Mixed Emotions and thoughts on Possible Endometriosis.
Posted , 5 users are following.
I need opinions of those who have endometriosis. I have mixed emotions and thoughts on this issue. I get really bloated 2 weeks prior to my period where I look like I am 8 months pregnant. My period is not heavy and I might only cramp on the 1st or 2nd day. My last couple of periods I have stopped bleeding on my 3rd day and started back up on my 4th day and then it stops again. After my periods for a couple of years now, I get a dull constant pain my lower abdomen and back for about 2 weeks. I am only 31 years old. I don't have any children. There are times during ovulation that I cripple over because I get a sharp pain in my lower abdomen. I've gone to my Gynecologist, the ultrasound is normal with a small cyst that appears to be one that comes with my cycle. I become constipated about a week prior to my cycle. I spoke to my Gynecologist about possibly having endometriosis, she stated with all of my symptoms and a couple of years of painful periods that she is most certain I do have endometriosis. I have tried taking 800 mg of Ibuprofen and that doesn't relieve the pain. I can bear the pain, but it gets really annoying. When I was younger, from time to time I experienced pain during intercourse, but I rarely do now. I have been wanting children and my husband had mentioned the same. She said if I get pregnant it will help with the endometriosis. At this point, I am unsure of what to do. I hear horror stories of how the endometriosis attaches to your organs and how it can affect your organs. My husband has mixed emotions about having a baby. We have been married for 11 1/2 years, so I am not sure he will ever want a child or is leading me on. I am tempted to reach out to my doctor and have the laparoscopy performed so I know for sure if I have endometriosis, but then again I really just want to ignore the pain and the fact that my Gynecologist said she is certain that I have endometriosis without doing a laparoscopy or surgery to know for sure. And I'm scared if I do have it, how severe it is and will it prevent me from having children. I was already told my Uterus is Tilted (from what everyone says that doesn't really matter with affecting the ability to conceive).
Help... What would you do?
0 likes, 22 replies
angie67540 casey30999
Posted
Are u experiencing pain everyday?
casey30999
Posted
Everyday since the last day of my period. its now been 2 weeks.
sandy43858 casey30999
Posted
Hi casey the best way to find out if you have endometriosis is via a lap. It's the best way for sure. I had a lap last year may at Guys hospital it took me a while to recover but they found small patch of endometriosis on my ligaments and it was removed. Since my op I have changed my diet because some foods make endometriosis worse... Well for me they do. There a book on endometriosis diet which I have been following and it has really helped with flares.
casey30999 sandy43858
Posted
Hi Sandy,
Thank you Sandy!! How long was recovery? I am going to look into a specialist today and see what they say. my husband is saying I should get another opinion from someone who specializes in it other than my gynecologist.
sandy43858 casey30999
Posted
Hi casey every women's recovery is different. I felt better in 2 weeks. You defo need someone without for the first 2 days. I was back to normal going to work and doing yoga in a few weeks. Some women will say their pain was awful I guess it depends how bad the endometriosis is. Some women have stage 5 and get no pain. And some women like me might have minimal and have bad pain. My pain is in my pelvis and tailbone area. The surgery really helped though. Ask for a referral to Guys Hospital they have a few specialist and quite good but you have to wait 4 months for your appointment. You can still have children with endometriosis. It might mean it takes longer to get pregnant but it's possible. Also IVF might be an option. Endometriosis doesn't effect a pregnancy once you get pregnant and pass the risk stages it's no different.
casey30999 sandy43858
Posted
Thank you!
Bonita24K casey30999
Posted
Hi Casey,
I suffer from Endo too! I have had two surgeries so far, the first one's pain was terrible! T E R R I B L E!!!! I had that surgery with the incision in my abdomen to remove it along with two cysts, the second surgery's pain was nowhere near as bad as the first but I felt symptoms that I felt so before it got to horrible I went in for an ultrasound there was more endo and another cysts that grew again because it was drained during the first surgery instead of removed, "TRAGIC" right! But this surgery was laparoscopy. Recovery wasn't so bad, well to me it wasn't, nonetheless, there is nothing better than knowing. I'd say go in and have the laparoscopy done. All the best!
casey30999 Bonita24K
Posted
Oh my!! That is horrifying. My blood tests came back today and all was normal except for the testosterone level was low. I emailed my doctor and told her I would like to move forward with the laparoscopy done. I am waiting for her to email me back. I am full of emotions and my husband I don't think believes that I even have anything. No wander why I've gained weight and I'm tired all the time with my testosterone levels being low and it also says that low testosterone levels can decrease fertility. So not only do I have the worry of having a tilted uterus, possible Endo, l have low testosterone levels as well. How long was your recovery from your first surgery?
Casey
Roxyjoe123 casey30999
Posted
Hi
Sorry to say it really does sound like you have endometriosis . Why isn't your gaynogolist sending you for a laparoscopy? If she sure than you should be seeing the right people.
Especially if you want children and if you ever needed Ivf or something it's best that you know. Request to see a Endometriosis specialist. It's not right to leave you in pain and for your Dr to guess you have endometriosis, than tell you pregnancy will help.
Kind regards
I am 37, stage 4 endometriosis and Adenomyosis.
Hope things get better soon
casey30999 Roxyjoe123
Posted
I am depressed right now. I feel that my husband isn't concerned at all. He told me to get a second opinion. I went ahead and emailed my gynecologist that I would like to go ahead and move forward with the laparoscopy. I do want children and I would be devastated if I could not have any. I don't want to not know for sure.
Roxyjoe123 casey30999
Posted
Hi
I didn't mean to scare you saying the word IVF, Bontia right have faith I know and met lots of women who go on to have children with endometriosis.
You're done the right thing emailing your gaynogolist. It could be something simple. Best you can do is get the bigger picture than the right and best advice.
Sorry you're depressed 10+ with partner sounds a good relationship. Maybe he scared and keeping quiet.
You're doing everything right, emailing and talking to your partner.
Kind regards
Roxyjoe123
Posted
And casey you coming on here talking about your feelings is good especially how low you feel right now. 😊
I had a op 2months ago, my recovery was good I was up and about a week later. Like all these other women are saying every one different. Waiting for appointments are horrible, but stick in there. x
X
Roxyjoe123 casey30999
Posted
Could your husband be scared, that he might have problems with his swimmer's?
casey30999 Roxyjoe123
Posted
He says he is scared that he cannot handle them. He has anxiety and depression. The cost is a big issue for him as well. As it always has. Somehow though he always seems to spend money on things. He also says he is scared as a child is a life time responsibility. You could be right though and he may not be telling me the whole truth. I just feel that the longer we wait the harder it will be and with him being on medication and already having problems down there and a low sex drive it is possible. I had a miscarriage when I was 18. So it is possible we both have issues. Idk... I've also have been thinking lately, what if I go and have the laparoscopic done and the doctor finds nothing. My husband and family and coworkers along with my doctor will think I am a nut case. I always feel super bloated, not really hungry, but I think I am a depressed eater. I have this constant dull pain in my lower abdomen and back and the pain radiates down my left leg that doesn't subside with 800 mg ibprofen for 2 weeks after my cycle. Then I think can I have ovarian cancer. I have the symptoms as well, but my Gynecologist doesn't say anything about it and she said my ultrasound was normal...one cyst on my left ovary, but they said it was there probably because I was fixing to begin ovulating. I am a nervous wreck. I feel that I should feel bloated 3 weeks out of the month and have the dull pain. I've come to deal with it.
Roxyjoe123 casey30999
Posted
I was like that, what if they find nothing, I will look crazy .Your not going crazy all this anxiety, pain and not knowing make the anxiety worse.
When did you last have a smear test?
Don't think cancer, you'll go crazy
But I was thinking all sorts like you years ago. Till I changed GPs i was lucky he believed me
Gaynogolist were great at what they do.But only know so much
Try and request to see a endometriosis team even the first Dr from specialist found endometriosis on top of vangia .(till then no other felt the endo disposit) Dr Barry whitlow is the man to see or his team. If your in Essex, Suffolk sure he does suffolk.
I had sooooooo many tests, seen all sorts of speaclists. All my blood test would be normal, nothing on ultrasound or MRI. For sure some Dr's didn't believe my pain or work. Blamed stress etc . I
Your husband probably does care you know. But if he depressed and got anxiety then all this will be making him worried. They can be quite rubbish talking can't they.
I know my partner felt useless that he couldn't help or give me a answer.
He depressed and seeing u stress and worry probably hurting him. Like it did to mine. He would hold everything in then bang explodes.
Know it's hard but try and take once step at a time.
If you're husband is thinking it might be him then he anxiety and depression will be making it worse. Like I said my partner felt useless because he could not help. Alot of times I thought he didn't care but he did.
He just was handling our situation differently x