, within days of being of them i started getting symptoms, first the burning that gradually got worse, then feeling like my upper back had been battered, just got worse and worse, dr eventually gave me lansoprazole and gaviscon, didnt even touch the sides, eventually over many months and test i found my esopegus contracted in various places trapping food, specialist recommended i go back on a short course of omeprazole and anti depressants to relax my esopegus, but did advise that unless i quit the lifestyle i had and didnt change my eating habits (lack of regular meals) i wouldnt get any better, just over a year ago i gave up one job, i worked on eating more smaller meals more often, i no longer drink alcohol at weekends, drink or eat my triggers as often, and especially dont eat too big a meal before bed, cut out lots of foods at first then gradually reintroduced them but on a lesser scale. now im off all medication for the last 8 monthes and majority of the time have no refux or dyspepsia. stress and lack of regular meals were a huge trigger for me, not saying i dont get the odd bout of reflux but its so mild now when its there its easily brought back under control. 

     

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  • Posted

    Yes , you have to be careful quitting Ppi’s . Slowly lower the dose and replace with Zantac or Pepcid . Once you are off Ppi’s , start replacing Zantac or Pepcid with a neutralizer . In the meantime , try natural ways to encourage your stomach back into acid production . Take apple cider vinegar before meals . Take a good probiotic supplement . If you want to go one step further , cut grains and dairy from your diet , those two things often cause the problem in the first place . Good luck !
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    • Posted

      Thank you!!! I just went from 60 to 30 mg and I noticed problems 1 hour after eating carbs, sugar and diary (not just lactose).

      I’m eating mustard (when I noticed that mustards helps me a lot and checked that it contains 50% of apple vinegar I became suspicious that maybe i don’t have enough acid and not too mich as doctors were convincing me) and it helps me a lot.

      How long do you think I have to wait after each lowering of the dose? Two weeks or maybe rather more? I also think that this jump from 60 to 30 was a little too big and that it would be better to quit just 15 mg at each step.

      Thank you again!!!

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    • Posted

      I’m afraid it will be trial and error , and it will take a while before you are totally off medication .  A little trick I started using , I put a brick under the end of my bed where my head is at night . This way you sleep on a slant and gravity keeps the stomach acid where it belongs . Great trick for people who have problems at night .
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  • Posted

    You can get a wedge on Amazon as rainboesends recommends instead of a brick , I got one myself and they really help and are quite cheap . Easy to sleep with and don’t interfere with your partner’s sleep.  
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    • Posted

      do you not slip off the wedge during the night? Or get neck aches? The last I looked the wedges were different prices. Which brand are you using ? Or maybe just give the price range (so thought that u are advertising.) or just private message 
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