mixed results on old test. tired, complexion is weird orange

Well, the good thing is that you are finally being tested.  Your symptoms do sound like HC but then HC symptoms are so like many others.

It is good to get an answer for your problems and for it to be treatable as HC is.  Your tests from 9 years ago indicate a transferrin saturation level that was getting near the reference range of 50% and this can be more telling than ferritin levels.  Your ferritin levels at that time showed that you were not transporting your very slightly elevated serum iron into your organs.

The TS% means that your dr should have monitored your levels at least every 12 months to check what was happening.  If only we knew ourselves.  My dr took 9 years to diagnose after I complained of already severe symptoms and not until my hips broke up from osteo-necrosis.  She was in complete denial of HC.  This was pre google so I could not check up for myself.  All we had back then was "Reader's Digest".

I am wondering about your age - only to see how your symptoms align with the number of years since onset.  A gentleman contacted me about his symptoms who was over 80 years old and suspected it could be HC but his dr did not want to test him.  It would be easy to just dismiss his symptoms because of his age.  I told him what tests to ask for.  He had a physiotherapist who was also a dr so this dr agreed to test him and he was positive for homozygous H63D.  As this is generally a very mild form of HC, it had very slowly started to affect him at a late age.

You don't mention any joint or body pain.  Perhaps you put have that down to age too.

Let us know how you go.

 

Actually, I must check on your serum iron level as indicated.  In my country the ref range is 10-30 umol/L so I cannot equate it being over the reference range, even if read as 16.4.  164 sounds more like a Haemoglobin result where our ref range is 115-160 g/L.

 

I'm 33 male, ive had joint issues for over a decade, I get mild swelling in my hands the day after if I lift weights.  its hit or miss, I don't get it as much anymore but used to be I'd wake up and just run hot water over my hands.  both of my knees grind, degenerative disc disease in lower back.  neck issues.  peeling skin on hands and right shin.  on my palms.  I've greatly increased my vitamin A lots of spinach and sweet potato and ferments and that has helped my skin peeling tremendously but its still there.  my free testosterone has a range of 7-21 and I forget the units but I'm 8.5 .  So basically I'm not technically suffering from hyporgonadism as the lab sees it, but these numbers are not compared to a more precise age which seems odd. My nails are thin and brittle but really they've always been that way since I was a kid so probably nothing new there.  Recently I've had blurry vision and tinnitus and things sounding like I'm listening through a funnel, a really thick fog.  This was no joke, scared the hell out of me.  It came on the heels of too much alcohol, but it wasn't a hangover and it lasted for a week.  Its what made me basically reduce alcohol to 1 drink.  It came as an intense wave of neurological symptoms, I had a white poop (I don't know if relevant.  my liver enzymes were just slightly high but nothing really concerning).  those symptoms started all at once, and cleared up mostly after a couple of weeks.  but a bit of it is still there.  at this point its mostly just the tinnitus and anxiety.  the tinnitus has been creeping up for a while.  I hear it mostly in the morning upon waking and in the evening hours.  Had a head and neck CT a year ago and it didn't show anything catastrophic.

My blood sugar is higher than it should be, prediabtic ish.  the serum iron from the previous post is micrograms per deciliter, or ug/dl.

I'm using labcorp so with or without doctor calling me I'll have results online by friday morning.  Probably sounds weird but I hope this is it, why I feel so crappy because this is curable.  ish.  it seems.

Also, the previous test had 48% saturation as being within reference range... anywho.

thanks for the replies

In your opinion, would a standard mulitvitamin 2 days before a test with iron in it throw a non fasting test off?

sorry I've got another comment in limbo with additional info but I used the word heck and it was flagged for moderation.  I'll just wait for it to clear rather than retype it all.

I just wanted to follow up, iron panel my iron is 130, and everything else within range.  Glucose still slightly high, random spike in potassium but I make a lot of smoothies so that kinda makes sense.  Liver enzymes all within range.

Lymphs(absolute) is 3.7  (Reference Range: 0.7-3.1 x10E3/uL).