Mono!! FAce and head numbness ??
Posted , 10 users are following.
Its been a while since I’ve posted, i am in my 7th month of gf and while a lot of my symptoms are gone! I have a couple lingering ones, one that has really been bothering me is I’ve had face numbness and my head as well!! It’s scares me to death and I’m looking for anyone else that may or is experiencing this with mono!! Oh and just my left eye pain comes and goes and sometimes my eye will itch, it’s soo bizarre!’
Thanks guys
0 likes, 26 replies
rachel45453 jennifer77004
Edited
i don't know if people are still posting but I have been having these symptoms too!! I have severe intense health anxitey which isn't good. I am in my 4th month of glandular fever and i have recently had a tingling that started in my left arm and now it is predominantly in my left leg. i am terrified it is something bad but it does give me company others have been through it. help! x
rachel
sue40710 jennifer77004
Edited
Thank God I just came upon this chat board!
I was diagnosed with mono the end of 2019 Most of the symptoms have gone but I'm still
tired and have been having tingling in my legs
It's 5 months and you do start to feel like you will never get back to normal!! I can do housework and 10 minutes of yoga stretching and then I'm done for the day!! The minute I get worked up or upset or do too much.... BOOM, the tingling is way worse and I have to lay down all day. I'm learning to manage my stress levels, quite the process.
I find one of the worst things is having to explain to people why I'm still not fully recovered. I'm 55 and they dont understand.
I wish they read your posts. Thank you all. At least I know now the tingling isn't something life threatening.
WilliamsWndrlnd jennifer77004
Edited
I am so grateful to find this board!!! I was first diagnosed with Mono June 2019. I felt as though i was getting better around Dec/January 2020. I've recently been diagnosed with Pneumonia (in April 2020) and started to have symptoms again; although, the tiredness never really left. My Monospot came back positive again and I am having pins and needles in my arms/hands & legs/feet, along with the weakness and fatigue, sore throat, pain under left and right rib cage, between my shoulders, it just goes on and on! Of course, I started getting depressed and anxious because I'm thinking I'm going crazy! I am sorry that everyone is going through this, but I am grateful that others understand what I am going through! I am praying we all get back to normal!
sue40710 WilliamsWndrlnd
Edited
Hi Jennifer;
So sorry that you are struggling too! Can I ask how much activity you were doing in Jan 2020 when you said the symptoms came back? Its obvious that most people ( and even some Doctors) seem clued out about the length of mono! I seem to have these days lately when my energy seems much higher and just one car outing leaves me tired again the next day. It's so challenging as we have to feed ourselves and do simple normal things at home. I can't get stressed about anything as it sets me back! Hard not to in the middle of a pandemic!!
I hope you feel better very soon.
WilliamsWndrlnd sue40710
Posted
Hey! Sorry I am new to this and I may not have replied to the thread properly. My symptoms finally started to improve Dec/Jan 2020 & it felt like i was in my own personal slow hell. My mono came back full force when I was diagnosed with Pneumonia in April, I have been going through this relapse for the last 3 weeks. My PCP doesnt really do anything except refer me to specialists. I am thinking of going to see an Allergy/Immunology or ID on my own to get someone to advise me on how to fight to get my health back. I am currently working on cleaning up my diet; although, my appetite is poor. i have to get this thing to go dormant!!!! I need my life back!
WilliamsWndrlnd sue40710
Posted
also, my name is Karen! 😃
sue40710 WilliamsWndrlnd
Edited
Oh so sorry Karen. I read the name Jennifer above a feed! I feel exactly the same way. Also want my life back. All I keep hearing is that it takes time and alot of laying around. There is also a Mayo clinic chat board with so many people vocalizing the same fears and frustration. You might want to check it out!
If it only lasts for 6 weeks with teenagers why on earth does it last so long later in life?
WilliamsWndrlnd sue40710
Posted
i found the Mayo support board too! It confirmed that I'm not losing my mind. It's amazing that you think you're all alone, but others suffer from the same thing. I wouldn't wish this on my worst enemy though!
WilliamsWndrlnd sue40710
Posted
Sorry I have brain fog too lol but i think it lasts longer the older you are and if their is some sort of autoimmune deficiency going on. We just have to find the root cause for ourselves, I think!