Monitoring progress

Thanks Sus. You too. :-)

Hi where do you but Dmanose capsules please?

Hi Pat, Thanks for your message. Yes I have gotten some relief although I must admit that since the AV started almost a year ago I have been like you. I seem to have gone in and out of discomfort. I have had fairly good days but then I will relapse for a couple of days. So far, since last Thursday I have done reasonably ok. Not perfect but a bit better. Today has been ok too. I think I will have to do like you are doing and remain patient and tell myself I am healing inside etc. Must admit I can be comfortable sitting too so hopefully the trip to Scotland won't be too bad, as long as I don't have the feeling I want to wee all the time. Yes I am seeing some improvement thanks. So hopefully I will enjoy the holiday in a couple of weeks. :-)

7pm. Just getting some discomfort now but its not the worst I've known it. Will have to be patient for sure.

I have gotten them at the health food store here; it is called Fruitful Yield.  But I would think that if you can find cranberry capsules the same store might have the D-Mannose.  Like the sugar in cranberry, (I found the following definition for what it is on-line ..."D-mannose is a naturally occurring simple sugar, closely related (in chemical terms, a “stereoisomer”) to glucose. Small amounts of D-mannose are metabolized by our bodies; more than small amounts are excreted promptly into the urine. D-mannose is naturally occurring, many of you may have guessed that cranberry juice (as well as pineapple juice) contain more D-mannose than most other foods. However, the amounts found in these juices are substantially less than in the ½ teaspoon (approximately 1 gram) adult dose, and are substantially less effective." When we get urinary tract infections it is normally from e-coli.  The e-coli sticks to the sugar in the d-mannose and just gets washed out of the body when we urinate.  The urologist that I saw told me to take 500 to 1000 mg like I would take a vitamin....so I take 500 mg in the morning along with my probiotic and multi vitamin.  I was assured that it won't hurt you and it will help prevent UTI's.  At least this way I feel more secure that I DON'T have a UTI and that I am dealing with VA.  Not knowing what I needed to treat was driving me crazy.  Now I don't go to the doctor repeatedly to be checked for a UTI.  If you can't find it in any stores, you can buy it on-line.  If you get just powder, you can just put a teaspoon in a glass of water or use it to sweeten coffee or tea.  It is not unpleasant ... just tastes midly sweet.  I use the capsules because they are convenient.  But I buy the powder if the store runs out of capsules.

One other thing that I do is to wear lose clothes as much as possible and go without panties whenever it is feasible.  Obviously it is not possible if you are using Vitamin E or coconut oil - you need to protect your clothes.  But many nights or when I am at home I just let as much air as possible circulate on my body.  I wish you a very good trip to Scotland!  Think positive! 

Hi Pat, Thanks for that. Yes it struck me recently not to wear tight clothes. And if I'm not using Vit E oil I could try not wearing panties too. Another reason for not wearing tight jeans/trousers etc is to make my hip more comfortable. I've got a new hip and tight jeans seem to pull on the op site. So that's two good reasons to wear loose clothes as much as I can and only wear jeans etc if I go out. Thank you. I am sure I will enjoy Scotland. I go on June 20th just for a week. Will report back here when I get back.Here's to thinking positive! :-)

Thank you Pat, that is very interesting

yes I too think no pants is a good idea when you can!