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Hello everyone! I wanted to share my experience to see if anyone here has been misdiagnosed with Gilbert's syndrome.
I was diagnosed with gilberts syndrome when I was about 13. This was because our family doctor had discovered my mom had hepatitis C, and wanted to test the rest of the family for it. After he ran all the blood tests, the dr told me I didn't have hep c, but that I had Gilbert's syndrome, which was nothing to worry about. So I didn't think much of it till I got older.
As a teenager I struggled with fatigue, brain fog, moodyness and depression. There were so many stresses in my life at the time, I didn't think much of Gilbert's syndrome. After reading up on it online I realized how many people diagnosed with Gilbert's syndrome have quite a few varied and miserable symptoms, so I did wonder why gilberts syndrome always gets dismissed.
As the years passed, I saw several drs for many physical and mental ailments and basically everyone dismissed me or wrote me a prescription. I lost faith in drs to make a long story short. It made me angry I had to deal with so many issues like fatigue, stomach problems, depression, my legs always swelling up with water, insomnia, not being able to think straight and everything else. I started taking Ritalin to pay attention, lithium or antidepressants for my moods and seroquel to sleep. That's how I've learned to deal with things.
Anyway, about a month ago I donated blood. I received a letter three weeks later stating that they could not use my blood donation because I tested positive for a hepatitis c antibody. Also I tested positive on the NAT test for hep C (Nucleicacid Amplication test). I am a little surprised at this. I saw my nurse practioner and she asked me many questions, ran many tests and wanted to know when and by whom I was diagnosed with gilberts syndrome and she wants to reevaluate my diagnosis! I am seeing a gastroenterologist next week and they'll tell me for sure if I have hep c or not.
I don't know what to think. I feel saddened and confused by all this. Could my Gilbert's syndrome really be hep c?? Ive only read about this happening to one other person. That's a pretty serious mistake and I wonder if people frequently get written off as having Gilbert's syndrome without careful consideration.
Has anyone else experienced anything similar?? Please share your experience. Thank you.
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