Miserable two years after cholecystectomy

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I had one acute attack in October 2013 and had my gallbladder removed as a scan in the June had shown that there were gall stones. Post-operatively, everything was great and I was back at work in a week. In August 2014, I started getting a vague pain where my gall bladder had been and then the pain just got worse. I had two ultrasound scans in October last year but these were normal. I then had no pain from the December until April this year and it all started up again but this time with intermittent bouts of diarrhoea. My GP had referred me back to the surgeons and I had an MRI scan in June and this again was normal. I have almost been in constant pain daily since April and the doctor has now referred me back to the surgeons to see what else can be done. One of the surgeons that I saw said that it was probably just adhesions and IBS but the thought of living with this pain and the embarrassment of having to rush to the toilet at times, is really quite soul destroying. I have now worked out that eating fruit is really irritating my bowel and probably the main cause of the diarrhoea, so I have limited this. I may ask for Questran at my next appt with the surgeon but would really like to try some natural remedies. Can someone recommend anything? Thankfully, I have not had the gastritis and the bile must be leaking into my colon to cause my symptoms. Whenever my GP touches my right side, he can see that I really am in acute pain but all scans show that there is nothing wrong with my biliary tract. I would be interested to hear how others are faring. My main gripe is that following surgery, there is no information given to patient to warn them about this and for a long time, I really thought I was going mad or had something seriously wrong with me.

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  • Edited

    I have suffered the same as you i had my gallbladder removed april 2014 and still now i am suffering with flare ups. I still get pain which i think because i have been taking painkillers everytime i have a flare up my body has got used to them so they are not effective. Today i have had a flare up and the pain was really bad i took 2 tramadols 50mg they didnt even touch the pain. I to have to run to the toilet which you are right you feel shameful and its so hard for me i work full time and its not a nice thing to be experiencing. I have also suffered with nausea and vomiting and been admitted to hospital severe times since having my gall bladder removed. I to have had further scans but i am being told it is fine. I think the doctors are to quick to say ibs when they cant figure out what is causing the symptoms. I have noticed if i eat a handful of purple grapes i am ok but if i eat an orange it makes me worse. I find the docotors make you feel like its all in your head but there has to be an explanation for the symptoms. I am also waiting to see the surgeon again. I was the same none of this was explained to me before they removed my gallbladder which is frustrating. We shouldnt have to live still suffering
    • Edited

      I actually feel worse than when I had the gall bladder pain as I only had the one acute attack and I now have ongoing daily pain with embarassing symptoms. I should have also mentioned that I favour my right side when I sleep and most nights I am unable to lie on this side because of the pain - does anyone else get this? Has anyone had a colonoscopy? I am keen not to have another operation because if the pain is being caused by adhesions, there is just more risk of developing more adhesions after another op.
    • Edited

      Yes i am the same i prefer to sleep on my right side however i find this difficult to do now after op. Im sick of having recurrent flare ups. I have had a colonoscopy under sedation which wasnt as bad as i thought it would be. Its horrible to keep suffering
  • Edited

    .....try twenty plus years....gallbladder out..still pain...every known test, negative.....learned to live with them.....never found out what causes these flare ups.......could go for months without any problem then here they come........that pulling pain right where the gallbladder was....sometimes right to the back......sometimes bad pain, sometimes mild.....sound familiar....stay healthy...
    • Edited

      I think I just have to accept that this will blight me for a long time. It is just so frustrating. Take care
  • Edited

    I agree with you in what you say as being your main gripe.  I'm just over 2 years now since my removal op.

    I too have that awful pain on my right hand side.  And problems with my stomach and other symptoms that are basically like have the flu permanantly.

    I have a post operative mass in my gallbladder site.  They don't know what it is, possibly a gallbladder remnant.  I'm awaiting surgery early next year.

    You couldn't make it up!

    • Posted

      How did the post-op surgery go? I have had all of the above symptoms and yesterday my internal medicine doctor said that I have ibs...try more like chronic diarrhea for 4 years and worse since the gallbladder removal almost 2 and a half years ago.

      Often times I do not want to live.

      Thank you for your time. I hope that after your surgery, you found relief.

  • Edited

    Short version: you have too much acidic liquid in your intestine. eat rice! Immodium saves lives!(and slows digestive system allowing food to catch up to dumping bile). Cholestramine binds bile to a solid(but needs dumping when there's too much stored on intestinal walls). Activated charcoal stops bloating and eliminates toxins. METAMUCIL IS THE ABSOLUTE BEST THING YOU CAN DO!!!(it makes liquid into gel and makes everything normal). Probiotic yogurt drinks are also helpful. DO NOT DO CALCIUM SUPPLEMENTS! YOU WILL DEVELOP HEART PROBLEMS.

    Explained version: I have had extreme difficulty after my gall bladder removal years ago. I became quite the expert on dealing with the symptoms and I hope this information helps anybody who might need it. First off, understanding what's going on in your intestine now that you don't have a 'bile gate'. There's not enough to break down lots of fat but there's always a trickle that adds liquid to your intestine and colon and causes diarrea. First step to felling better. Eat lowfat for a while. Duh, you know this part, but of course it is very important. Eat rice!! It blocks you up and helps with diarrea too. Next, Imodium is your best friend! It slows your digestive system giving food and liquid a chance to bind and catch up. Imodium is excellent in a pinch and you can take a good amount per day without consequence. Cholestramine powder is also great because it binds bile to the intestinal walls. Theoretically, you can use the bile later and it won't constantly dump. But you will occasionally have to dump the excess storage(so I've found).

    Next is Metamucil. PROBABLY THE REAL LIFE SAVER HERE. I take it every night before bed. If you see what it does in water, it does the same to liquid in your intestine. It clears everything out everyday and I haven't had a problem since. Some people say that calcium supplements help with diarrea. The reasoning is that only 40% of the calcium gets absorbed and the rest becomes waste and clumps liquid together. I did this for 6 months taking twice the daily recommended dose. It helped a bit, however, I began to have severe heart palpitations because too much calcium causes clogs in blood stream and calcium build ups in the heart. DON'T DO THE CALCIUM TREATMENT!! Lastly, activated charcoal works wonders too. It stops bloating and neutralizes toxins as well as stopping diarrea. (Don't forget to add probiotics to your diet) I take a swig of highly populated yogurt drinks daily. One of my doctors also told me that the 'tube' where your gall bladder was connected to will eventually create a ball like end and store bile like a call bladder does. This takes time. It all takes time so be patient! I live a completely normal life now and a year ago I was afraid to go to the corner store and back. I was going to the bathroom up to 20 times a day and had severe panic attacks if I left the house. Now, I'm going to France next month wink

  • Edited

    hi!!! almost 2 years post surgery and i want my gallbladder back i have pain, severe bloating and EVERYTHING i eat bothers me i have horrible gas (belching) constantly sucks

    • Edited

      Sorry to hear this. I am now almost 7 years post-op and still having symptoms, to the extent I have recently had a colonoscopy and CT colononoscopy which were both normal. Have a look at Sphincter of Oddi discussions within this forum as this may help. I am having to accept that this is my way of life now but it is so limiting. I have constant pain in my right side, radiating to my upper back and sometimes the pain is worse than the gallbladder attack which resulted in the removal. Eliminating foods helps, knowing which ones trigger the pain and symptoms. Hang on in there but keep seeing your GP to ensure you have had all bases covered. It's an uphill struggle.

  • Edited

    Hi,

    I had my gallbladder out 3 years ago and have been suffering from these attacks as well. Been to my doctor had scopes and ultrasounds and they keep telling me nothing is wrong. I have tried probiotics, digestive enzymes and all kinds of things. So far I find yogurt works. My attacks happen if I don't eat a small snack. I vomit bile. just like a cat. It is so painful, I shake and sweat. Feels like when my gallbladder was doing its thing. I thought I was going crazy.

    • Edited

      I also thought along those lines, eat small amounts often to keep up with the constant bile dripping. I thought it worked. And I can feel fine for a few weeks and then another flare-up arrives. A complete mystery to me! I've also tried digestive enzymes and probiotics but I have no idea if they actually help or whether during that period of time I would've been fine anyway during the flare-up nothing seems to help.

      I just wish I could find the reason, if there is one! Or at least a medication that would help. I'm going to try psyllium husk powder now.

    • Edited

      Hi,

      That's how it is for me. I thought I had found a way to manage it then it would go all sideways again. I stopped taking supplements and now I just always have a yogurt on hand. If I feel an attack coming on I quickly eat a yogurt and that seems to calm whatever is going on. I also drink alot of water. I also make sure to have a water bottle. Sometimes that will calm it until I can find a snack. Even if it's just a couple of crackers. Trial and error has been easier than going to my doctor over and over for him to tell me nothing is wrong and me being upset and frustrated.

    • Posted

      Did the psyllium powder work? How are you doing? My response is within this article. I had gallbladder surgery 2 and a half years ago. My doctors suggested a psychologist only to find out that it is my health. I see another liver specialist this next month.

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