Mistake

My condition is migraine associated vertigo, with episodic bppv every couple of years.  

When I started the pill last friday I noticed nausea and headache and I didn't take it on Monday night and tuesday had no headache or nausea, took it again last night and after waking up felt nausea and headache.  I think its a side effect of the med and hopefully it will lessen as my body gets used to it.  I've only taken 4 pills.

5mg is an extremely low dose to take of propanranol, do you think you could be overthinking a little bit and it's your anxiety causing the symptoms?? I know that your not keen on taking meds and you panic about side effects so you could be feeding your anxiety? I take propanranol and have done for some time, even if I skip a does it doesn't have any effect I just take it when I remember, also my doc said I can take it as and when I feel necessary doesn't have to be all the time x

What condition are you taking propranolol for? If it's for dizziness, does it help the dizziness? It's helping my anxiety which is good. How long have you been taking it? Sorry so many questions.

I know my anxiety causes issues, I guess because I had tried different meds years ago and so many peiblems. I'm hoping the prop works

5mg is soooo low. Maybe your anxiety is causing this? The 5mg that u are taking is not extended tablet- has a short half life. I am surprised you're feeling symptoms by morning. It should've worn off by then. Also, your side effects are not impossible, but not very typical for starting a beta blocker.

I take it when I have anxious days so when I am feeling jittery, sweaty and shaky, it's also known to help with migraines in some way however I don't take it for that reason.

I have never been prescribed it for dizziness as one of its side effects is dizziness, I only take a low dose to which is 10mg twice a day but I am thinking of stopping as I am not sure it's hindering things and making it worse!

I feel exactly like you Hun it's so scary feeling this way and no matter how hard you try you can't shake the feeling, anxiety plays a massive part in how we are feeling however I don't believe it's the root cause of things.

It does help with anxiety but I feel that it's just masking the problem and it's not being dealt with!

I'm just fed up I want my life back before all this happened x

Hi

You are right, anxiety with the dizzy stuff makes things so much worse.  It just shows up when it wants, no matter how hard you try to stay calm.  I have days where I have no anxiety and on those days there is no dizziness or bodily sensations, on the anxious days there are many bodily sensations, my problem is I am watching for them all the time.  I try so hard not to pay attention to them, I also have a hard time with just the smallest little sensation and my axniety starts.  

The other thing that bothers me is trying to figure out triggers, when you have some dizziness everyday its impossible to figure out whats causing it, for instants yesterday I had no dizziness or anxiety, then last night it started with the normal dizzy then the headache, I wonder was it the 3 m&m's I ate, or was it the grilled cheese, or was it just the disorder?  THen this morning having anxiety driving to work and slight feeling of sitting on a ballon like i'm bobbing.  I wish i could back to counceling but I cant afford it, this crap has put me in the poor house.  I know in my mind thats it MAV and possibley slight mdds, so one would think that I could understand it and let it go, sure I have time where it doesn't bother me, then it comes back, I mean the anxiety of it all.  Since starting the propranolol ive been stressed, worried about side effects.  I need to stop reading about it because there are people saying they did great on it then a year later started having problems on it, so thats my problem, thinking about what can happen later.  I know to most people, worrying about the future is futile, but for me its real.  

I hope you and all of us can find the what and why of all this.  I would love to feel happy again and not afraid of everything.

Exactly it's a vicious circle, your mind is a very powerful place and it can lead you to a very lonely place.

You are just like me I am always trying to search for a cause to this feeling, seeking help and advice from others to know that I am not alone I am not the only person suffering from all this s*** but there are days when you are low that you feel like it is only you and that no-one no matter how hard you try truly understands how you must be feeling, the fear that you are going to drop down dead any minute, the fear you won't wake up in the morning, the fear of taking medication and having side effects, the fear of being on your own when something happens, the anxiety that makes you feel like omg this is it, your heart beating so fast you think it might stop, the shakes, the sweats, the headaches, the list is endless and the worry is like no other, you torture yourself because you think why, why me, why is it happening, what is happening and omg please just stop, stop and give me a break seriously I just don't understand!!!!

'I'm not dizzy because I'm crazy, I'm crazy because I'm dizzy' right lol

When you have a good day I don't know about you but I am almost scared to relax because I know that it's lurking in the background, I know that it's going to be short lived and that tomorrow or later that day I will be back to square one again and feeling miserable, it's a very vicious circle and it's a bad habit to break, counselling is a great idea but if you can't afford it then what help can you get? Where are you? I am in the U.K. so we have an NHS system which allows us access to a lot of different treatments xx

Oh my, your post is exactly how I think and feel a lot. It is vicious cycle. I think what makes it hard to break is once the dizziness starts and you can't really get an answer for what it happening, then with every sensation with it be an off balance feeling, a headache, or simply bending over our brain recognizes this as anxiety provoking and the cycle begins. At least for me this is how it is. I also think that anxiety and stress have a lot to do with this or at least it keeps it going.

I can't believe how much we think alike, your post so on. It's odd how this can take over your life. One day your fine and the next its Caos.

I'm in the US and we don't have good health care, this onaboma care is a huge joke, we have to have insurance but it covers nothing until you meet the deductible which can start at 7000 a year. I think while I'm taking the propranolol I will be doing some things to learn to calm myself with anxiety. I have to, I spoke to my ENT nurse today about upping the dose to the 10mgs tomorrow and after I got off the phone knowing I would up it I had awful anxiety. Then I talked to my sister who is taking it and she loves, so now I'm trying to calm my system back down, but my head is all over the place with dizziness. It's so crazy how I worry.

I pray that all of us find the answers,

You should give the bigger dose of propanranol a try it might really help you?! It doesn't really do much for me but we are all different.

Do you believe that your dizziness is caused by the vestibular migraine or by something else? I just keep getting the horrid feeling it's not what they say and they don't really know and are as confused about things as I am about why it's happening as they have ruled out all the major things like brain tumours, heart problems etc but I am still no closer to getting any relief from what's going on in there! I know like you stressing about it only makes it worse but what else are you supposed to do when you feel so awful 99% of the time!

I am sick of being upset and crying because it's taken over my life, it comes for no reason, I was sitting on the loo last night and bang it just hit me like my brain shifted and I was dizzy which then sent me into panic mode and I was just sat still not moving so how, how does it just happen?!

I don't know what my biggest fear is when it comes to this, I just can't seem to go with it as they say no matter what I tell it, like so what your dizzy your not going to die instead I instantly panic and go the opposite way I fear the worst I really do, I'm a mum to 2 beautiful boys and I worry when I am home alone with them that something will happen to me, I guess in a way it is a constant worry because I went from hero to zero overnight!

Do you have people around you, you can talk

to? I have my family but they all think I am a nut case they think that it's all in my head quite literally and I am always telling them that I'd like them to spend a day in my head and then tell me I am mad! They just don't get it they really don't, it's a very lonely things to have to cope with by yourself and no matter how many people reassure you, how many doctors say your fine, you don't feel fine so how can they say your fine it's not normal!

Your healthcare system doesn't sound great at all, I guess that is one thing I am greatfuk for and that's we have access to pretty much everything although we have a wait usually of about 6 months for appointments well specialists anyway, we can call our GP and see them that day.

I have got an appointment Tuesday I am going to ask for counselling to see if that helps, I know that I could be blowing things way out of proportion but when life throws you all this crap what are you supposed to do, you have to try everything right in the hope something just might work!!

What other symptoms do you have other than dizziness??

It's really nice talking to you and sharing the fact we aren't crazy we have something crazy going on xx

Hi

I took the 10mgs of propranolol last night, I don't know if its the meds or my anxiety or the mav, its hard to tell whats causing what, but I feel dizzy when I move around or sit and the nausea is back some and anxious.  I called a pharmacy this morning and asked about taking the half of a .25 xanax on the same day and they said that was ok and I asked about the headache and nausea, he said the headache is normal but not so many people have nausea, so that freaked me out, but then he said its probably the anxiety and vertigo.  Honestly I don't know what is wrong my thinking, I always think so negative and am waiting for soemthing bad to happen, since starting the meds I've been a wreck, I don't know why I can't just relax and let things work for me.  Meds just scare me death.  My sister told me last night, this is a good med and it will work for me, but as soon as i decided to take the 10mgs last night I spent the entire evening under stress, my shoulders and neck were so tight and my anxiety was off the charts.  Any little symptom i have now I think its the med, what is wrong with me?  

I have a hard time believing this is vestibular migraine most of the time, I guess because it just came out of nowhere, all of sudden one night I was very dizzy and it never stopped, that was 14 months ago.  Now its has like you said taken over my thoughts and my life.  Its all I think about from the time i open my eyes in the morning til I fall asleep at night.  i know on the days i take xanax I don't think about it much until it comes back.  Its hard not to feel good 95% of the time.  I do have good days but when the bad ones come I can't remember the good.  I cant understand how soemthing can be so all consuming.  It does get old being upset, mad and crying, having anxiety and depression.  I have days where I will be driving to work and just start crying.  The other thing I find myself doing a lot is telling myself I'm ok.  I'll tell you if someone could listen to what goes on inside my head, they would flip and think I'm just complete lunatic.  I talk to myself a lot when I'm dizzy.  

Yes, dizziness comes on whenever it feels like it, I can be fine and lets say watching t.v, suddenly I'll feel like I'm swinging slowly back and forth, or like i'm sinking into the couch or leaning, or my brain will feel like it moved or its stuck, or i will look up from reading lets say and the walls will look like they are moving in a wave up and down, I all get those fast flip feelings when I'm sitting, and I will say out loud, whoa and grab onto something, I hate those.  Yes when i'm in the bathroom I will turn to the right to get the toilet paper off the roller and feel the room move, and yep then I'm off on an anxiety attack and worrying whats next.  It will make you crazy.

My symptoms are, feelings of sinking, leaning, fallling back, floor moving up and down, being pushed forward when i'm walking, bobbing up and down when sitting, feel like i'm sitting on a ballon like its kneading my butt its weird, in the shower when washing my hair feeling like I'm going to go thru the tub from going up and down, neck pain with headache and upper shoulder pain into the top of the back on both sides, legs ache i think from trying to stay stable or could be anxiety, mid back ache when legs ache, vision off before bad dizzy days, nausea of course, feel uncordinated at times, jaw and teeth ache, feels like i have ping pong ball inside my head at times, depression, racing thoughts, popping in my ears and fullness, gosh a lot of things it looks like, i think some are anxiety also and of those there are hundreds.

I hope you appointment goes well on Tuesday.  

Yes I enjoy chatting with you and so happy we are not alone.  But we are not crazy, we just feel like it.