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Mobility worse if busy??

Posted , 4 users are following.

kelly_01680
kelly_01680

Hi, just a quick q...can mobility be worse after say, a busy day, or a long walk? Thanks

0 likes, 12 replies

12 Replies

  • wendy80842
    wendy80842 kelly_01680

    Posted

    Yes, oh hell yes... Sorry, I'm really affected by this, but you probably already guessed that by my first answer. It's frequently affected by temperature changes, too. I find that a bath is very tiring and makes my legs really uncooperative. Once I've rested for a little while, and cooled down, my legs work more normally, again.

    Be pragmatic, pace yourself, as best as you can.

    • kelly_01680
      kelly_01680 wendy80842

      Posted

      Thanks Wendy. I'm not sure I have ms. Am currently still trying to find out what's going on with me. I seem to have all the symptoms of it though. Funny you should mention baths....nothing I love more than a boiling hot soak but lately they don't seem to be helping. I don't feel relaxed and when I get out I feel tired and weak. So been avoiding them sad
    • kelly_01680
      kelly_01680

      Posted

      I should also mention that my mobility is greatly reduced the more I do, to the point where I now can't walk more than 15 mins. Am seriously considering a wheelchair
  • wendy80842
    wendy80842 kelly_01680

    Posted

    My advice to anyone who's dealing with anything like this is: write down everything you think might be relevant, including start AND end dates of even slightly suspect symptoms (given the nature of relapsing/remitting MS, it can help to have ens dates, as well as when symptoms begin) also record your questions and concerns. Should it turn out that you do have MS, remember, it's NOT fatal, and there's lots of us (with MS), to not just ask questions to, but also to have a good moan to, which can be useful, at times.
  • wendy80842
    wendy80842 kelly_01680

    Posted

    I've posted this so many times, in the past, that I've kept a copy to paste. It's just about my experience of being diagnosed with MS, and the process involved. It's just in case anything is pertinent to another person. Here it is, sorry for any repeated stuff:

    I have ms, i was diagnosed (abbreviated to dx) in 2004, the problem with pinning down an ms dx is the wildly varying experiences of each person with the condition, and how we report our experiences also varies a hell of a lot. our nervous systems are so complex, of course. generally, it's not just about the results of 1 mri that are used, but at least one more, at a later date, this is to see if there's progression over both physical space (lesion/s) AND time. there may or may not be a change, even then, which doesn't necessarily rule out ms, as even if it IS ms, it might not have been actively progressing between mri's, OR, if it's remitting, it could even have improved. you can see why so many of us have a long time to wait, to see if we have ms or not.  it's also accepted practice to do a lumbar puncture to look for oligoclonic bands in our cerebrospinal fluid. a full examination will almost certainly be carried out by a neurologist, to test your reflexes, balance, response to stimulae (hot, cold, soft, sharp etc) and so forth.

    i would always strongly advise anyone with ongoing health concerns, to keep a journal of experiences: symptoms (any and all) , dates when they start OR end, concerns, questions for medics, anything you think might relate to your health problems. take your journal with you when you go to appointments with any medics, and, if possible take someone with you, it's handy to have another person listening, as it's easy to miss things.

    • kelly_01680
      kelly_01680 wendy80842

      Posted

      Thank you for that. I have hypermobility but I'm sure my symptoms are of something else too. Me ms fibromyalgia, I'm just not sure. I've gone from someone who loves running around being busy to simply unable. I've even quit my job (have 4 kids to look after) my mobility and pain has got worse over the last year. But I don't seem to have a start and end to it. The pain is almost always there in one way or another. I'm on painkillers everyday. It's just if i do a lot/walk to far, I'm then left in even more pain and to the point where I can't walk on one leg, and the other is also painful.
  • Aza1990
    Aza1990 kelly_01680

    Posted

    Hi yes it can get worse as it does for me I only have to walk 5 minutes and I have trouble walking much more let's start giving way it's the worse thing that can happen
    • kelly_01680
      kelly_01680 Aza1990

      Posted

      I'm really scared I'm going to end up in a wheelchair all the time sad I'm so glad I can drive!
  • wendy80842
    wendy80842 kelly_01680

    Posted

    While my MS problems began with me having relapsing/remitting MS, more formally, for the most part, it was actually pretty full on. I definitely think that my worst symptom is pain, which is largely ongoing (good days and bad). I have no idea when it got to it, but I've been classed as secondary progressive for years now. So I can empathise with you. Do go back to your Dr, if you ever need to rethink your pain meds, they can need altering from time to time.

    Whatever it is that you're dealing with, there are always others who you can reach, who know what it's like. Just try to be as pragmatic as you can be, and pace yourself. You really have your hands full with 4 kids!

    • kelly_01680
      kelly_01680 wendy80842

      Posted

      Thanks again Wendy. I will definitely mention it when I finally get an appointment. It's the not knowing! Half of me is worried that there's nothing wrong and it's all in my head!!
  • federico50856
    federico50856 kelly_01680

    Posted

    Hi there. Absolutely yes. It worsen because fatigue is cumulative and your capability to move gradually becomes less easy, i.e. when you exercise, or at the end of a working day..
    • kelly_01680
      kelly_01680 federico50856

      Posted

      Unfortunately I've had to leave my job but I have 4 kids to look after so always busy.

      I'm so fed up with the pain! Not knowing what's happening to me makes it even harder. I've woken up today sooo sore and stiff. My pelvis feels like it's going to crack in two, my legs are burning with pins and needles and feel like I've been given a dead leg, they ache like mad. I've had enough sad

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