Missed Pulmonary Embolism?

Posted , 3 users are following.

I had a  large DVT in January and still have a 3cm clot behind my knee. The last week I have had breathlessness on and off as well as chest pains and elevated heart rate. 

I had a VQ scan but they did not find any clots. 

Is it possible the clot was missed on the VQ scan? They did not want to do a CT because I am only 21 and they were worried about radiation. 

0 likes, 3 replies

3 Replies

  • Posted

    Dear Ella

    My daughter was only 20 when she had her DVT. ( and is called Ellie!) And it is always worth getting it checked out properly as it could be that a PE was missed. In her case it turned out to be anxiety eg a panic attack  ( which she developed after her DVT) but nobody was angry with us for having it properly checked out. We went to the GP who sent us to A &E straight away.  It was def worth doing and everybody took us seriously as a PE can be fatal as I am sure you know.  So if symptoms are still there go now!!! You'll be glad you did.  😊

    • Posted

      And keep us posted!! X
  • Posted

    Hello Ella 30877

    I have just recovered from a massive pe in my left lung & several smaller ones in the right.  Due to the size it has taken my body 10 months to lose continuous breathing difficulties. 

    I was first diagnosed March 2016 with a dvt in my leg. The following day I had a ctpa with showed several pe,s in both lungs. After 6 months on dalteparin I recovered very well. 

    Because I came off the meds after 6 months I soon developed more pe,s in my lungs.  As said above.

    Please go back & let your GPs that you are still very concerned.  I have had 3 CTPA,s over the last 18 months. They show immediately if there is a problem. You have to weigh up the benefits against the risks against your fears. 

    Since I began with all this the NHS Consultants have discovered I have a propensity to clot.

    Hope this helps a little. If you mind is disturbed by it all you need to speak to you GP.  

    The secret is finding out what is exactly going on & researching all you can. 

    Different folk take different times to recover. 

    Good of luck with everything.

    regards

    Christine

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