Posted , 4 users are following.
Hi, I was wondering if anyone has been diagnosed with CFS/ME and then it turned out that doctors had missed something? My daughter is 15 and has been ill for over 2 years - we had to take her out of school last year as she wasn't well enough to go.
She became ill just after a virus and starting her periods. She has always been thin with not much appetite. Over the two years her iron levels have gone from being in the normal range to being anaemic, her B12 levels are going down (although normal). She's always had stomach aches, excess wind, indigesttion, diarrhoea, constipation, hemorroids, mouth ulcers etc. She has seen paediatricians, CFS specialists, rheumatologist, and countless GPs and has been told she has ME and IBS.
Just recently her C reactive protein came back as slightly high (it was a year since they last tested it) so they did a faecal calprotectin test (simple stool sample) which has come back high - showing inflammation in her bowel.
I'm now wondering if they've missed something and she's got something more serious? I've had to fight so much to get her the right help and will be so upset if she in fact has something they should have found a year ago.
She's going to see a gastroenterologist on Monday so hopefully we'll get some answers.
0 likes, 17 replies