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I'm in a very strange situation where I have been on thryoid medication for 8 years and was diagnosed with underactive thyroid when I was 19.
It has now come to light that the only reason I was diagnosed was that I was suffering with exhaustion and my Tsh was slightly abnormal. My thryoid antibodies were within normal range then and they still are now.
The doctors have been seeing how tired I am and kept increasing my meds to the point where my hair was falling out and I was suffering palpitations. I then got desperate and saw a private endocrinologist who said he was almost certain I have been over-medicated and may have never needed medication in the first place.
Has anyone else been in this situation? How is this possible and how does this happen when underactive thryoid is such a common disorder?
All the other potential vitamin deficiencies have been tested including adrenals etc and they have come back normal and I'm waiting on a thryoid ultrasound to confirm that it is healthy.
They said it may be too late to completely take me off levothyroxine (I was on 150mg and I'm now down to 75mg and dont feel any worse but equally dont feel any better). They say my thryoid may not be able to recover after eight years at such a high level of medication but they will try and reduce it as low as possible.
Is it possible for my thryoid to start making its own hormones again if I never had the disease in the first place?
I feel devastated at the amount of times I went to the doctors complaining that I've felt awful for years and it's taken me to go to a private endo to get some answers. Im worried I'll be on this toxic medication for life
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